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joelcairo

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      joelcairo
      Participant

        Looks liks a pretty solid diet. Personally I am not sold on coconut oil. There is a lot of stuff on YouTube and so on about it, but in my opinion it doesn't have good scientific evidence behind it.

        I also don't like multivitams, as they may contain substances that may be counterproductive. For example, vitamin A or beta carotene, vitamin E (alpha tocopherol), iron and copper. Unfortunately that means coming up with a long list of nutrients that are good for you, or at least you don't want to be deficient in, and taking them separately. Just in terms of minerals, that could mean magnesium, potassion, boron, vanadium, zinc, iodine and sodium selenite.

        Green tea or green tea extract is one of the best things you can take. Also when cancer is this advanced, maybe you should go straight to curcumin instead of turmeric.

        joelcairo
        Participant

          Looks liks a pretty solid diet. Personally I am not sold on coconut oil. There is a lot of stuff on YouTube and so on about it, but in my opinion it doesn't have good scientific evidence behind it.

          I also don't like multivitams, as they may contain substances that may be counterproductive. For example, vitamin A or beta carotene, vitamin E (alpha tocopherol), iron and copper. Unfortunately that means coming up with a long list of nutrients that are good for you, or at least you don't want to be deficient in, and taking them separately. Just in terms of minerals, that could mean magnesium, potassion, boron, vanadium, zinc, iodine and sodium selenite.

          Green tea or green tea extract is one of the best things you can take. Also when cancer is this advanced, maybe you should go straight to curcumin instead of turmeric.

          joelcairo
          Participant

            Looks liks a pretty solid diet. Personally I am not sold on coconut oil. There is a lot of stuff on YouTube and so on about it, but in my opinion it doesn't have good scientific evidence behind it.

            I also don't like multivitams, as they may contain substances that may be counterproductive. For example, vitamin A or beta carotene, vitamin E (alpha tocopherol), iron and copper. Unfortunately that means coming up with a long list of nutrients that are good for you, or at least you don't want to be deficient in, and taking them separately. Just in terms of minerals, that could mean magnesium, potassion, boron, vanadium, zinc, iodine and sodium selenite.

            Green tea or green tea extract is one of the best things you can take. Also when cancer is this advanced, maybe you should go straight to curcumin instead of turmeric.

            joelcairo
            Participant

              I have no way of knowing how much of this is a direct effect of the drugs and radiation, but chronic loss of appetite and weight loss in cancer CAN be due to cachexia. This is a disruption of the metabolism caused by the release of a large number of inflammatory cytokines from the tumor, by the body's immune system, and by the breakdown of healthy tissue.

              This is a dangerous condition and it's important to get the body back to a normal state. Some foods/supplements that have been tried with come success are:

              – Omega-3 fatty acids

              – EGCG and theophylline, both nutrients found in green tea

              – Ketogenic diet

              – CoRN protocol, a combination of coenzyme Q10, riboflavin and niacon

              – NSAIDs such as Celebrex

              – Curcumin

               

              joelcairo
              Participant

                I have no way of knowing how much of this is a direct effect of the drugs and radiation, but chronic loss of appetite and weight loss in cancer CAN be due to cachexia. This is a disruption of the metabolism caused by the release of a large number of inflammatory cytokines from the tumor, by the body's immune system, and by the breakdown of healthy tissue.

                This is a dangerous condition and it's important to get the body back to a normal state. Some foods/supplements that have been tried with come success are:

                – Omega-3 fatty acids

                – EGCG and theophylline, both nutrients found in green tea

                – Ketogenic diet

                – CoRN protocol, a combination of coenzyme Q10, riboflavin and niacon

                – NSAIDs such as Celebrex

                – Curcumin

                 

                joelcairo
                Participant

                  I have no way of knowing how much of this is a direct effect of the drugs and radiation, but chronic loss of appetite and weight loss in cancer CAN be due to cachexia. This is a disruption of the metabolism caused by the release of a large number of inflammatory cytokines from the tumor, by the body's immune system, and by the breakdown of healthy tissue.

                  This is a dangerous condition and it's important to get the body back to a normal state. Some foods/supplements that have been tried with come success are:

                  – Omega-3 fatty acids

                  – EGCG and theophylline, both nutrients found in green tea

                  – Ketogenic diet

                  – CoRN protocol, a combination of coenzyme Q10, riboflavin and niacon

                  – NSAIDs such as Celebrex

                  – Curcumin

                   

                  joelcairo
                  Participant

                    I don't know why intratumoral injection isn't used more frequently in such cases. There may be reasons, but everything I have read makes the strategy look promising. The agents used are frequently designed to trigger an immune response rather than being directly cytotoxic. For example, these have been studied in cancer patients and/or in animal models…

                    – CpG-ODN (CpG oligodeoxynucleotides)

                    – imiquimod

                    – IL-2

                    – bee venom

                     

