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Pediactric Melanoma

Forums General Melanoma Community Pediactric Melanoma

  • Post
    brandimhs
    Participant

      My 8 year old was diagnosed in December of 2012 with stage 3B melanoma. Has anyone else experienced melanoma in children?

    Viewing 2 reply threads
    • Replies
        Carole K
        Participant

          HI

          I am so sorry you are going through this.  There were two people who posted here quite some time ago who had children with Melanoma.  I do know both children were diagnosed when they were 2 and are doing well.

          One family started a non profit in Memphis near St. Jude's  It is called HABITAT FOR HOPE.  Their names are Mylissa and Mark Horrack.  There was another woman here named Claire.  I will see if I can get in touch with them.  Also, I just recently went to DC for Legislation Hill Day and met another woman who has a 9 year old with Melanoma. 

          If there is any way I can help please know I am here for you.  Hang in there .  There are a lot of people here who can help you through this.. 

          Love and Light

          Carole K.

          Carole K
          Participant

            HI

            I am so sorry you are going through this.  There were two people who posted here quite some time ago who had children with Melanoma.  I do know both children were diagnosed when they were 2 and are doing well.

            One family started a non profit in Memphis near St. Jude's  It is called HABITAT FOR HOPE.  Their names are Mylissa and Mark Horrack.  There was another woman here named Claire.  I will see if I can get in touch with them.  Also, I just recently went to DC for Legislation Hill Day and met another woman who has a 9 year old with Melanoma. 

            If there is any way I can help please know I am here for you.  Hang in there .  There are a lot of people here who can help you through this.. 

            Love and Light

            Carole K.

              tschmith
              Participant

                I'm a patient at NIH and know one melanoma patient there is a four year old child.  That's really all I know but I'm wondering if NIH has anything to offer you.  It could be worth looking into.  I cannot say enough about how great the doctors are at NIH.

                Terrie

                dnovak
                Participant

                  Brandy I sent you a PM.  There's a group of pediatric melanoma parents online that may be helpful for you.  You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.

                   

                   

                  brandimhs
                  Participant

                    thanks so much.. i send you a friend request

                    brandimhs
                    Participant

                      thanks so much.. i send you a friend request

                      brandimhs
                      Participant

                        thanks so much.. i send you a friend request

                        camping_mama
                        Participant

                          Hi.  My 7 year old daughter was recently diagnosed with melanoma.  T1b (under 1mm but mitotic rate was 1).  I am very intersted in finding online parent groups for pediactric melanoma.  Please, if anyone sees this who knows of an active group online, send me the information.  I have had little luck searching for groups. Thank you!

                          camping_mama
                          Participant

                            Hi.  My 7 year old daughter was recently diagnosed with melanoma.  T1b (under 1mm but mitotic rate was 1).  I am very intersted in finding online parent groups for pediactric melanoma.  Please, if anyone sees this who knows of an active group online, send me the information.  I have had little luck searching for groups. Thank you!

                            camping_mama
                            Participant

                              Hi.  My 7 year old daughter was recently diagnosed with melanoma.  T1b (under 1mm but mitotic rate was 1).  I am very intersted in finding online parent groups for pediactric melanoma.  Please, if anyone sees this who knows of an active group online, send me the information.  I have had little luck searching for groups. Thank you!

                              dnovak
                              Participant

                                Brandy I sent you a PM.  There's a group of pediatric melanoma parents online that may be helpful for you.  You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.

                                 

                                 

                                dnovak
                                Participant

                                  Brandy I sent you a PM.  There's a group of pediatric melanoma parents online that may be helpful for you.  You can also learn more through Danielle Adams at her site http://littlestwarriorspot.com/.

                                   

                                   

                                  brandimhs
                                  Participant

                                    where is NIH  we are at st judes and it is a wonderful place as well

                                    brandimhs
                                    Participant

                                      where is NIH  we are at st judes and it is a wonderful place as well

                                      brandimhs
                                      Participant

                                        where is NIH  we are at st judes and it is a wonderful place as well

                                        tschmith
                                        Participant

                                          I'm a patient at NIH and know one melanoma patient there is a four year old child.  That's really all I know but I'm wondering if NIH has anything to offer you.  It could be worth looking into.  I cannot say enough about how great the doctors are at NIH.

                                          Terrie

                                          tschmith
                                          Participant

                                            I'm a patient at NIH and know one melanoma patient there is a four year old child.  That's really all I know but I'm wondering if NIH has anything to offer you.  It could be worth looking into.  I cannot say enough about how great the doctors are at NIH.

                                            Terrie

                                            brandimhs
                                            Participant

                                              thanks so much i will look into that!!

                                              brandimhs
                                              Participant

                                                thanks so much i will look into that!!

                                                brandimhs
                                                Participant

                                                  thanks so much i will look into that!!

                                                Carole K
                                                Participant

                                                  HI

                                                  I am so sorry you are going through this.  There were two people who posted here quite some time ago who had children with Melanoma.  I do know both children were diagnosed when they were 2 and are doing well.

                                                  One family started a non profit in Memphis near St. Jude's  It is called HABITAT FOR HOPE.  Their names are Mylissa and Mark Horrack.  There was another woman here named Claire.  I will see if I can get in touch with them.  Also, I just recently went to DC for Legislation Hill Day and met another woman who has a 9 year old with Melanoma. 

                                                  If there is any way I can help please know I am here for you.  Hang in there .  There are a lot of people here who can help you through this.. 

                                                  Love and Light

                                                  Carole K.

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