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GerryG
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GerryG

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      • March 2, 2023 at 11:21 am
      GerryG
      Participant
        Just a wee update.
        Lung issues have resolved themselves in my recent scan.SO now almost 6 years past ipi/nivi NED..
        I have to especially thank Bubbles, for her undaunted commitment to this forum, you are a true hero!!
        Many dark nights spent looking for a glimmer of hope in the face of despair!! People keep posting positivity…..
        • November 25, 2022 at 2:38 pm
        GerryG
        Participant
          Thank you Celeste for your response, very much appreciated.
          I have researched Ground Glass Opacities in lungs, and it looks like not typical of metastatic lung melanoma, as usually it manifests as a solid tumour. As you say melanoma plays it’s own game of Witchery!
          If it wasn’t for the CT scan, I would be totally oblivious to any underlying condition.
          Thank you once again from not too sunny Scotland…
          • February 27, 2020 at 11:15 am
          GerryG
          Participant
            I also only managed 2 rounds of Ipi/Nivi , then due to high liver enzymes had to abandon treatment, that was December 2017. To date I have had no further treatment, I have been fortunate that so far it has held the beast at bay…I am due my latest scan results to day, and freaking out that my luck may have changed.. I was on 150 mg of steroids , then 2 other immunosuppressants where added to the mix, it took 6 months for me to be weaned from steroids…
            • November 30, 2022 at 3:58 am
            GerryG
            Participant
              I did have Covid way back in January, but very mild symptoms.
              I have been reading a lot of past posts on this forum and GGO seems to crop up, so not a completely unexpected phenomenon.As you say when your been scanned on a regular basis, things appear that would be undetected in the general public! I suppose if it turns out to be something, it will have been detected early enough, which is the purpose of the CT.
              Many Thanks for your response, very much appreciated…
              G
              • September 6, 2019 at 7:49 pm
              GerryG
              Participant
                Thank you so much for your comment. In the early days I would scan the internet for a bit of hope and light in all the bleakness ….My personal opinion is , there is a lot of light, but generally peeps don’t share, not realising the huge difference a small comment of positivity can have on a community looking for hope.. The melanoma journey is not a sprint but a marathon, and difficult doesn’t mean impossible …
                • September 6, 2019 at 7:25 pm
                GerryG
                Participant
                  Celeste thank you so much for your response,. I have followed your blog since my diagnosis back in September 2017, as we all know positive stories are always welcome.
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