Forum Replies Created
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- December 8, 2013 at 3:44 am
I have been on the BRAF/MEK combo through the GSK trial for 2-1/2 years now (since May 2011) and I am basically disease-free. I hope it works for you as well as it did for me.
Best wishes,
Harry
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- December 8, 2013 at 3:44 am
I have been on the BRAF/MEK combo through the GSK trial for 2-1/2 years now (since May 2011) and I am basically disease-free. I hope it works for you as well as it did for me.
Best wishes,
Harry
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- December 8, 2013 at 3:44 am
I have been on the BRAF/MEK combo through the GSK trial for 2-1/2 years now (since May 2011) and I am basically disease-free. I hope it works for you as well as it did for me.
Best wishes,
Harry
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- November 18, 2013 at 7:06 am
Fabulous! I have been on this drug combo for 2-1/2 years as part of the GSK clinical trial, and it's still keeping things at bay. I hope your experience will be similar to mine. I also had joint pains at the beginning, also fevers and chills/shakes. The side-effects diminished with time.
One question: You say the Dabrafenib was cut to 200 mg. What was it originally? I have been on 150mg/day since the beginning, together with 2 mg/day of the MEK. My understanding is that what I am getting are the max amounts administered under the clinical trial protocol for the combo, so it's hard for me to understand why you are being prescribed at a dosage higher than was tested (for the combo).
Best wishes,
Harry
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- November 18, 2013 at 7:12 am
OOPS! (never mind). I just turned 60 and I guess my mind fog is accelarating. I am taking a total of 300mg/day (150mg twice a day). So were you reduced to 200 from 300?
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- November 18, 2013 at 7:12 am
OOPS! (never mind). I just turned 60 and I guess my mind fog is accelarating. I am taking a total of 300mg/day (150mg twice a day). So were you reduced to 200 from 300?
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- November 18, 2013 at 7:12 am
OOPS! (never mind). I just turned 60 and I guess my mind fog is accelarating. I am taking a total of 300mg/day (150mg twice a day). So were you reduced to 200 from 300?
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- November 18, 2013 at 7:06 am
Fabulous! I have been on this drug combo for 2-1/2 years as part of the GSK clinical trial, and it's still keeping things at bay. I hope your experience will be similar to mine. I also had joint pains at the beginning, also fevers and chills/shakes. The side-effects diminished with time.
One question: You say the Dabrafenib was cut to 200 mg. What was it originally? I have been on 150mg/day since the beginning, together with 2 mg/day of the MEK. My understanding is that what I am getting are the max amounts administered under the clinical trial protocol for the combo, so it's hard for me to understand why you are being prescribed at a dosage higher than was tested (for the combo).
Best wishes,
Harry
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- November 18, 2013 at 7:06 am
Fabulous! I have been on this drug combo for 2-1/2 years as part of the GSK clinical trial, and it's still keeping things at bay. I hope your experience will be similar to mine. I also had joint pains at the beginning, also fevers and chills/shakes. The side-effects diminished with time.
One question: You say the Dabrafenib was cut to 200 mg. What was it originally? I have been on 150mg/day since the beginning, together with 2 mg/day of the MEK. My understanding is that what I am getting are the max amounts administered under the clinical trial protocol for the combo, so it's hard for me to understand why you are being prescribed at a dosage higher than was tested (for the combo).
Best wishes,
Harry
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- October 12, 2013 at 3:55 pm
I have been on the this combo through the GSK trial for 2-1/2 years. At the beginning (first couple of months), I had lots of high fever/chills/shakes/sweating (when fever broke). Usually this was controllable with ibuprofen – sometimes I took ibu an hour before the drugs to ward off the fever, and I think that helped.. My body must have adjusted to the drugs, because I have not had a fever episode for at least 1-1/2 years.
Best wishes,
Harry
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- October 12, 2013 at 3:55 pm
I have been on the this combo through the GSK trial for 2-1/2 years. At the beginning (first couple of months), I had lots of high fever/chills/shakes/sweating (when fever broke). Usually this was controllable with ibuprofen – sometimes I took ibu an hour before the drugs to ward off the fever, and I think that helped.. My body must have adjusted to the drugs, because I have not had a fever episode for at least 1-1/2 years.
Best wishes,
Harry
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- October 12, 2013 at 3:55 pm
I have been on the this combo through the GSK trial for 2-1/2 years. At the beginning (first couple of months), I had lots of high fever/chills/shakes/sweating (when fever broke). Usually this was controllable with ibuprofen – sometimes I took ibu an hour before the drugs to ward off the fever, and I think that helped.. My body must have adjusted to the drugs, because I have not had a fever episode for at least 1-1/2 years.
Best wishes,
Harry
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- November 18, 2013 at 3:42 pm
I get scanned every 12 weeks now. At the beginning of the trial, the scans were every 8 weeks, but after the 2-year mark GSK gratefully relaxed this. In addition to the CT/MRI scans, I also get ECHO cardiograms. And every 8 weeks I have a dermatologist exam.
Best regards,
Harry
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- November 18, 2013 at 3:42 pm
I get scanned every 12 weeks now. At the beginning of the trial, the scans were every 8 weeks, but after the 2-year mark GSK gratefully relaxed this. In addition to the CT/MRI scans, I also get ECHO cardiograms. And every 8 weeks I have a dermatologist exam.
Best regards,
Harry
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- November 18, 2013 at 3:42 pm
I get scanned every 12 weeks now. At the beginning of the trial, the scans were every 8 weeks, but after the 2-year mark GSK gratefully relaxed this. In addition to the CT/MRI scans, I also get ECHO cardiograms. And every 8 weeks I have a dermatologist exam.
Best regards,
Harry
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