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jaketheflake

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      jaketheflake
      Participant

        susan, i am extremely sorry for your loss, this melanoma is definitely a beast, my husband has metastic melanoma,it has been growing like wildfire,i don't think people truely understand wat melanoma is and wat it can do to u!!!!! my deepest sympathy to u and your family!!!!

        jaketheflake
        Participant

          susan, i am extremely sorry for your loss, this melanoma is definitely a beast, my husband has metastic melanoma,it has been growing like wildfire,i don't think people truely understand wat melanoma is and wat it can do to u!!!!! my deepest sympathy to u and your family!!!!

          jaketheflake
          Participant

            susan, i am extremely sorry for your loss, this melanoma is definitely a beast, my husband has metastic melanoma,it has been growing like wildfire,i don't think people truely understand wat melanoma is and wat it can do to u!!!!! my deepest sympathy to u and your family!!!!

            jaketheflake
            Participant

              seathing child, i am very sorry to hear this,but it doesn't surprise me,my husband had a mole on his back for years that i did not like,he never went,until it grew a blister on it,he went to a dermatologist and he told him "im not worried about it" ,i think they tell everyone that,had a biopsy and came back as stage 3b melanoma, it has been a long year and half, he seems to be doing well,it had spread lymph nodes,brain ,lungs..etc.  ,so keeping our fingers crossed that the ippi will work, the interferon obviously didn't.  me and my 13 year old are going in july, and i am pertrified,i do have a lot of moles,none that really concern me, but,that doesn't really matter., i believe that if something bothers you and u are very worried about the mole, then why not biopsy it,i don't get doctors sometimes,it is ur body and if thats wat you want done then they should do it, i don't feel that you should have to wait,better be safe than sorry!!!! i wish u luck in this,let us know wat goes on!!!!!

              jaketheflake
              Participant

                seathing child, i am very sorry to hear this,but it doesn't surprise me,my husband had a mole on his back for years that i did not like,he never went,until it grew a blister on it,he went to a dermatologist and he told him "im not worried about it" ,i think they tell everyone that,had a biopsy and came back as stage 3b melanoma, it has been a long year and half, he seems to be doing well,it had spread lymph nodes,brain ,lungs..etc.  ,so keeping our fingers crossed that the ippi will work, the interferon obviously didn't.  me and my 13 year old are going in july, and i am pertrified,i do have a lot of moles,none that really concern me, but,that doesn't really matter., i believe that if something bothers you and u are very worried about the mole, then why not biopsy it,i don't get doctors sometimes,it is ur body and if thats wat you want done then they should do it, i don't feel that you should have to wait,better be safe than sorry!!!! i wish u luck in this,let us know wat goes on!!!!!

                jaketheflake
                Participant

                  seathing child, i am very sorry to hear this,but it doesn't surprise me,my husband had a mole on his back for years that i did not like,he never went,until it grew a blister on it,he went to a dermatologist and he told him "im not worried about it" ,i think they tell everyone that,had a biopsy and came back as stage 3b melanoma, it has been a long year and half, he seems to be doing well,it had spread lymph nodes,brain ,lungs..etc.  ,so keeping our fingers crossed that the ippi will work, the interferon obviously didn't.  me and my 13 year old are going in july, and i am pertrified,i do have a lot of moles,none that really concern me, but,that doesn't really matter., i believe that if something bothers you and u are very worried about the mole, then why not biopsy it,i don't get doctors sometimes,it is ur body and if thats wat you want done then they should do it, i don't feel that you should have to wait,better be safe than sorry!!!! i wish u luck in this,let us know wat goes on!!!!!

                  jaketheflake
                  Participant

                    thank you soo much much for the advice,i noticed  the behavior about a month a go prior to being diagnosed with 2 new tumors on his brain,he has been on the steriods for about a week and a half,thats when these "fits" started,no patience,extremely agitated,etc., it is very hurtful,embarassing and scary,he seems to be like this with me,but, his sister did notice it awhile ago,too.   i have not talked to him since the car parking episode at lowes this afternoon,he realized wat he did,but never apologized.  i pray this is not the start of a very long road,it is hard enuff to deal with this disease with a loved one,but i don't think i can go thru this again.   thank you and i will definitely call his oncologist and neurosurgeon and support on facebook!!!!  thank you soo much for responding,this can be a touchy subject…

                    jaketheflake
                    Participant

                      thank you soo much much for the advice,i noticed  the behavior about a month a go prior to being diagnosed with 2 new tumors on his brain,he has been on the steriods for about a week and a half,thats when these "fits" started,no patience,extremely agitated,etc., it is very hurtful,embarassing and scary,he seems to be like this with me,but, his sister did notice it awhile ago,too.   i have not talked to him since the car parking episode at lowes this afternoon,he realized wat he did,but never apologized.  i pray this is not the start of a very long road,it is hard enuff to deal with this disease with a loved one,but i don't think i can go thru this again.   thank you and i will definitely call his oncologist and neurosurgeon and support on facebook!!!!  thank you soo much for responding,this can be a touchy subject…

                      jaketheflake
                      Participant

                        thank you soo much much for the advice,i noticed  the behavior about a month a go prior to being diagnosed with 2 new tumors on his brain,he has been on the steriods for about a week and a half,thats when these "fits" started,no patience,extremely agitated,etc., it is very hurtful,embarassing and scary,he seems to be like this with me,but, his sister did notice it awhile ago,too.   i have not talked to him since the car parking episode at lowes this afternoon,he realized wat he did,but never apologized.  i pray this is not the start of a very long road,it is hard enuff to deal with this disease with a loved one,but i don't think i can go thru this again.   thank you and i will definitely call his oncologist and neurosurgeon and support on facebook!!!!  thank you soo much for responding,this can be a touchy subject…

                        jaketheflake
                        Participant

                          my husband is in a similiar situation,lung mets,found very small brain tumor,did the gamma knife,now it's gone,so he has recieved 3 yervoy(ippi) treatments,now,they have found 2 new brain mets,going to undergo gamma knife again.i do not kno (haven't heard from his oncologists)if they are going to hold off the 4th treatment of ippi(because of steriods),i am interested on the zelboraf,that they may use on ur husband,i haven't heard of that one,plz let me kno and i wish you and your husband well and much luck!!!!

                          jaketheflake
                          Participant

                            my husband is in a similiar situation,lung mets,found very small brain tumor,did the gamma knife,now it's gone,so he has recieved 3 yervoy(ippi) treatments,now,they have found 2 new brain mets,going to undergo gamma knife again.i do not kno (haven't heard from his oncologists)if they are going to hold off the 4th treatment of ippi(because of steriods),i am interested on the zelboraf,that they may use on ur husband,i haven't heard of that one,plz let me kno and i wish you and your husband well and much luck!!!!

                            jaketheflake
                            Participant

                              my husband is in a similiar situation,lung mets,found very small brain tumor,did the gamma knife,now it's gone,so he has recieved 3 yervoy(ippi) treatments,now,they have found 2 new brain mets,going to undergo gamma knife again.i do not kno (haven't heard from his oncologists)if they are going to hold off the 4th treatment of ippi(because of steriods),i am interested on the zelboraf,that they may use on ur husband,i haven't heard of that one,plz let me kno and i wish you and your husband well and much luck!!!!

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