Forum Replies Created
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- November 15, 2012 at 4:16 pm
In Northern California, Dr. David Minor does bi-chemo. I personally know more than 4 of his patients and they are all stage 4 survivors for many years. He has his own "recipe" I think..and the program includes maintenance with IL2.
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- November 15, 2012 at 4:16 pm
In Northern California, Dr. David Minor does bi-chemo. I personally know more than 4 of his patients and they are all stage 4 survivors for many years. He has his own "recipe" I think..and the program includes maintenance with IL2.
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- November 15, 2012 at 4:16 pm
In Northern California, Dr. David Minor does bi-chemo. I personally know more than 4 of his patients and they are all stage 4 survivors for many years. He has his own "recipe" I think..and the program includes maintenance with IL2.
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- August 3, 2012 at 7:37 pm
Hello – as others have said, you need to know your pathology. You will probably have a sentinel node biopsy along with a wide exision which are done at the same time so they can tell what node basin the melanoma is really draining. If they find cells in the sentinel node, you will have a PET scan and more surgery to remove the rest of the nodes in that area. You will have drains put in place for the wide exision/node biopsy to help you with healing. Groin dissections are trickier because of walking and you might have some swelling from the node biopsy (lymphedema).
My husband had a 1.3 breslow on his back that drained to his axilla – not his groin. When they found a few cells in the sentinel node, he had a complete node dissection a few weeks later. He is doing very well 3 years later with no recurrences and no other treatment other than observation.
I know it is scary right now – I would suggest you stop reading stuff on the internet…until you are more settled. Understand that just because you read it, doesnt mean it will happen to you.
Take care
Emily
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- August 3, 2012 at 7:37 pm
Hello – as others have said, you need to know your pathology. You will probably have a sentinel node biopsy along with a wide exision which are done at the same time so they can tell what node basin the melanoma is really draining. If they find cells in the sentinel node, you will have a PET scan and more surgery to remove the rest of the nodes in that area. You will have drains put in place for the wide exision/node biopsy to help you with healing. Groin dissections are trickier because of walking and you might have some swelling from the node biopsy (lymphedema).
My husband had a 1.3 breslow on his back that drained to his axilla – not his groin. When they found a few cells in the sentinel node, he had a complete node dissection a few weeks later. He is doing very well 3 years later with no recurrences and no other treatment other than observation.
I know it is scary right now – I would suggest you stop reading stuff on the internet…until you are more settled. Understand that just because you read it, doesnt mean it will happen to you.
Take care
Emily
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- August 3, 2012 at 7:37 pm
Hello – as others have said, you need to know your pathology. You will probably have a sentinel node biopsy along with a wide exision which are done at the same time so they can tell what node basin the melanoma is really draining. If they find cells in the sentinel node, you will have a PET scan and more surgery to remove the rest of the nodes in that area. You will have drains put in place for the wide exision/node biopsy to help you with healing. Groin dissections are trickier because of walking and you might have some swelling from the node biopsy (lymphedema).
My husband had a 1.3 breslow on his back that drained to his axilla – not his groin. When they found a few cells in the sentinel node, he had a complete node dissection a few weeks later. He is doing very well 3 years later with no recurrences and no other treatment other than observation.
I know it is scary right now – I would suggest you stop reading stuff on the internet…until you are more settled. Understand that just because you read it, doesnt mean it will happen to you.
