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clinical trial GM-CSF/Yervoy
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clinical trial GM-CSF/Yervoy

› Forums › General Melanoma Community › clinical trial GM-CSF/Yervoy

  • Post
    • July 30, 2013 at 8:41 pm
    Lori Stoen
    Participant

      Wondering if anyone is in the trial GM-CSF / Yervoy ?? My dad was givin this as an option or to use the regulated dose of Yervoy… Wondering how the side effects are… Or  just anyone with the Yervoy side effects would be helpful.. We are so undecided … Dad feels good now and is active doing many things at the age of 80 and he does not want to give in….. And I am in total agreeance with him. I just dont want to see him sick and I dont know if that triple the dose of the trial would be to much… Any suggestions from ppl that have been on either ?

      Wondering if anyone is in the trial GM-CSF / Yervoy ?? My dad was givin this as an option or to use the regulated dose of Yervoy… Wondering how the side effects are… Or  just anyone with the Yervoy side effects would be helpful.. We are so undecided … Dad feels good now and is active doing many things at the age of 80 and he does not want to give in….. And I am in total agreeance with him. I just dont want to see him sick and I dont know if that triple the dose of the trial would be to much… Any suggestions from ppl that have been on either ?

    Viewing 7 reply threads
    • Replies
        • July 31, 2013 at 6:19 am
        DEK
        Participant

          Hi

          I have just finished my treatment on Yervoy,(ipilimumab)

          Infusion over 90 mins,every 3 weeks for 4 sessions

          I sailed through it

          But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

          since for rehydration and a course of steroids

          I am still on steroids , reducing  slowly

          Have been told this is the biggest problem

          But we are not all the same,hope this helps

          X

          • July 31, 2013 at 6:19 am
          DEK
          Participant

            Hi

            I have just finished my treatment on Yervoy,(ipilimumab)

            Infusion over 90 mins,every 3 weeks for 4 sessions

            I sailed through it

            But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

            since for rehydration and a course of steroids

            I am still on steroids , reducing  slowly

            Have been told this is the biggest problem

            But we are not all the same,hope this helps

            X

            • July 31, 2013 at 6:19 am
            DEK
            Participant

              Hi

              I have just finished my treatment on Yervoy,(ipilimumab)

              Infusion over 90 mins,every 3 weeks for 4 sessions

              I sailed through it

              But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

              since for rehydration and a course of steroids

              I am still on steroids , reducing  slowly

              Have been told this is the biggest problem

              But we are not all the same,hope this helps

              X

              • July 31, 2013 at 6:21 am
              DEK
              Participant

                Hi

                I have just finished my treatment on Yervoy,(ipilimumab)

                Infusion over 90 mins,every 3 weeks for 4 sessions

                I sailed through it

                But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

                since for rehydration and a course of steroids

                I am still on steroids , reducing  slowly

                Have been told this is the biggest problem

                But we are not all the same,hope this helps

                X

                • July 31, 2013 at 6:21 am
                DEK
                Participant

                  Hi

                  I have just finished my treatment on Yervoy,(ipilimumab)

                  Infusion over 90 mins,every 3 weeks for 4 sessions

                  I sailed through it

                  But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

                  since for rehydration and a course of steroids

                  I am still on steroids , reducing  slowly

                  Have been told this is the biggest problem

                  But we are not all the same,hope this helps

                  X

                  • July 31, 2013 at 6:21 am
                  DEK
                  Participant

                    Hi

                    I have just finished my treatment on Yervoy,(ipilimumab)

                    Infusion over 90 mins,every 3 weeks for 4 sessions

                    I sailed through it

                    But unfortunately ended up having chronic diarrhea,had  to go into hospital since twice

                    since for rehydration and a course of steroids

                    I am still on steroids , reducing  slowly

                    Have been told this is the biggest problem

                    But we are not all the same,hope this helps

                    X

                    • August 1, 2013 at 2:07 am
                    Lori Stoen
                    Participant

                      Thanks for the info, I am hoping dad can get by without the steriods… Did they use Prednisone ?? That drug made his kidney function drop way way down… And what dose of the Yervoy did you take ?

                      • August 1, 2013 at 1:21 pm
                      DEK
                      Participant

                        Yes on prednisolone

                        Had to go onto steroids because of the diarrhea

                        My bowel became very inflamed

                        Can't help you on dose of Yervoy.I just don't know

                        Perhaps I should be asking more questions

                        But over the last months I have tolerated  it very well

                        All my kidney and blood counts have been normal

                        I would love to know when the bowel will get back to normal but that could take some time yet.

                        My next scan will be end of August

                        That ,I hope will let me know if it's been all with while

                        But positive thinking, and good look! X

                        • August 1, 2013 at 2:07 am
                        Lori Stoen
                        Participant

                          Thanks for the info, I am hoping dad can get by without the steriods… Did they use Prednisone ?? That drug made his kidney function drop way way down… And what dose of the Yervoy did you take ?

                          • August 1, 2013 at 2:07 am
                          Lori Stoen
                          Participant

                            Thanks for the info, I am hoping dad can get by without the steriods… Did they use Prednisone ?? That drug made his kidney function drop way way down… And what dose of the Yervoy did you take ?

                            • August 1, 2013 at 1:21 pm
                            DEK
                            Participant

                              Yes on prednisolone

                              Had to go onto steroids because of the diarrhea

                              My bowel became very inflamed

                              Can't help you on dose of Yervoy.I just don't know

                              Perhaps I should be asking more questions

                              But over the last months I have tolerated  it very well

                              All my kidney and blood counts have been normal

                              I would love to know when the bowel will get back to normal but that could take some time yet.

                              My next scan will be end of August

                              That ,I hope will let me know if it's been all with while

                              But positive thinking, and good look! X

                              • August 1, 2013 at 1:21 pm
                              DEK
                              Participant

                                Yes on prednisolone

                                Had to go onto steroids because of the diarrhea

                                My bowel became very inflamed

                                Can't help you on dose of Yervoy.I just don't know

                                Perhaps I should be asking more questions

                                But over the last months I have tolerated  it very well

                                All my kidney and blood counts have been normal

                                I would love to know when the bowel will get back to normal but that could take some time yet.

                                My next scan will be end of August

                                That ,I hope will let me know if it's been all with while

                                But positive thinking, and good look! X

                            Viewing 7 reply threads
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