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SCC

› Forums › Cutaneous Melanoma Community › SCC

  • Post
    • September 25, 2019 at 9:40 pm
    cc
    Participant
      Hi all,
      My mom was diagnosed with B cell lymphoma and metastatic cutaneous squamous carcinoma on the same day one month again. The squamous cell is in her axial and supraclavicle nodes and in Three masses in her lungs. She has no known primary. The reason I am reaching out is that I am unable to find a squamous cell skin cancer forum, and her doctor wants to treat her with Keytruda and radiation, depending on some testing on her tumor. She is 84 and in very good health other than this. So I am hoping that someone has heard of this treatment for squamous cell, or that someone can point me in the direction of a different forum. Her right axial node had both squamous cell cancer and B cell lymphoma in it, and they don’t seem to quite know what to do with her. Thank you for any help that you can give me.
      Chris
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    • Replies
        • September 25, 2019 at 10:54 pm
        JudiAU
        Participant
          I did realize there was such a thing. If your oncologist is not a specialist in this, you might look up related trials and find the authors. If they are in practice, they might be able to consult. Some trials are listed here: https://www.cancer.gov/types/head-and-neck/patient/adult/metastatic-squamous-neck-treatment-pdq
            • September 26, 2019 at 9:46 am
            cc
            Participant
              Thank you for your kind response. The problem with this is that they do not know if the primary is a head and neck SCC (for which the Keytruda would make sense) or cutaneous(for which it would not). There is a shocking lack of information out there about cutaneous metastatic SCC. I wish they had a forum like this one. I became a member when I had an in situation melanoma a few years ago, and found this forum to have a wealth of knowledge and a source of comfort.
            • September 26, 2019 at 11:51 am
            SABKLYN
            Participant
              Hi Chris,
              Where is she being treated; what type of practice?
                • September 27, 2019 at 7:26 pm
                cc
                Participant
                  She is being treated at a community hospital near Philadelphia. They do not know what the primary of the squamous cell cancer is—skin, head and neck, or lung. The dr suspects skin since she had a SCC removed from her left shoulder 5 years ago. Hiwever the metastasis are on her right side. I would take her to a specialist, but do not know what specialist to take her to since we don’t know the primary. Very complicated and stressful
                  • September 28, 2019 at 10:59 am
                  SABKLYN
                  Participant
                    U of P Abromson Cancer Center is quite good and Sloan Kettering has offices in NJ.
                  • September 27, 2019 at 10:46 am
                  MelMel
                  Participant
                    As per Mayo Clinic web site
                    “For squamous cell carcinoma of the skin, immunotherapy might be considered when the cancer is advanced and other treatments aren’t an option.”
                    Best wishes,
                    Melanie
                      • October 9, 2019 at 10:46 pm
                      cc
                      Participant
                        Thank you. Found out that her Cancer is PD-1 positive and they will be starting her on Keytruda.
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