deirgey

CONGRATS to the shrinkage of the brain mets!!!!!!  That is unbelievable.  So happy for you both.  Let us know how the 12 and 16 week scans go.  We will be thinking about you!  Thanks for the info on the aches and pains.  We have no other explanation for my dad's pain either so it could just be the Yervoy.  Guess we'll see.

Deidre

CONGRATS to the shrinkage of the brain mets!!!!!!  That is unbelievable.  So happy for you both.  Let us know how the 12 and 16 week scans go.  We will be thinking about you!  Thanks for the info on the aches and pains.  We have no other explanation for my dad's pain either so it could just be the Yervoy.  Guess we'll see.

Deidre

Hi Donna,

  Sorry i was using the wrong terminology.  Yes he got infusions of IPI.  His doctor said he didn't have to follow the schedule of 3 weeks apart b/c that was just for the trials.  So since he got colitis, he had to delay his 3rd treatment a few weeks and was put on a steriod. 

Deidre

Hi Donna,

  Sorry i was using the wrong terminology.  Yes he got infusions of IPI.  His doctor said he didn't have to follow the schedule of 3 weeks apart b/c that was just for the trials.  So since he got colitis, he had to delay his 3rd treatment a few weeks and was put on a steriod. 

Deidre

Hi TracyLee,

  My dad was dianosed with stage IV melanoma in Dec 10.  The melanoma was in his spine, liver, lungs and other places on his bones.  He had to have major back reconstructive surgery b/c the melanoma basically almost crushed 2 vertebrae in his spine.  He then had radiation after his back surgery in January and started on his first treatment of Avastine and Abraxane in March.  The first treatment either stopped or eliminated most of the cancer in all places except for the liver so his doctor pulled him from that treatment.  He started on IPI in May 2011 and have had 3 infusions so far.  After the 2nd infusion he started getting hip pain.  He did have a hip replacement a few years ago but he had an MRI and XRays and nothing seems to be out of place in the hip or back.  The doctor is also convinced it is not cancer in his hip causing the pain.  Our only conclusion is that it could be the steriod he took to help his colitis (Ipi reaction) or it was Ipi itself. 

  Thanks for all help and prayers!! 

Deidre
 

Hi TracyLee,

  My dad was dianosed with stage IV melanoma in Dec 10.  The melanoma was in his spine, liver, lungs and other places on his bones.  He had to have major back reconstructive surgery b/c the melanoma basically almost crushed 2 vertebrae in his spine.  He then had radiation after his back surgery in January and started on his first treatment of Avastine and Abraxane in March.  The first treatment either stopped or eliminated most of the cancer in all places except for the liver so his doctor pulled him from that treatment.  He started on IPI in May 2011 and have had 3 infusions so far.  After the 2nd infusion he started getting hip pain.  He did have a hip replacement a few years ago but he had an MRI and XRays and nothing seems to be out of place in the hip or back.  The doctor is also convinced it is not cancer in his hip causing the pain.  Our only conclusion is that it could be the steriod he took to help his colitis (Ipi reaction) or it was Ipi itself. 

  Thanks for all help and prayers!! 

Deidre
 

Nicki, my parents know more about the drugs but yes 1 of the drugs is chemo.  I noticed 1 other person on this board take that combo and they were also from Arizona Cancer Center.  It did the trick for most of the cancer in his body actually eliminating the cancer from his lungs but it didn't help the liver. 

Deidre