› Forums › General Melanoma Community › Recurrence?
- This topic has 4 replies, 3 voices, and was last updated 5 years, 2 months ago by Dhva.
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- February 23, 2019 at 3:14 pm
Hi, I haven’t checked in in a while…my son was first diagnosed as 3B. Primary in the right forearm, clnd. He started on ipi, but stopped due to adverse reaction. Had a recurrence in the epitrochlear lymph node of the right arm. He had radiation and then completed one year on nivo. It has been almost 6months since his last treatment, and his scans have been good except for some ground glass inflammation in his lung. A few days ago he pointed out a lump in the back of his neck. There had been a very small lump there ( small bb sized) for a couple of years which the onc dismissed as nothing. Now it has grown to the size of a grape . It is hard and reminds me very much of the met in his arm . For him to point it out at all means he is nervous. For him to have contacted his nurse (which he did) means he’s very nervous. The answer was that he has scans scheduled in two weeks anyway and they will see what’s going on then . I am trying to be positive,and it could be something innocent, but can’t help but feel it’s back. The scans are in two weeks, the follow up appointment for results is almost three weeks later. Just not sure we should wait on this given the location. If any of you out there have some advice I would really appreciate it!! I am a little stressed right now as my husband just had a parotidectomy yesterday and we are waiting for the biopsy results on that…the tumor was partially encapsulated and inflamed and involved the nerves and masseter muscle. And, just for kicks, my one dog has mammary gland cancer, and my other dog was just diagnosed with inoperable liver and pancreas cancer…so, good times, lol! So maybe I am just in crazy mom mode, but I can’t help but feel that Mel is back. Thanks in advance for any advice.
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- February 23, 2019 at 4:48 pm
Sorry for all that you are dealing with!!! While I would want that area biopsied "yesterday", I think while frustrating, the time frame set forth for scans and recheck is not problematic as far as potential melanoma and need to treat….just difficut because of waiting to "know". Your son might be able to ask that he be put on a cancelation list if he is able to fit in such a thing or if he is interested. Hopefully it wil be nothing to worry about…but checking it out thoroughly, which they seem to be planning to do….sounds appropriate. Hang in there. celeste
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- February 25, 2019 at 2:29 am
Much to deal with! I'd like to echo one of Celeste's excellent ideas, that of checking for a cancellation. I've had good results doing that and the schedulers never seem to mind the request. I'm told that the beginning of the day and the end of the day are the most likely hours for appointment changes, so that's when I call. Wishing you all the best. Keep us posted.
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- February 25, 2019 at 3:23 pm
Thanks for your response. You all get how stressful waiting can be. Waiting on my husband’s report now,and finding it very hard to believe the enlarged node in the right side of the back of my son’s neck can be anything other than Mel. It feels so similar to the one in his right epitrochlear lymph node . We do realize if it is back, he’s lucky as long as it’s operable, but, still nerve wracking. Thanks for your understanding.
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