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jcraigdawson
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jcraigdawson

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      • March 6, 2013 at 4:44 pm
      jcraigdawson
      Participant

        look into getting a  Reid Sleeve for night time (made by peninsula medical.) its been highly effetive for me and is less intrusive to sleeping than a pump. 

        getting it paid for by insurance was a hassle, but wrth the effort. i also take it  with me on airplane rides to reduce swelling in the air.

        good luck!

        • March 6, 2013 at 4:44 pm
        jcraigdawson
        Participant

          look into getting a  Reid Sleeve for night time (made by peninsula medical.) its been highly effetive for me and is less intrusive to sleeping than a pump. 

          getting it paid for by insurance was a hassle, but wrth the effort. i also take it  with me on airplane rides to reduce swelling in the air.

          good luck!

          • March 6, 2013 at 4:44 pm
          jcraigdawson
          Participant

            look into getting a  Reid Sleeve for night time (made by peninsula medical.) its been highly effetive for me and is less intrusive to sleeping than a pump. 

            getting it paid for by insurance was a hassle, but wrth the effort. i also take it  with me on airplane rides to reduce swelling in the air.

            good luck!

            • May 23, 2012 at 10:16 pm
            jcraigdawson
            Participant

              Mary, Eileen – Thank you.

              Met with the Doctor's today and they shrugged off a CT having a negative effect. Which given online research isn't surprising. A friend whose a Doctor did confirm that an iodine alergy can definate occur over time.

              Charlie – I do hope the little venting helped you in some way. At the time of posting, the "why" of the CT scans did not seem to be relevant to the question I asked nor do I see it as anything but a stated fact void of emotion. Since you asked, the frequency is tied to the protocol required by the research study I'm on (listed in my profile). 

              • May 23, 2012 at 10:16 pm
              jcraigdawson
              Participant

                Mary, Eileen – Thank you.

                Met with the Doctor's today and they shrugged off a CT having a negative effect. Which given online research isn't surprising. A friend whose a Doctor did confirm that an iodine alergy can definate occur over time.

                Charlie – I do hope the little venting helped you in some way. At the time of posting, the "why" of the CT scans did not seem to be relevant to the question I asked nor do I see it as anything but a stated fact void of emotion. Since you asked, the frequency is tied to the protocol required by the research study I'm on (listed in my profile). 

                • May 23, 2012 at 10:16 pm
                jcraigdawson
                Participant

                  Mary, Eileen – Thank you.

                  Met with the Doctor's today and they shrugged off a CT having a negative effect. Which given online research isn't surprising. A friend whose a Doctor did confirm that an iodine alergy can definate occur over time.

                  Charlie – I do hope the little venting helped you in some way. At the time of posting, the "why" of the CT scans did not seem to be relevant to the question I asked nor do I see it as anything but a stated fact void of emotion. Since you asked, the frequency is tied to the protocol required by the research study I'm on (listed in my profile). 

                  • February 17, 2012 at 11:10 pm
                  jcraigdawson
                  Participant
                    My son Truman was 14 Months when I pulled the plug and went on full leave from work and focused on treatment and looking after him. Caring for him wasn’t exceptionally hard, but I spent a large amount of time laying on the playroom floor encouraging independent play and napping with him. We have a special bond because of it.

                    Unfortunately I couldn’t imagine a full year of interferon as a “single” parent and working. That said there are extraordinary people that rise to the occasion, and and that could easily be you.

                    Good luck
                    JCD

                    • February 17, 2012 at 11:10 pm
                    jcraigdawson
                    Participant
                      My son Truman was 14 Months when I pulled the plug and went on full leave from work and focused on treatment and looking after him. Caring for him wasn’t exceptionally hard, but I spent a large amount of time laying on the playroom floor encouraging independent play and napping with him. We have a special bond because of it.

                      Unfortunately I couldn’t imagine a full year of interferon as a “single” parent and working. That said there are extraordinary people that rise to the occasion, and and that could easily be you.

                      Good luck
                      JCD

                      • February 17, 2012 at 11:10 pm
                      jcraigdawson
                      Participant
                        My son Truman was 14 Months when I pulled the plug and went on full leave from work and focused on treatment and looking after him. Caring for him wasn’t exceptionally hard, but I spent a large amount of time laying on the playroom floor encouraging independent play and napping with him. We have a special bond because of it.

                        Unfortunately I couldn’t imagine a full year of interferon as a “single” parent and working. That said there are extraordinary people that rise to the occasion, and and that could easily be you.

                        Good luck
                        JCD

                        • February 13, 2012 at 7:40 pm
                        jcraigdawson
                        Participant

                          I'm currently doing a Phase 2 trial, and all my onc's want me exercising. Run it by your doc first.

                          • February 13, 2012 at 7:40 pm
                          jcraigdawson
                          Participant

                            I'm currently doing a Phase 2 trial, and all my onc's want me exercising. Run it by your doc first.

                            • February 13, 2012 at 7:40 pm
                            jcraigdawson
                            Participant

                              I'm currently doing a Phase 2 trial, and all my onc's want me exercising. Run it by your doc first.

                              • October 14, 2011 at 2:14 pm
                              jcraigdawson
                              Participant

                                Jamie,

                                I feel your pain in not knowing. I recently had a very similar scenario occur, 7mm "something" on a pet with a low uptake and nothing showing on a CT with contrast done the same week. The doctors all recommended the same – wait and see. The oncological surgen said no one in their right mind would go digging for something that small, and something that small is aweful hard to hit with a needle biopsy. As for what it might be, a whole lot more lung nodules are benign than are melanoma.

                                Good Luck,

                                Craig.

                                • October 14, 2011 at 2:14 pm
                                jcraigdawson
                                Participant

                                  Jamie,

                                  I feel your pain in not knowing. I recently had a very similar scenario occur, 7mm "something" on a pet with a low uptake and nothing showing on a CT with contrast done the same week. The doctors all recommended the same – wait and see. The oncological surgen said no one in their right mind would go digging for something that small, and something that small is aweful hard to hit with a needle biopsy. As for what it might be, a whole lot more lung nodules are benign than are melanoma.

                                  Good Luck,

                                  Craig.

                                  • October 14, 2011 at 2:14 pm
                                  jcraigdawson
                                  Participant

                                    Jamie,

                                    I feel your pain in not knowing. I recently had a very similar scenario occur, 7mm "something" on a pet with a low uptake and nothing showing on a CT with contrast done the same week. The doctors all recommended the same – wait and see. The oncological surgen said no one in their right mind would go digging for something that small, and something that small is aweful hard to hit with a needle biopsy. As for what it might be, a whole lot more lung nodules are benign than are melanoma.

                                    Good Luck,

                                    Craig.

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