jcraigdawson
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jcraigdawson

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      • March 6, 2013 at 4:44 pm
      jcraigdawson
      Participant

      look into getting a  Reid Sleeve for night time (made by peninsula medical.) its been highly effetive for me and is less intrusive to sleeping than a pump. 

      getting it paid for by insurance was a hassle, but wrth the effort. i also take it  with me on airplane rides to reduce swelling in the air.

      good luck!

      • March 6, 2013 at 4:44 pm
      jcraigdawson
      Participant

      look into getting a  Reid Sleeve for night time (made by peninsula medical.) its been highly effetive for me and is less intrusive to sleeping than a pump. 

      getting it paid for by insurance was a hassle, but wrth the effort. i also take it  with me on airplane rides to reduce swelling in the air.

      good luck!

      • March 6, 2013 at 4:44 pm
      jcraigdawson
      Participant

      look into getting a  Reid Sleeve for night time (made by peninsula medical.) its been highly effetive for me and is less intrusive to sleeping than a pump. 

      getting it paid for by insurance was a hassle, but wrth the effort. i also take it  with me on airplane rides to reduce swelling in the air.

      good luck!

      • May 23, 2012 at 10:16 pm
      jcraigdawson
      Participant

      Mary, Eileen – Thank you.

      Met with the Doctor's today and they shrugged off a CT having a negative effect. Which given online research isn't surprising. A friend whose a Doctor did confirm that an iodine alergy can definate occur over time.

      Charlie – I do hope the little venting helped you in some way. At the time of posting, the "why" of the CT scans did not seem to be relevant to the question I asked nor do I see it as anything but a stated fact void of emotion. Since you asked, the frequency is tied to the protocol required by the research study I'm on (listed in my profile). 

      • May 23, 2012 at 10:16 pm
      jcraigdawson
      Participant

      Mary, Eileen – Thank you.

      Met with the Doctor's today and they shrugged off a CT having a negative effect. Which given online research isn't surprising. A friend whose a Doctor did confirm that an iodine alergy can definate occur over time.

      Charlie – I do hope the little venting helped you in some way. At the time of posting, the "why" of the CT scans did not seem to be relevant to the question I asked nor do I see it as anything but a stated fact void of emotion. Since you asked, the frequency is tied to the protocol required by the research study I'm on (listed in my profile). 

      • May 23, 2012 at 10:16 pm
      jcraigdawson
      Participant

      Mary, Eileen – Thank you.

      Met with the Doctor's today and they shrugged off a CT having a negative effect. Which given online research isn't surprising. A friend whose a Doctor did confirm that an iodine alergy can definate occur over time.

      Charlie – I do hope the little venting helped you in some way. At the time of posting, the "why" of the CT scans did not seem to be relevant to the question I asked nor do I see it as anything but a stated fact void of emotion. Since you asked, the frequency is tied to the protocol required by the research study I'm on (listed in my profile). 

      • February 17, 2012 at 11:10 pm
      jcraigdawson
      Participant
      My son Truman was 14 Months when I pulled the plug and went on full leave from work and focused on treatment and looking after him. Caring for him wasn’t exceptionally hard, but I spent a large amount of time laying on the playroom floor encouraging independent play and napping with him. We have a special bond because of it.

      Unfortunately I couldn’t imagine a full year of interferon as a “single” parent and working. That said there are extraordinary people that rise to the occasion, and and that could easily be you.

      Good luck
      JCD

      • February 17, 2012 at 11:10 pm
      jcraigdawson
      Participant
      My son Truman was 14 Months when I pulled the plug and went on full leave from work and focused on treatment and looking after him. Caring for him wasn’t exceptionally hard, but I spent a large amount of time laying on the playroom floor encouraging independent play and napping with him. We have a special bond because of it.

      Unfortunately I couldn’t imagine a full year of interferon as a “single” parent and working. That said there are extraordinary people that rise to the occasion, and and that could easily be you.

      Good luck
      JCD

      • February 17, 2012 at 11:10 pm
      jcraigdawson
      Participant
      My son Truman was 14 Months when I pulled the plug and went on full leave from work and focused on treatment and looking after him. Caring for him wasn’t exceptionally hard, but I spent a large amount of time laying on the playroom floor encouraging independent play and napping with him. We have a special bond because of it.

      Unfortunately I couldn’t imagine a full year of interferon as a “single” parent and working. That said there are extraordinary people that rise to the occasion, and and that could easily be you.

      Good luck
      JCD

      • February 13, 2012 at 7:40 pm
      jcraigdawson
      Participant

      I'm currently doing a Phase 2 trial, and all my onc's want me exercising. Run it by your doc first.

      • February 13, 2012 at 7:40 pm
      jcraigdawson
      Participant

      I'm currently doing a Phase 2 trial, and all my onc's want me exercising. Run it by your doc first.

      • February 13, 2012 at 7:40 pm
      jcraigdawson
      Participant

      I'm currently doing a Phase 2 trial, and all my onc's want me exercising. Run it by your doc first.

      • October 14, 2011 at 2:14 pm
      jcraigdawson
      Participant

      Jamie,

      I feel your pain in not knowing. I recently had a very similar scenario occur, 7mm "something" on a pet with a low uptake and nothing showing on a CT with contrast done the same week. The doctors all recommended the same – wait and see. The oncological surgen said no one in their right mind would go digging for something that small, and something that small is aweful hard to hit with a needle biopsy. As for what it might be, a whole lot more lung nodules are benign than are melanoma.

      Good Luck,

      Craig.

      • October 14, 2011 at 2:14 pm
      jcraigdawson
      Participant

      Jamie,

      I feel your pain in not knowing. I recently had a very similar scenario occur, 7mm "something" on a pet with a low uptake and nothing showing on a CT with contrast done the same week. The doctors all recommended the same – wait and see. The oncological surgen said no one in their right mind would go digging for something that small, and something that small is aweful hard to hit with a needle biopsy. As for what it might be, a whole lot more lung nodules are benign than are melanoma.

      Good Luck,

      Craig.

      • October 14, 2011 at 2:14 pm
      jcraigdawson
      Participant

      Jamie,

      I feel your pain in not knowing. I recently had a very similar scenario occur, 7mm "something" on a pet with a low uptake and nothing showing on a CT with contrast done the same week. The doctors all recommended the same – wait and see. The oncological surgen said no one in their right mind would go digging for something that small, and something that small is aweful hard to hit with a needle biopsy. As for what it might be, a whole lot more lung nodules are benign than are melanoma.

      Good Luck,

      Craig.

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