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DEK

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      DEK
      Participant

        Yes on prednisolone

        Had to go onto steroids because of the diarrhea

        My bowel became very inflamed

        Can't help you on dose of Yervoy.I just don't know

        Perhaps I should be asking more questions

        But over the last months I have tolerated  it very well

        All my kidney and blood counts have been normal

        I would love to know when the bowel will get back to normal but that could take some time yet.

        My next scan will be end of August

        That ,I hope will let me know if it's been all with while

        But positive thinking, and good look! X

        DEK
        Participant

          Hi

          I have just finished my treatment on Yervoy,(ipilimumab)

          Infusion over 90 mins,every 3 weeks for 4 sessions

          I sailed through it

          But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

          since for rehydration and a course of steroids

          I am still on steroids , reducing  slowly

          Have been told this is the biggest problem

          But we are not all the same,hope this helps

          X

          DEK
          Participant

            Hi

            I have just finished my treatment on Yervoy,(ipilimumab)

            Infusion over 90 mins,every 3 weeks for 4 sessions

            I sailed through it

            But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

            since for rehydration and a course of steroids

            I am still on steroids , reducing  slowly

            Have been told this is the biggest problem

            But we are not all the same,hope this helps

            X

            DEK
            Participant

              Hi

              I have just finished my treatment on Yervoy,(ipilimumab)

              Infusion over 90 mins,every 3 weeks for 4 sessions

              I sailed through it

              But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

              since for rehydration and a course of steroids

              I am still on steroids , reducing  slowly

              Have been told this is the biggest problem

              But we are not all the same,hope this helps

              X

              DEK
              Participant

                Hi

                I have just finished my treatment on Yervoy,(ipilimumab)

                Infusion over 90 mins,every 3 weeks for 4 sessions

                I sailed through it

                But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

                since for rehydration and a course of steroids

                I am still on steroids , reducing  slowly

                Have been told this is the biggest problem

                But we are not all the same,hope this helps

                X

                DEK
                Participant

                  Hi

                  I have just finished my treatment on Yervoy,(ipilimumab)

                  Infusion over 90 mins,every 3 weeks for 4 sessions

                  I sailed through it

                  But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

                  since for rehydration and a course of steroids

                  I am still on steroids , reducing  slowly

                  Have been told this is the biggest problem

                  But we are not all the same,hope this helps

                  X

                  DEK
                  Participant

                    Hi

                    I have just finished my treatment on Yervoy,(ipilimumab)

                    Infusion over 90 mins,every 3 weeks for 4 sessions

                    I sailed through it

                    But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

                    since for rehydration and a course of steroids

                    I am still on steroids , reducing  slowly

                    Have been told this is the biggest problem

                    But we are not all the same,hope this helps

                    X

                    DEK
                    Participant

                      Day at a time Isabell

                      Enjoy NOW .it will  not effect tomorrow

                       I Send all positive thoughts from the UK

                      To you x

                      DEK
                      Participant

                        DEK here UK

                        Never gave it a thought

                        I have been scanned every 3 months since reaching stage 4.

                        Didn't know I was at this stage till Nov 2012

                        Since the ipilimumab treatment they have tried to scan after a month

                        But unfortunately due to the chronic diarrhea from the treatment it took 6 weeks before I could have scan

                        But for me I would say every 3 months

                        Don't they need that kind of gap to see any changes

                        DEK
                        Participant

                          Yes on prednisolone

                          Had to go onto steroids because of the diarrhea

                          My bowel became very inflamed

                          Can't help you on dose of Yervoy.I just don't know

                          Perhaps I should be asking more questions

                          But over the last months I have tolerated  it very well

                          All my kidney and blood counts have been normal

                          I would love to know when the bowel will get back to normal but that could take some time yet.

                          My next scan will be end of August

                          That ,I hope will let me know if it's been all with while

                          But positive thinking, and good look! X

                          DEK
                          Participant

                            Yes on prednisolone

                            Had to go onto steroids because of the diarrhea

                            My bowel became very inflamed

                            Can't help you on dose of Yervoy.I just don't know

                            Perhaps I should be asking more questions

                            But over the last months I have tolerated  it very well

                            All my kidney and blood counts have been normal

                            I would love to know when the bowel will get back to normal but that could take some time yet.

                            My next scan will be end of August

                            That ,I hope will let me know if it's been all with while

                            But positive thinking, and good look! X

                            DEK
                            Participant

                              Day at a time Isabell

                              Enjoy NOW .it will  not effect tomorrow

                               I Send all positive thoughts from the UK

                              To you x

                              DEK
                              Participant

                                Day at a time Isabell

                                Enjoy NOW .it will  not effect tomorrow

                                 I Send all positive thoughts from the UK

                                To you x

                                DEK
                                Participant

                                  DEK here UK

                                  Never gave it a thought

                                  I have been scanned every 3 months since reaching stage 4.

                                  Didn't know I was at this stage till Nov 2012

                                  Since the ipilimumab treatment they have tried to scan after a month

                                  But unfortunately due to the chronic diarrhea from the treatment it took 6 weeks before I could have scan

                                  But for me I would say every 3 months

                                  Don't they need that kind of gap to see any changes

                                  DEK
                                  Participant

                                    DEK here UK

                                    Never gave it a thought

                                    I have been scanned every 3 months since reaching stage 4.

                                    Didn't know I was at this stage till Nov 2012

                                    Since the ipilimumab treatment they have tried to scan after a month

                                    But unfortunately due to the chronic diarrhea from the treatment it took 6 weeks before I could have scan

                                    But for me I would say every 3 months

                                    Don't they need that kind of gap to see any changes

                                Viewing 8 reply threads