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EmilyandMike

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      EmilyandMike
      Participant

        In Northern California, Dr. David Minor does bi-chemo.  I personally know more than 4 of his patients and they are all stage 4 survivors for many years.  He has his own "recipe" I think..and the program includes maintenance with IL2. 

        EmilyandMike
        Participant

          In Northern California, Dr. David Minor does bi-chemo.  I personally know more than 4 of his patients and they are all stage 4 survivors for many years.  He has his own "recipe" I think..and the program includes maintenance with IL2. 

          EmilyandMike
          Participant

            In Northern California, Dr. David Minor does bi-chemo.  I personally know more than 4 of his patients and they are all stage 4 survivors for many years.  He has his own "recipe" I think..and the program includes maintenance with IL2. 

            EmilyandMike
            Participant

              Hello – as others have said, you need to know your pathology. You will probably have a sentinel node biopsy along with a wide exision which are done at the same time so they can tell what node basin the melanoma is really draining.  If they find cells in the sentinel node, you will have a PET scan and more surgery to remove the rest of the nodes in that area.  You will have drains put in place for the wide exision/node biopsy to help you with healing.   Groin dissections are trickier because of walking and you might have some swelling from the node biopsy (lymphedema). 

              My husband had a 1.3 breslow on his back that drained to his axilla – not his groin.  When they found a few cells in the sentinel node, he had a complete node dissection a few weeks later.   He is doing very well 3 years later with no recurrences and no other treatment other than observation.

              I know it is scary right now – I would suggest you stop reading stuff on the internet…until you are more settled.  Understand that just because you read it, doesnt mean it will happen to you. 

              Take care

              Emily

              EmilyandMike
              Participant

                Hello – as others have said, you need to know your pathology. You will probably have a sentinel node biopsy along with a wide exision which are done at the same time so they can tell what node basin the melanoma is really draining.  If they find cells in the sentinel node, you will have a PET scan and more surgery to remove the rest of the nodes in that area.  You will have drains put in place for the wide exision/node biopsy to help you with healing.   Groin dissections are trickier because of walking and you might have some swelling from the node biopsy (lymphedema). 

                My husband had a 1.3 breslow on his back that drained to his axilla – not his groin.  When they found a few cells in the sentinel node, he had a complete node dissection a few weeks later.   He is doing very well 3 years later with no recurrences and no other treatment other than observation.

                I know it is scary right now – I would suggest you stop reading stuff on the internet…until you are more settled.  Understand that just because you read it, doesnt mean it will happen to you. 

                Take care

                Emily

                EmilyandMike
                Participant

                  Hello – as others have said, you need to know your pathology. You will probably have a sentinel node biopsy along with a wide exision which are done at the same time so they can tell what node basin the melanoma is really draining.  If they find cells in the sentinel node, you will have a PET scan and more surgery to remove the rest of the nodes in that area.  You will have drains put in place for the wide exision/node biopsy to help you with healing.   Groin dissections are trickier because of walking and you might have some swelling from the node biopsy (lymphedema). 

                  My husband had a 1.3 breslow on his back that drained to his axilla – not his groin.  When they found a few cells in the sentinel node, he had a complete node dissection a few weeks later.   He is doing very well 3 years later with no recurrences and no other treatment other than observation.

                  I know it is scary right now – I would suggest you stop reading stuff on the internet…until you are more settled.  Understand that just because you read it, doesnt mean it will happen to you. 

                  Take care

                  Emily

                  EmilyandMike
                  Participant

                    Hi Roger!  Glad you postedhere – I forgot to tell you about the recommended places in MO – this info is from the Melanoma International Foundation site which is also a great source of info along with the MRF.  You might be able to get a referral to these places – call your insurance or your doc.  http://www.melanomainternational.org/resources/cancercenters.html

                    MISSOURI

                    Ellis Fischel Cancer Center

                    University of Missouri Health Care
                    115 Business Loop 70 W
                    Columbia, MO 65203
                    (573) 882-2100
                    http://www.muhealth.org
                     
                    Siteman Cancer Center
                    Washington University School of Medicine
                    660 South Euclid Avenue, Campus Box 8109 
                    St. Louis, Missouri 63110 
                     (314) 362-8020 
                     
                    Take care,
                    Em
                    EmilyandMike
                    Participant

                      Hi Roger!  Glad you postedhere – I forgot to tell you about the recommended places in MO – this info is from the Melanoma International Foundation site which is also a great source of info along with the MRF.  You might be able to get a referral to these places – call your insurance or your doc.  http://www.melanomainternational.org/resources/cancercenters.html