                    Survival after intratumoral interleukin-2 treatment of 72 melanoma patients and response upon the first chemotherapy during follow-up
                    http://link.springer.com/article/10.1007%2Fs00262-010-0957-3
                     

                    joelcairo
                    Participant

                      I don't know why intratumoral injection isn't used more frequently in such cases. There may be reasons, but everything I have read makes the strategy look promising. The agents used are frequently designed to trigger an immune response rather than being directly cytotoxic. For example, these have been studied in cancer patients and/or in animal models…

                      – CpG-ODN (CpG oligodeoxynucleotides)

                      – imiquimod

                      – IL-2

                      – bee venom

                       

                      Survival after intratumoral interleukin-2 treatment of 72 melanoma patients and response upon the first chemotherapy during follow-up
                      http://link.springer.com/article/10.1007%2Fs00262-010-0957-3
                       

                      joelcairo
                      Participant

                        I don't know why intratumoral injection isn't used more frequently in such cases. There may be reasons, but everything I have read makes the strategy look promising. The agents used are frequently designed to trigger an immune response rather than being directly cytotoxic. For example, these have been studied in cancer patients and/or in animal models…

                        – CpG-ODN (CpG oligodeoxynucleotides)

                        – imiquimod

                        – IL-2

                        – bee venom

                         

                        Survival after intratumoral interleukin-2 treatment of 72 melanoma patients and response upon the first chemotherapy during follow-up
                        http://link.springer.com/article/10.1007%2Fs00262-010-0957-3
                         

                        joelcairo
                        Participant

                          Plaque radiation is fine but it's not the only way to go. One option would be to get a quick second opinion, as technologies such as proton beam radiation are more efficient in certain situations (depending largely on where the tumor is in the eye) and have slightly different effects on the eye.

                          All the technologies are quite reliable in terms of sterilizing the tumor (something like 95% or maybe better).

                          Most patients would urge you to have a fine needle biopsy done if possible. Sometimes doctors say this is not possible because of the location or size of the tumor, but if you're told this, press a little to make sure the doctor isn't merely trying to dissuade you from having it done because he doesn't think it's useful. It is. You can have the cells genetically tested, the results will drive the type of follow-up treatment you receive and the quality/frequency of follow-up scans you get.

                          Good luck.

                          joelcairo
                          Participant

                            Plaque radiation is fine but it's not the only way to go. One option would be to get a quick second opinion, as technologies such as proton beam radiation are more efficient in certain situations (depending largely on where the tumor is in the eye) and have slightly different effects on the eye.

                            All the technologies are quite reliable in terms of sterilizing the tumor (something like 95% or maybe better).

                            Most patients would urge you to have a fine needle biopsy done if possible. Sometimes doctors say this is not possible because of the location or size of the tumor, but if you're told this, press a little to make sure the doctor isn't merely trying to dissuade you from having it done because he doesn't think it's useful. It is. You can have the cells genetically tested, the results will drive the type of follow-up treatment you receive and the quality/frequency of follow-up scans you get.

                            Good luck.

                            joelcairo
                            Participant

                              Plaque radiation is fine but it's not the only way to go. One option would be to get a quick second opinion, as technologies such as proton beam radiation are more efficient in certain situations (depending largely on where the tumor is in the eye) and have slightly different effects on the eye.

                              All the technologies are quite reliable in terms of sterilizing the tumor (something like 95% or maybe better).

                              Most patients would urge you to have a fine needle biopsy done if possible. Sometimes doctors say this is not possible because of the location or size of the tumor, but if you're told this, press a little to make sure the doctor isn't merely trying to dissuade you from having it done because he doesn't think it's useful. It is. You can have the cells genetically tested, the results will drive the type of follow-up treatment you receive and the quality/frequency of follow-up scans you get.

                              Good luck.

                              joelcairo
                              Participant

                                I assume you would be covered for unrelated issues but not pre-existing conditions. Of course that needs to be clarified by whatever health insurance provider you use. Whether you choose to travel depends on how likely it is that urgent and unexpected complications could arise. A place like Mexico or Cuba would be a better choice than the US, because even if medical care or hospitalization is required, it's less likely to be a bankrupting expense.

                                joelcairo
                                Participant

                                  I assume you would be covered for unrelated issues but not pre-existing conditions. Of course that needs to be clarified by whatever health insurance provider you use. Whether you choose to travel depends on how likely it is that urgent and unexpected complications could arise. A place like Mexico or Cuba would be a better choice than the US, because even if medical care or hospitalization is required, it's less likely to be a bankrupting expense.

                                  joelcairo
                                  Participant

                                    I assume you would be covered for unrelated issues but not pre-existing conditions. Of course that needs to be clarified by whatever health insurance provider you use. Whether you choose to travel depends on how likely it is that urgent and unexpected complications could arise. A place like Mexico or Cuba would be a better choice than the US, because even if medical care or hospitalization is required, it's less likely to be a bankrupting expense.

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