Take care
Emily
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- August 3, 2012 at 7:18 pm
Hi Roger! Glad you postedhere – I forgot to tell you about the recommended places in MO – this info is from the Melanoma International Foundation site which is also a great source of info along with the MRF. You might be able to get a referral to these places – call your insurance or your doc. http://www.melanomainternational.org/resources/cancercenters.html
MISSOURIEllis Fischel Cancer Center
University of Missouri Health Care
115 Business Loop 70 W
Columbia, MO 65203
(573) 882-2100
http://www.muhealth.org
Siteman Cancer CenterWashington University School of Medicine660 South Euclid Avenue, Campus Box 8109St. Louis, Missouri 63110(314) 362-8020Take care,
Em -
- August 3, 2012 at 7:18 pm
Hi Roger! Glad you postedhere – I forgot to tell you about the recommended places in MO – this info is from the Melanoma International Foundation site which is also a great source of info along with the MRF. You might be able to get a referral to these places – call your insurance or your doc. http://www.melanomainternational.org/resources/cancercenters.html
MISSOURIEllis Fischel Cancer Center
University of Missouri Health Care
115 Business Loop 70 W
Columbia, MO 65203
(573) 882-2100
http://www.muhealth.org
Siteman Cancer CenterWashington University School of Medicine660 South Euclid Avenue, Campus Box 8109St. Louis, Missouri 63110(314) 362-8020Take care,
Em -
- August 3, 2012 at 7:18 pm
Hi Roger! Glad you postedhere – I forgot to tell you about the recommended places in MO – this info is from the Melanoma International Foundation site which is also a great source of info along with the MRF. You might be able to get a referral to these places – call your insurance or your doc. http://www.melanomainternational.org/resources/cancercenters.html
MISSOURIEllis Fischel Cancer Center
University of Missouri Health Care
115 Business Loop 70 W
Columbia, MO 65203
(573) 882-2100
http://www.muhealth.org
Siteman Cancer CenterWashington University School of Medicine660 South Euclid Avenue, Campus Box 8109St. Louis, Missouri 63110(314) 362-8020Take care,
Em -
- October 15, 2012 at 11:21 pm
What this article means to me:
1) This confirmed that the top doctors cant agree ….so we really need educate ourselves on the pros and cons melanoma treatment.
2) They agree that SLNB is useful in prognosis. They disagree abut the benefits of the CLND.
3) We need better data on the importance of micro mets in the nodes – the docs disagree on the importance.
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- October 15, 2012 at 11:21 pm
What this article means to me:
1) This confirmed that the top doctors cant agree ….so we really need educate ourselves on the pros and cons melanoma treatment.
2) They agree that SLNB is useful in prognosis. They disagree abut the benefits of the CLND.
3) We need better data on the importance of micro mets in the nodes – the docs disagree on the importance.
-
- October 15, 2012 at 11:21 pm
What this article means to me:
1) This confirmed that the top doctors cant agree ….so we really need educate ourselves on the pros and cons melanoma treatment.
2) They agree that SLNB is useful in prognosis. They disagree abut the benefits of the CLND.
3) We need better data on the importance of micro mets in the nodes – the docs disagree on the importance.
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- September 7, 2012 at 5:30 pm
Hello Bron – I urge you to contact the Melanoma Institute in Australia – Jay Allen's (Stage 3 survivor and a great guy) email address is on this support group page and he can help you with the best place to go in AU – http://www.melanoma.org.au/patients/support-groups.html
You need a doctor who will show her how to monitor her lymph nodes (usually the node basin nearest the melanoma) and look for recurrences in the skin (bumps) near the area where the mole was removed. My husband's doctor told him how to do this each morning in the shower. Don't rely on doctors to check her out – she needs to be very proactive in monitoring herself.
Take care
Emily
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- September 7, 2012 at 5:30 pm
Hello Bron – I urge you to contact the Melanoma Institute in Australia – Jay Allen's (Stage 3 survivor and a great guy) email address is on this support group page and he can help you with the best place to go in AU – http://www.melanoma.org.au/patients/support-groups.html
You need a doctor who will show her how to monitor her lymph nodes (usually the node basin nearest the melanoma) and look for recurrences in the skin (bumps) near the area where the mole was removed. My husband's doctor told him how to do this each morning in the shower. Don't rely on doctors to check her out – she needs to be very proactive in monitoring herself.
Take care
Emily
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- September 7, 2012 at 5:30 pm
Hello Bron – I urge you to contact the Melanoma Institute in Australia – Jay Allen's (Stage 3 survivor and a great guy) email address is on this support group page and he can help you with the best place to go in AU – http://www.melanoma.org.au/patients/support-groups.html
You need a doctor who will show her how to monitor her lymph nodes (usually the node basin nearest the melanoma) and look for recurrences in the skin (bumps) near the area where the mole was removed. My husband's doctor told him how to do this each morning in the shower. Don't rely on doctors to check her out – she needs to be very proactive in monitoring herself.
Take care
Emily
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