                      MISSOURI

                      Ellis Fischel Cancer Center

                      University of Missouri Health Care
                      115 Business Loop 70 W
                      Columbia, MO 65203
                      (573) 882-2100
                      http://www.muhealth.org
                       
                      Siteman Cancer Center
                      Washington University School of Medicine
                      660 South Euclid Avenue, Campus Box 8109 
                      St. Louis, Missouri 63110 
                       (314) 362-8020 
                       
                      Take care,
                      Em
                      EmilyandMike
                      Participant

                        Hi Roger!  Glad you postedhere – I forgot to tell you about the recommended places in MO – this info is from the Melanoma International Foundation site which is also a great source of info along with the MRF.  You might be able to get a referral to these places – call your insurance or your doc.  http://www.melanomainternational.org/resources/cancercenters.html

                        MISSOURI

                        Ellis Fischel Cancer Center

                        University of Missouri Health Care
                        115 Business Loop 70 W
                        Columbia, MO 65203
                        (573) 882-2100
                        http://www.muhealth.org
                         
                        Siteman Cancer Center
                        Washington University School of Medicine
                        660 South Euclid Avenue, Campus Box 8109 
                        St. Louis, Missouri 63110 
                         (314) 362-8020 
                         
                        Take care,
                        Em
                        EmilyandMike
                        Participant

                          What this article means to me:

                          1) This confirmed that the top doctors cant agree ….so we really need educate ourselves on the pros and cons melanoma treatment.

                          2) They agree that SLNB is useful in prognosis.  They disagree abut the benefits of the CLND.

                          3) We need better data on the importance of micro mets in the nodes – the docs disagree on the importance.

                          EmilyandMike
                          Participant

                            What this article means to me:

                            1) This confirmed that the top doctors cant agree ….so we really need educate ourselves on the pros and cons melanoma treatment.

                            2) They agree that SLNB is useful in prognosis.  They disagree abut the benefits of the CLND.

                            3) We need better data on the importance of micro mets in the nodes – the docs disagree on the importance.

                            EmilyandMike
                            Participant

                              What this article means to me:

                              1) This confirmed that the top doctors cant agree ….so we really need educate ourselves on the pros and cons melanoma treatment.

                              2) They agree that SLNB is useful in prognosis.  They disagree abut the benefits of the CLND.

                              3) We need better data on the importance of micro mets in the nodes – the docs disagree on the importance.

                              EmilyandMike
                              Participant

                                Hello Bron – I urge you to contact the Melanoma Institute in Australia – Jay Allen's (Stage 3 survivor and a great guy) email address is on this support group page and he can help you with the best place to go in AU – http://www.melanoma.org.au/patients/support-groups.html

                                You need a doctor who will show her how to monitor her lymph nodes (usually the node basin nearest the melanoma) and look for recurrences in the skin (bumps) near the area where the mole was removed.  My husband's doctor told him how to do this each morning in the shower.  Don't rely on doctors to check her out – she needs to be very proactive in monitoring herself.

                                Take care

                                Emily

                                EmilyandMike
                                Participant

                                  Hello Bron – I urge you to contact the Melanoma Institute in Australia – Jay Allen's (Stage 3 survivor and a great guy) email address is on this support group page and he can help you with the best place to go in AU – http://www.melanoma.org.au/patients/support-groups.html

                                  You need a doctor who will show her how to monitor her lymph nodes (usually the node basin nearest the melanoma) and look for recurrences in the skin (bumps) near the area where the mole was removed.  My husband's doctor told him how to do this each morning in the shower.  Don't rely on doctors to check her out – she needs to be very proactive in monitoring herself.

                                  Take care

                                  Emily

                                  EmilyandMike
                                  Participant

                                    Hello Bron – I urge you to contact the Melanoma Institute in Australia – Jay Allen's (Stage 3 survivor and a great guy) email address is on this support group page and he can help you with the best place to go in AU – http://www.melanoma.org.au/patients/support-groups.html

                                    You need a doctor who will show her how to monitor her lymph nodes (usually the node basin nearest the melanoma) and look for recurrences in the skin (bumps) near the area where the mole was removed.  My husband's doctor told him how to do this each morning in the shower.  Don't rely on doctors to check her out – she needs to be very proactive in monitoring herself.

                                    Take care

                                    Emily

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