Frillie

Here's a 20 year survivor case in Japan.

https://ac.els-cdn.com/S1015958411600274/1-s2.0-S1015958411600274-main.pdf?_tid=06d99ace-f70d-11e7-8a97-00000aacb361&acdnat=1515702278_6027de18d208514d8379c374448ae149

Hi Cheri, I saw somewhere that a lady posted she had been fighting it for 22 years and 18 surgeries. Wish I cold find that post again…it gave me hope. It may have been on another site like Cancer Compass or another one.  If I find it, I will let you know.

I go to OHSU. Highly recommend Dr. John Vetto, Surgical Oncologist and Dr. Daniel Herzig, Colorectal Surgeon.

Hi, I got the same diagnosis, MMM, May 2016. Had wide excision surgery and lymph node biopsy July 2016 and radiation Sept 2016. In Spring 2017 recurrant rectal bleeding began and was "watched" over the summer. Sept. 8, 2017 it was decided I shuld get another colonoscopy to determine where the bleeding was coming from. When I awoke from the colonoscopy, I was told he (doctor) had to repair radiation damage with ablation. Very poor pain management and after care. Two and a half months of torturous pain on my sofa including a trip to the emergency room. Now 4 months later, pain is better and I'm still bleeding. Going to original surgeon for sigmoidoscopy again to figure out the bleeding. Also have two suspicious spots on my liver. How are you doing now? How did the Yervoy/Opdivo work for you?  Sending love.