Dgentz

I did 4 doses of IPI – I continued Zelboraf until right before dose 3. Very few IPI side effects, so that was nice – plus going off Z got rid of most other side effects!

Unfortunately for me, the removal of Z and addition of IPI did nothing (actually, I had the opposite reaction). 

So much to learn with how these 2 drugs work and work together. Wishing you the best!!!

I did 4 doses of IPI – I continued Zelboraf until right before dose 3. Very few IPI side effects, so that was nice – plus going off Z got rid of most other side effects!

Unfortunately for me, the removal of Z and addition of IPI did nothing (actually, I had the opposite reaction). 

So much to learn with how these 2 drugs work and work together. Wishing you the best!!!

I did 4 doses of IPI – I continued Zelboraf until right before dose 3. Very few IPI side effects, so that was nice – plus going off Z got rid of most other side effects!

Unfortunately for me, the removal of Z and addition of IPI did nothing (actually, I had the opposite reaction). 

So much to learn with how these 2 drugs work and work together. Wishing you the best!!!

Hi there! 

First of all, I think you'll find (or at least I have) that many people come to these boards for support and knowledge during treatment and diagnosis…seems to me that once people are NED they tend to drift away, so I wouldn't use boards as evidence of non-survival if that makes sense. 🙂 

I was diagnosed in July 2009 – mole removed from right thigh, wide area excision, sentinel node biopsy, removal of 8 lymph nodes in groin. No further treatment. Until this February when I was noticing pain in my groin area – similar to where one would have an ovarian cyst. Turns out it was the melanoma in a few more nodes. We attempted surgery to remove, but unfortunately, the nodes with the mel in them were "initmately involved" with major veins and vessels and was unresectable. 

I started with Zelboraf and have been on the full dose for a couple of weeks now (we eased into it). I'll have a scan in early October to see how it's going. 

It's scary, no doubt, and the waiting is the hardest part. But there are survivors and we're all fighting here.  We may not be in as large of numbers as those pink folks, but don't be discouraged. 

Hi there! 

First of all, I think you'll find (or at least I have) that many people come to these boards for support and knowledge during treatment and diagnosis…seems to me that once people are NED they tend to drift away, so I wouldn't use boards as evidence of non-survival if that makes sense. 🙂 

I was diagnosed in July 2009 – mole removed from right thigh, wide area excision, sentinel node biopsy, removal of 8 lymph nodes in groin. No further treatment. Until this February when I was noticing pain in my groin area – similar to where one would have an ovarian cyst. Turns out it was the melanoma in a few more nodes. We attempted surgery to remove, but unfortunately, the nodes with the mel in them were "initmately involved" with major veins and vessels and was unresectable. 

I started with Zelboraf and have been on the full dose for a couple of weeks now (we eased into it). I'll have a scan in early October to see how it's going. 

It's scary, no doubt, and the waiting is the hardest part. But there are survivors and we're all fighting here.  We may not be in as large of numbers as those pink folks, but don't be discouraged. 

Hi there! 

First of all, I think you'll find (or at least I have) that many people come to these boards for support and knowledge during treatment and diagnosis…seems to me that once people are NED they tend to drift away, so I wouldn't use boards as evidence of non-survival if that makes sense. 🙂 

I was diagnosed in July 2009 – mole removed from right thigh, wide area excision, sentinel node biopsy, removal of 8 lymph nodes in groin. No further treatment. Until this February when I was noticing pain in my groin area – similar to where one would have an ovarian cyst. Turns out it was the melanoma in a few more nodes. We attempted surgery to remove, but unfortunately, the nodes with the mel in them were "initmately involved" with major veins and vessels and was unresectable. 

I started with Zelboraf and have been on the full dose for a couple of weeks now (we eased into it). I'll have a scan in early October to see how it's going. 

It's scary, no doubt, and the waiting is the hardest part. But there are survivors and we're all fighting here.  We may not be in as large of numbers as those pink folks, but don't be discouraged. 

It's funny…I don't pay much attention to the numbers and stats and stages and percentages.  I'm not ignorant of them, but I choose to focus on me and my situation. Melanoma is a sneaky wench – I was almost at the 3 year NED mark when my nodes inflamed again. 

My oncologist is fantastic – he'll give me the numbers if I want them, but the bottom line is that he's doing the best treatments he can for ME to get ME the longest, healthiest life we can.  Someone telling me my treatment has X% chance of working doesn't help me fight.  That's just me though. 🙂 

I hope you can find some peace and good treatments/doctors to help you. 

It's funny…I don't pay much attention to the numbers and stats and stages and percentages.  I'm not ignorant of them, but I choose to focus on me and my situation. Melanoma is a sneaky wench – I was almost at the 3 year NED mark when my nodes inflamed again. 

My oncologist is fantastic – he'll give me the numbers if I want them, but the bottom line is that he's doing the best treatments he can for ME to get ME the longest, healthiest life we can.  Someone telling me my treatment has X% chance of working doesn't help me fight.  That's just me though. 🙂 

I hope you can find some peace and good treatments/doctors to help you. 

It's funny…I don't pay much attention to the numbers and stats and stages and percentages.  I'm not ignorant of them, but I choose to focus on me and my situation. Melanoma is a sneaky wench – I was almost at the 3 year NED mark when my nodes inflamed again. 

My oncologist is fantastic – he'll give me the numbers if I want them, but the bottom line is that he's doing the best treatments he can for ME to get ME the longest, healthiest life we can.  Someone telling me my treatment has X% chance of working doesn't help me fight.  That's just me though. 🙂 

I hope you can find some peace and good treatments/doctors to help you.