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DeniseK
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DeniseK

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  • Replies
      • November 7, 2013 at 6:18 am
      DeniseK
      Participant

        Hi Karen,

        I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

        Hang in there girl!!

        All my best 

        Denise

        • November 7, 2013 at 6:18 am
        DeniseK
        Participant

          Hi Karen,

          I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

          Hang in there girl!!

          All my best 

          Denise

          • November 7, 2013 at 6:18 am
          DeniseK
          Participant

            Hi Karen,

            I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

            Hang in there girl!!

            All my best 

            Denise

            • November 7, 2013 at 6:11 am
            DeniseK
            Participant

              I keep hitting the wrong button and post anonymously

              • November 7, 2013 at 6:11 am
              DeniseK
              Participant

                I keep hitting the wrong button and post anonymously

                • November 7, 2013 at 6:11 am
                DeniseK
                Participant

                  I keep hitting the wrong button and post anonymously

                  • November 8, 2013 at 10:59 pm
                  DeniseK
                  Participant

                    Thank you all so much.  He said go into Hospice and let nature take it's course.  There is nothing left to do.

                    Obviously devastating news.  I have things that need to be done.  I feel like there's a mad rush to tie up some loose ends.  

                     

                    • November 8, 2013 at 10:59 pm
                    DeniseK
                    Participant

                      Thank you all so much.  He said go into Hospice and let nature take it's course.  There is nothing left to do.

                      Obviously devastating news.  I have things that need to be done.  I feel like there's a mad rush to tie up some loose ends.  

                       

                      • November 8, 2013 at 10:59 pm
                      DeniseK
                      Participant

                        Thank you all so much.  He said go into Hospice and let nature take it's course.  There is nothing left to do.

                        Obviously devastating news.  I have things that need to be done.  I feel like there's a mad rush to tie up some loose ends.  

                         

                        • November 7, 2013 at 5:55 am
                        DeniseK
                        Participant

                          I started Temodar tonight.  They are saying this is my last option.  I have a call into the gamma knife doctor to confirm that they won't do gamma knife.  If I have to go somewhere else I will.  I will know in a few days if the temodar works or not I guess it's pretty quick stuff.  I am hoping Anti PD-1 gets FDA approval very soon but I am going to contact them and ask for compassionate use.  I have actually signed Nicks petition and have had several friends sign and share his story.  I am not sure they have granted him use as of yet.

                          Thanks you for your  support.

                          Denise

                          • November 7, 2013 at 5:55 am
                          DeniseK
                          Participant

                            I started Temodar tonight.  They are saying this is my last option.  I have a call into the gamma knife doctor to confirm that they won't do gamma knife.  If I have to go somewhere else I will.  I will know in a few days if the temodar works or not I guess it's pretty quick stuff.  I am hoping Anti PD-1 gets FDA approval very soon but I am going to contact them and ask for compassionate use.  I have actually signed Nicks petition and have had several friends sign and share his story.  I am not sure they have granted him use as of yet.

                            Thanks you for your  support.

                            Denise

                            • November 7, 2013 at 5:55 am
                            DeniseK
                            Participant

                              I started Temodar tonight.  They are saying this is my last option.  I have a call into the gamma knife doctor to confirm that they won't do gamma knife.  If I have to go somewhere else I will.  I will know in a few days if the temodar works or not I guess it's pretty quick stuff.  I am hoping Anti PD-1 gets FDA approval very soon but I am going to contact them and ask for compassionate use.  I have actually signed Nicks petition and have had several friends sign and share his story.  I am not sure they have granted him use as of yet.

                              Thanks you for your  support.

                              Denise

                              • October 21, 2013 at 11:37 pm
                              DeniseK
                              Participant

                                That's a good idea, I will have my doctor refer me.  He called and said it probably doesn't have anything to do with my melanoma, maybe an ear infection or sinus infection.

                                Thanks

                                Denise

                                • October 21, 2013 at 11:37 pm
                                DeniseK
                                Participant

                                  That's a good idea, I will have my doctor refer me.  He called and said it probably doesn't have anything to do with my melanoma, maybe an ear infection or sinus infection.

                                  Thanks

                                  Denise

                                  • October 21, 2013 at 11:37 pm
                                  DeniseK
                                  Participant

                                    That's a good idea, I will have my doctor refer me.  He called and said it probably doesn't have anything to do with my melanoma, maybe an ear infection or sinus infection.

                                    Thanks

                                    Denise

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