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Jaryllane
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Jaryllane

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      • May 15, 2014 at 9:02 pm
      Jaryllane
      Participant

        I have been on the Merk anti PD-1 trial since July 2013.  At first scans i was NED and it continues to this date.  Some side effects in the first six months or so, but very few now.

        • May 15, 2014 at 9:02 pm
        Jaryllane
        Participant

          I have been on the Merk anti PD-1 trial since July 2013.  At first scans i was NED and it continues to this date.  Some side effects in the first six months or so, but very few now.

          • May 15, 2014 at 9:02 pm
          Jaryllane
          Participant

            I have been on the Merk anti PD-1 trial since July 2013.  At first scans i was NED and it continues to this date.  Some side effects in the first six months or so, but very few now.

            • January 16, 2014 at 12:58 am
            Jaryllane
            Participant

              You might try searching to see if the Cancer Support Community has a center in your area.

              • January 16, 2014 at 12:58 am
              Jaryllane
              Participant

                You might try searching to see if the Cancer Support Community has a center in your area.

                • January 16, 2014 at 12:58 am
                Jaryllane
                Participant

                  You might try searching to see if the Cancer Support Community has a center in your area.

                  • January 10, 2014 at 5:40 am
                  Jaryllane
                  Participant

                    I am curious about why Celeste no longer needs Nivo.  I have been on Lambrolizumab, a different anti PD-1 immunotherapy, for six months and from what I understand I will be on it indefinitely, or until the disease returns.  I haven't found any information about what happens when someone goes off these immunotherapies.  I would appreciate any info you have.

                    • January 10, 2014 at 5:40 am
                    Jaryllane
                    Participant

                      I am curious about why Celeste no longer needs Nivo.  I have been on Lambrolizumab, a different anti PD-1 immunotherapy, for six months and from what I understand I will be on it indefinitely, or until the disease returns.  I haven't found any information about what happens when someone goes off these immunotherapies.  I would appreciate any info you have.

                      • January 10, 2014 at 5:40 am
                      Jaryllane
                      Participant

                        I am curious about why Celeste no longer needs Nivo.  I have been on Lambrolizumab, a different anti PD-1 immunotherapy, for six months and from what I understand I will be on it indefinitely, or until the disease returns.  I haven't found any information about what happens when someone goes off these immunotherapies.  I would appreciate any info you have.

                        • September 26, 2013 at 3:22 pm
                        Jaryllane
                        Participant

                          I do wish you the best of luck next week.  I think the last few days of waiting for the scans are the most difficult.  I did not have any prior treatment, other than a surgery to remove the first tumor that showed up in my lung in July of 2012..  My new tumors were discovered in January when they were very small. I have the highest praise for my fabulous oncologist Lawrence Piro who has been looking after me for years since I had lymphoma in 2003-2004.  And right now I'm rather a fan of Big Pharma too!

                          • September 26, 2013 at 3:22 pm
                          Jaryllane
                          Participant

                            I do wish you the best of luck next week.  I think the last few days of waiting for the scans are the most difficult.  I did not have any prior treatment, other than a surgery to remove the first tumor that showed up in my lung in July of 2012..  My new tumors were discovered in January when they were very small. I have the highest praise for my fabulous oncologist Lawrence Piro who has been looking after me for years since I had lymphoma in 2003-2004.  And right now I'm rather a fan of Big Pharma too!

                            • September 26, 2013 at 3:22 pm
                            Jaryllane
                            Participant

                              I do wish you the best of luck next week.  I think the last few days of waiting for the scans are the most difficult.  I did not have any prior treatment, other than a surgery to remove the first tumor that showed up in my lung in July of 2012..  My new tumors were discovered in January when they were very small. I have the highest praise for my fabulous oncologist Lawrence Piro who has been looking after me for years since I had lymphoma in 2003-2004.  And right now I'm rather a fan of Big Pharma too!

                              • September 26, 2013 at 2:50 am
                              Jaryllane
                              Participant

                                Yes, Lambrolizumab has to do with the PD1 pathway as does nivolumab.  Quite honestly I don't understand the science behind all this, but I'm glad it works!

                                • September 26, 2013 at 2:50 am
                                Jaryllane
                                Participant

                                  Yes, Lambrolizumab has to do with the PD1 pathway as does nivolumab.  Quite honestly I don't understand the science behind all this, but I'm glad it works!

                                  • September 26, 2013 at 2:50 am
                                  Jaryllane
                                  Participant

                                    Yes, Lambrolizumab has to do with the PD1 pathway as does nivolumab.  Quite honestly I don't understand the science behind all this, but I'm glad it works!

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