DeniseK
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DeniseK

Forum Replies Created

Viewing 5 reply threads
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  • Replies
      • November 7, 2013 at 6:18 am
      DeniseK
      Participant

      Hi Karen,

      I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

      Hang in there girl!!

      All my best 

      Denise

      • November 7, 2013 at 6:18 am
      DeniseK
      Participant

      Hi Karen,

      I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

      Hang in there girl!!

      All my best 

      Denise

      • November 7, 2013 at 6:18 am
      DeniseK
      Participant

      Hi Karen,

      I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

      Hang in there girl!!

      All my best 

      Denise

      • November 7, 2013 at 6:11 am
      DeniseK
      Participant

      I keep hitting the wrong button and post anonymously

      • November 7, 2013 at 6:11 am
      DeniseK
      Participant

      I keep hitting the wrong button and post anonymously

      • November 7, 2013 at 6:11 am
      DeniseK
      Participant

      I keep hitting the wrong button and post anonymously

      • November 8, 2013 at 10:59 pm
      DeniseK
      Participant

      Thank you all so much.  He said go into Hospice and let nature take it's course.  There is nothing left to do.

      Obviously devastating news.  I have things that need to be done.  I feel like there's a mad rush to tie up some loose ends.  

       

      • November 8, 2013 at 10:59 pm
      DeniseK
      Participant

      Thank you all so much.  He said go into Hospice and let nature take it's course.  There is nothing left to do.

      Obviously devastating news.  I have things that need to be done.  I feel like there's a mad rush to tie up some loose ends.  

       

      • November 8, 2013 at 10:59 pm
      DeniseK
      Participant

      Thank you all so much.  He said go into Hospice and let nature take it's course.  There is nothing left to do.

      Obviously devastating news.  I have things that need to be done.  I feel like there's a mad rush to tie up some loose ends.  

       

      • November 7, 2013 at 5:55 am
      DeniseK
      Participant

      I started Temodar tonight.  They are saying this is my last option.  I have a call into the gamma knife doctor to confirm that they won't do gamma knife.  If I have to go somewhere else I will.  I will know in a few days if the temodar works or not I guess it's pretty quick stuff.  I am hoping Anti PD-1 gets FDA approval very soon but I am going to contact them and ask for compassionate use.  I have actually signed Nicks petition and have had several friends sign and share his story.  I am not sure they have granted him use as of yet.

      Thanks you for your  support.

      Denise

      • November 7, 2013 at 5:55 am
      DeniseK
      Participant

      I started Temodar tonight.  They are saying this is my last option.  I have a call into the gamma knife doctor to confirm that they won't do gamma knife.  If I have to go somewhere else I will.  I will know in a few days if the temodar works or not I guess it's pretty quick stuff.  I am hoping Anti PD-1 gets FDA approval very soon but I am going to contact them and ask for compassionate use.  I have actually signed Nicks petition and have had several friends sign and share his story.  I am not sure they have granted him use as of yet.

      Thanks you for your  support.

      Denise

      • November 7, 2013 at 5:55 am
      DeniseK
      Participant

      I started Temodar tonight.  They are saying this is my last option.  I have a call into the gamma knife doctor to confirm that they won't do gamma knife.  If I have to go somewhere else I will.  I will know in a few days if the temodar works or not I guess it's pretty quick stuff.  I am hoping Anti PD-1 gets FDA approval very soon but I am going to contact them and ask for compassionate use.  I have actually signed Nicks petition and have had several friends sign and share his story.  I am not sure they have granted him use as of yet.

      Thanks you for your  support.

      Denise

      • October 21, 2013 at 11:37 pm
      DeniseK
      Participant

      That's a good idea, I will have my doctor refer me.  He called and said it probably doesn't have anything to do with my melanoma, maybe an ear infection or sinus infection.

      Thanks

      Denise

      • October 21, 2013 at 11:37 pm
      DeniseK
      Participant

      That's a good idea, I will have my doctor refer me.  He called and said it probably doesn't have anything to do with my melanoma, maybe an ear infection or sinus infection.

      Thanks

      Denise

      • October 21, 2013 at 11:37 pm
      DeniseK
      Participant

      That's a good idea, I will have my doctor refer me.  He called and said it probably doesn't have anything to do with my melanoma, maybe an ear infection or sinus infection.

      Thanks

      Denise

Viewing 5 reply threads
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