Dhva

Also tree in bud opacity found. Left lung.

Thanks for your response.  You all get how stressful waiting can be.  Waiting on my husband’s report now,and finding it very hard to believe the enlarged node in the right side of the back of my son’s neck can be anything other than Mel.  It feels so similar to the one in his right epitrochlear lymph node . We do realize if it is back, he’s lucky as long as it’s operable, but, still nerve wracking.  Thanks for your understanding.

Thanks for your suggestion, Celeste.  Waiting is hard.  I hope you are doing well and send my best wishes!

Btw, for background,he was diagnosed stage 3b and on ipi when he developed uveitis. Treatment was stopped. He had a recurrence and was re -staged :IV.  He had surgery, radiation and Nivo. He has three more Nivo treatments to go. 

No, my son has not been diagnosed with cf.  He is 31.  We saw the np to go over scan results and she said “radiologists overreact and it’s probably an atypical infection, so let’s wait 3 months and see what the next ct scans indicate”.  I’m not comfortable with this, but my son agreed and it’s his decision. Of course, when he developed uveitis, the onc and np said it was seasonal allergies…so, needless to say, sleep will not be my friend for the next three months.

Thanks Celeste I did read about investigative trials on combining propralonol with immuno treatments.  Unfortunately, since there has been zero communication I don’t know why it was prescribed. My son has had higher blood pressure lately, but they have never even commented on it as being an issue. I really have no idea what is going on. 

Thanks Jenn , we learned about the propralonol when h got a phone call from the drugstore saying an rx was ready.  Now got a future visit summary in the mail with appointments through February- but all treatments and labs stopping in Dec 20.  I called the N.P.  Thursday, but the call was not returned. This is very stressful and he is depressed. It’s hard when they don’t communicate . He has a treatment #5 this Wednesday – but not with an accompanying dr visit -so if she doesn’t call I’m not really sure what to try next.

Yes- and we’ll take any good news we can get!!! Thanks again!

Thanks Niki (actually I had sent you an email the other day).  They had noted a nodule and first told us it was in the brain, but then said it was a lymph node. Scans were about two weeks ago and we met with the onc last Wed . He said results were stable. Didn’t provide copies. Labs were done but results were not back in time for the appt.  Since they went ahead with the treatment we assumed they were fine. During the treatment he became very sleepy and then flushed a dark red and began sweating. I pointed it out to the nurse when the infusion completed she said well watch for it next time.  A bit later his phone rang and it was the pharmacy saying his prescription was in. News to us- what prescription?  Turns out to be propralonol from the oncologist with no discussion or instructions or interaction warnings. The pharmacist suggested not taking it until we spoke to the dr and was very surprised with both the manner in which it was prescribed and the dosage.  We didn’t call the dr,  but now they sent my son an email saying the dr wants to see him this week.  Not sure what is going on really –  maybe there was something in the labs and everything will be explained. Hopefully he will speak up to the dr or else I will have to say something and if he gets “crabby” it will be a rest my case situation.  He normally is the epitome of mellow, but not lately!!

Thank you for the suggestion. 

Hi Mark,  I’ll start by saying I’m not a fan of his dr. In August, when progression occurred, my son told them he was feeling down and asked for a referral to a psych or social worker – still waiting.  The onc tends to ignore both me and my husband when we accompany my son, and my son hasn’t asked again since they blew him off. Thanks for your advice, though and best regards. 

Thanks Jenn!