@dnovak
Forum Replies Created
- Replies
-
-
- October 15, 2016 at 5:52 pm
First off, consider yourself and your son very lucky. Positive lymph nodes usually result in lymphnode dissection followed by a year of interferon. As the father of a child who went through both of these when she was 8 I can tell tell you that this is a nightmare that you should not wish on yourself. There are a number of cancer centers that see more pediatric melanoma than most. St Jude and MD Anderson are 2 big ones that you could get a 2nd opinion at, but I'm fairly certain they are going to advise watchful waiting. Be happy about this, it is very good.
If if you want to interact with others who have been down this rabbit hole then search for Littlest Warrior Spot on Facebook and ask to be a member. This is a closed group of pediatric melanoma parents who exchange information. Last I checked there are around 100 in the group now, from stage 1 kids to stage 4. Check it out…and be happy about these results–it's great news.
Good luck. Dnovak.
-
- October 15, 2016 at 5:52 pm
First off, consider yourself and your son very lucky. Positive lymph nodes usually result in lymphnode dissection followed by a year of interferon. As the father of a child who went through both of these when she was 8 I can tell tell you that this is a nightmare that you should not wish on yourself. There are a number of cancer centers that see more pediatric melanoma than most. St Jude and MD Anderson are 2 big ones that you could get a 2nd opinion at, but I'm fairly certain they are going to advise watchful waiting. Be happy about this, it is very good.
If if you want to interact with others who have been down this rabbit hole then search for Littlest Warrior Spot on Facebook and ask to be a member. This is a closed group of pediatric melanoma parents who exchange information. Last I checked there are around 100 in the group now, from stage 1 kids to stage 4. Check it out…and be happy about these results–it's great news.
Good luck. Dnovak.
-
- October 15, 2016 at 5:52 pm
First off, consider yourself and your son very lucky. Positive lymph nodes usually result in lymphnode dissection followed by a year of interferon. As the father of a child who went through both of these when she was 8 I can tell tell you that this is a nightmare that you should not wish on yourself. There are a number of cancer centers that see more pediatric melanoma than most. St Jude and MD Anderson are 2 big ones that you could get a 2nd opinion at, but I'm fairly certain they are going to advise watchful waiting. Be happy about this, it is very good.
If if you want to interact with others who have been down this rabbit hole then search for Littlest Warrior Spot on Facebook and ask to be a member. This is a closed group of pediatric melanoma parents who exchange information. Last I checked there are around 100 in the group now, from stage 1 kids to stage 4. Check it out…and be happy about these results–it's great news.
Good luck. Dnovak.
-
- January 27, 2016 at 6:40 pm
First off, I have to say that this sucks for you and your son, and I am sorry. That said, there are a number of pediatric melanoma patients and parents floating around, myself included. My daughter was diagnosed almost 3 years ago at age 8 (and doing great now). Every parent who has been through this will tell you that pediatric melanoma is different from adult melanoma, so you need to be sure you go to a cancer center that has PM experience like St. Judes, MD Anderson, UCSF, etc.I would reach out to Brenda Busby, who works for the Melanoma research foundation. Her daughter was diagnosed at a very young age and she is very active among the pediatric melanoma community. Her email is [email protected]. She is a great resource.You can also check out The Littlest Warrior Spot on Facebook. It is a pediatric melanoma community.God bless and good luck.Dave Novak -
- January 27, 2016 at 6:40 pm
First off, I have to say that this sucks for you and your son, and I am sorry. That said, there are a number of pediatric melanoma patients and parents floating around, myself included. My daughter was diagnosed almost 3 years ago at age 8 (and doing great now). Every parent who has been through this will tell you that pediatric melanoma is different from adult melanoma, so you need to be sure you go to a cancer center that has PM experience like St. Judes, MD Anderson, UCSF, etc.I would reach out to Brenda Busby, who works for the Melanoma research foundation. Her daughter was diagnosed at a very young age and she is very active among the pediatric melanoma community. Her email is [email protected]. She is a great resource.You can also check out The Littlest Warrior Spot on Facebook. It is a pediatric melanoma community.God bless and good luck.Dave Novak -
- January 27, 2016 at 6:40 pm
First off, I have to say that this sucks for you and your son, and I am sorry. That said, there are a number of pediatric melanoma patients and parents floating around, myself included. My daughter was diagnosed almost 3 years ago at age 8 (and doing great now). Every parent who has been through this will tell you that pediatric melanoma is different from adult melanoma, so you need to be sure you go to a cancer center that has PM experience like St. Judes, MD Anderson, UCSF, etc.I would reach out to Brenda Busby, who works for the Melanoma research foundation. Her daughter was diagnosed at a very young age and she is very active among the pediatric melanoma community. Her email is [email protected]. She is a great resource.You can also check out The Littlest Warrior Spot on Facebook. It is a pediatric melanoma community.God bless and good luck.Dave Novak -
- August 2, 2014 at 6:52 pm
I'm sorry your child has been diagnosed with pediatric melanoma. The disease is very rare in children and there are not a lot of resources out there for the newly diagnosed.
There is a network of pediatric melanoma parents that you need to get in touch with, including several who's kids were also diagnosed at a very young age.
Google Littleist warrior spot and go to the web site or Facebook page. Danielle Adams will help you get setup into our group. You will find a wealth of info there from the 60 or so parents.
Dave Novak, father to Amelia, age 8 stage 3b patient.
-
- August 2, 2014 at 6:52 pm
I'm sorry your child has been diagnosed with pediatric melanoma. The disease is very rare in children and there are not a lot of resources out there for the newly diagnosed.
There is a network of pediatric melanoma parents that you need to get in touch with, including several who's kids were also diagnosed at a very young age.
Google Littleist warrior spot and go to the web site or Facebook page. Danielle Adams will help you get setup into our group. You will find a wealth of info there from the 60 or so parents.
Dave Novak, father to Amelia, age 8 stage 3b patient.
-
- August 2, 2014 at 6:52 pm
I'm sorry your child has been diagnosed with pediatric melanoma. The disease is very rare in children and there are not a lot of resources out there for the newly diagnosed.
There is a network of pediatric melanoma parents that you need to get in touch with, including several who's kids were also diagnosed at a very young age.
Google Littleist warrior spot and go to the web site or Facebook page. Danielle Adams will help you get setup into our group. You will find a wealth of info there from the 60 or so parents.
Dave Novak, father to Amelia, age 8 stage 3b patient.
-
- March 24, 2014 at 6:40 am
Brandy I sent you a PM. There's a group of pediatric melanoma parents online that may be helpful for you. You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.
-
- March 24, 2014 at 6:40 am
Brandy I sent you a PM. There's a group of pediatric melanoma parents online that may be helpful for you. You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.
-
- March 24, 2014 at 6:40 am
Brandy I sent you a PM. There's a group of pediatric melanoma parents online that may be helpful for you. You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.
-
