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Candi13
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Candi13

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      • June 27, 2013 at 11:58 pm
      Candi13
      Participant

        Karen,

         

        I am so glad you like your doctor & you are going forward.

        I am new here so I am trying to learn about everything.

        When you have brain mets treated, will you be able to get into the Merck trial immediately, or do you have to wait a certain amount of time to prove to Merck that your brain mets are stable before Merck will let you in the trial?? If so, how long do you have to wait?

        Good Luck on Tuesday and thank you for responding to my question about Merck & waiting to get into trial.

        Justin

         

         

        • June 27, 2013 at 11:58 pm
        Candi13
        Participant

          Karen,

           

          I am so glad you like your doctor & you are going forward.

          I am new here so I am trying to learn about everything.

          When you have brain mets treated, will you be able to get into the Merck trial immediately, or do you have to wait a certain amount of time to prove to Merck that your brain mets are stable before Merck will let you in the trial?? If so, how long do you have to wait?

          Good Luck on Tuesday and thank you for responding to my question about Merck & waiting to get into trial.

          Justin

           

           

          • June 27, 2013 at 11:58 pm
          Candi13
          Participant

            Karen,

             

            I am so glad you like your doctor & you are going forward.

            I am new here so I am trying to learn about everything.

            When you have brain mets treated, will you be able to get into the Merck trial immediately, or do you have to wait a certain amount of time to prove to Merck that your brain mets are stable before Merck will let you in the trial?? If so, how long do you have to wait?

            Good Luck on Tuesday and thank you for responding to my question about Merck & waiting to get into trial.

            Justin

             

             

            • June 24, 2013 at 11:37 pm
            Candi13
            Participant
              Hi karen,
               
              Just wanted to wish you luck with your scans.
               
              My husband is considering Merck pd1 if ipi fails.
               
              Please tell me what is the "testing kit" from Merck used for?
               
              A
              • June 24, 2013 at 11:37 pm
              Candi13
              Participant
                Hi karen,
                 
                Just wanted to wish you luck with your scans.
                 
                My husband is considering Merck pd1 if ipi fails.
                 
                Please tell me what is the "testing kit" from Merck used for?
                 
                A
                • June 24, 2013 at 11:37 pm
                Candi13
                Participant
                  Hi karen,
                   
                  Just wanted to wish you luck with your scans.
                   
                  My husband is considering Merck pd1 if ipi fails.
                   
                  Please tell me what is the "testing kit" from Merck used for?
                   
                  A
                  • June 22, 2013 at 1:13 am
                  Candi13
                  Participant

                    For what it is worth, I was on PD1 and NED for over 1 + years  while on  PD1 then got a brain met. Not sure if PD1 crosses the brain blood barrrier to kill tumors in the brain

                    • June 22, 2013 at 1:13 am
                    Candi13
                    Participant

                      For what it is worth, I was on PD1 and NED for over 1 + years  while on  PD1 then got a brain met. Not sure if PD1 crosses the brain blood barrrier to kill tumors in the brain

                      • March 20, 2019 at 3:00 pm
                      Candi13
                      Participant

                        Hi Maggie,

                        I'm so sorry to hear everything you've been through.

                        Sometimes Oncs ONLY offer patients clinical trials that are available to them at their site. You might want to consider look at https://clinicaltrials.gov/  and trying to find other trials that might fit your needs.

                        Just out of curiosity Who is you ONC and where are you being treated?

                        • March 19, 2019 at 9:55 pm
                        Candi13
                        Participant

                          Hi Julie,

                          Did your T-Vec injections work on your subqs?

                          • March 19, 2019 at 9:54 pm
                          Candi13
                          Participant

                            Hi Julie,

                            Did your T-Vec injections work on your subqs?

                            • March 19, 2019 at 6:27 pm
                            Candi13
                            Participant

                              Hi Julie,

                              Did your T-Vec injections work on your subqs?

                              • June 26, 2013 at 9:10 pm
                              Candi13
                              Participant

                                Hi Karen,

                                 

                                I am a Newbie to this world of melanoma & this blog site. I have learned alot by just reading your posts.

                                I am so sorry that you were told you have brain mets. You must be devastated.

                                Does this mean that you cannot get on the PD1 trial that you have fought so hard to get qualified for?

                                This is very scary you need treatment before your ear get worse.

                                I will pray for you.

                                  

                                Justin

                                • June 26, 2013 at 9:10 pm
                                Candi13
                                Participant

                                  Hi Karen,

                                   

                                  I am a Newbie to this world of melanoma & this blog site. I have learned alot by just reading your posts.

                                  I am so sorry that you were told you have brain mets. You must be devastated.

                                  Does this mean that you cannot get on the PD1 trial that you have fought so hard to get qualified for?

                                  This is very scary you need treatment before your ear get worse.

                                  I will pray for you.

                                    

                                  Justin

                                  • June 26, 2013 at 9:10 pm
                                  Candi13
                                  Participant

                                    Hi Karen,

                                     

                                    I am a Newbie to this world of melanoma & this blog site. I have learned alot by just reading your posts.

                                    I am so sorry that you were told you have brain mets. You must be devastated.

                                    Does this mean that you cannot get on the PD1 trial that you have fought so hard to get qualified for?

                                    This is very scary you need treatment before your ear get worse.

                                    I will pray for you.

                                      

                                    Justin

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