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      • October 9, 2019 at 10:46 pm
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      Participant
        Thank you. Found out that her Cancer is PD-1 positive and they will be starting her on Keytruda.
        • September 27, 2019 at 7:26 pm
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        Participant
          She is being treated at a community hospital near Philadelphia. They do not know what the primary of the squamous cell cancer is—skin, head and neck, or lung. The dr suspects skin since she had a SCC removed from her left shoulder 5 years ago. Hiwever the metastasis are on her right side. I would take her to a specialist, but do not know what specialist to take her to since we don’t know the primary. Very complicated and stressful
          • September 26, 2019 at 9:46 am
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          Participant
            Thank you for your kind response. The problem with this is that they do not know if the primary is a head and neck SCC (for which the Keytruda would make sense) or cutaneous(for which it would not). There is a shocking lack of information out there about cutaneous metastatic SCC. I wish they had a forum like this one. I became a member when I had an in situation melanoma a few years ago, and found this forum to have a wealth of knowledge and a source of comfort.
            • July 4, 2017 at 8:04 pm
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            Participant

              My sister had nelanoma 12 years ago, 3  or 4 years later she developed a mole on her lower lip (looked like a large, relatively dark freckle). It is not melanoma, but did require special laser treatment.   She has had 2 more moles on her lip since, both of which requiring laser treatment.  She has not had any more melanoma.  

              • November 29, 2016 at 11:39 pm
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              Participant

                My father-in-law was diagnosed at stage 3 on his foot that travelled to lymph nodes  ,in 1976.  Following surgery, he remains NED today at the age of 84.

                he remains NED at the age of 84.

                • November 29, 2016 at 11:39 pm
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                Participant

                  My father-in-law was diagnosed at stage 3 on his foot that travelled to lymph nodes  ,in 1976.  Following surgery, he remains NED today at the age of 84.

                  he remains NED at the age of 84.

                  • November 29, 2016 at 11:39 pm
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                  Participant

                    My father-in-law was diagnosed at stage 3 on his foot that travelled to lymph nodes  ,in 1976.  Following surgery, he remains NED today at the age of 84.

                    he remains NED at the age of 84.

                    • October 3, 2016 at 10:49 am
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                    Participant

                      My father-in-law was diagnosd in 1979 with stage three melanoma– his primary wasblying close to his 3rd and 4th toes and had extensive lymphnode involvement in his groin. Hewill be turning 84 on his next birthday in February.  So yes, there are some very long term survivors!

                      • October 3, 2016 at 10:49 am
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                      Participant

                        My father-in-law was diagnosd in 1979 with stage three melanoma– his primary wasblying close to his 3rd and 4th toes and had extensive lymphnode involvement in his groin. Hewill be turning 84 on his next birthday in February.  So yes, there are some very long term survivors!

                        • October 3, 2016 at 10:49 am
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                        Participant

                          My father-in-law was diagnosd in 1979 with stage three melanoma– his primary wasblying close to his 3rd and 4th toes and had extensive lymphnode involvement in his groin. Hewill be turning 84 on his next birthday in February.  So yes, there are some very long term survivors!

                          • August 4, 2014 at 8:14 pm
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                          Participant

                            Thanks so much!  I did finally get my pathology report and it says that it is melanoma in situ.  It also says that there is secondary lichen simplex chronicus, probably from rubbing, in my specimen.  I had  never heard of this, and when I researched it this afternoon, I found that it almost always associated with and caused by chronic severe itching.  This is disturbing to me because my lesion was never itchy, so I never scratched it, and so I feel that I cannot possibly have that condition.  Is anyone familiar with this?   

                            • August 4, 2014 at 8:14 pm
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                            Participant

                              Thanks so much!  I did finally get my pathology report and it says that it is melanoma in situ.  It also says that there is secondary lichen simplex chronicus, probably from rubbing, in my specimen.  I had  never heard of this, and when I researched it this afternoon, I found that it almost always associated with and caused by chronic severe itching.  This is disturbing to me because my lesion was never itchy, so I never scratched it, and so I feel that I cannot possibly have that condition.  Is anyone familiar with this?   

                              • August 4, 2014 at 8:14 pm
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                              Participant

                                Thanks so much!  I did finally get my pathology report and it says that it is melanoma in situ.  It also says that there is secondary lichen simplex chronicus, probably from rubbing, in my specimen.  I had  never heard of this, and when I researched it this afternoon, I found that it almost always associated with and caused by chronic severe itching.  This is disturbing to me because my lesion was never itchy, so I never scratched it, and so I feel that I cannot possibly have that condition.  Is anyone familiar with this?   

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