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gliadel wafer for brain met?
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gliadel wafer for brain met?

› Forums › General Melanoma Community › gliadel wafer for brain met?

  • Post
    • June 22, 2013 at 12:31 am
    Brendan
    Participant

       

       

      Hi Everyone,
       
      I am back in the hospital and craniotomy #2 is scheduled for Monday.  I will get a chest, abdomen, pelvis CT scan tomorrow (Sat) to see if I have any mets below the neck.  As of now, my brain met recurrence is the only known met in my body.
       
      My med onc (who has not yet talked to my neurosurgeon or rad onc) mentioned the possibility of a gliadel wafer, a treatment primarily used for gliomas.  I have just started to research, and it appears that WBR follows the wafer and I would like to hold off on the WBR if possible.  I have not yet tried temodar, maintenance ipi was discussed, and so was the potential for PD-1 in a couple months.
       
      My first brain met was removed through craniotomy in Nov, and the recurrence came back in five months so, as always, timing is everything.
       
      Does anyone have any experience with these wafers?  Thanks for your help.
       
      Brendan
    Viewing 5 reply threads
    • Replies
        • June 22, 2013 at 1:13 am
        Candi13
        Participant

          For what it is worth, I was on PD1 and NED for over 1 + years  while on  PD1 then got a brain met. Not sure if PD1 crosses the brain blood barrrier to kill tumors in the brain

          • June 22, 2013 at 1:13 am
          Candi13
          Participant

            For what it is worth, I was on PD1 and NED for over 1 + years  while on  PD1 then got a brain met. Not sure if PD1 crosses the brain blood barrrier to kill tumors in the brain

            • June 22, 2013 at 1:13 am
            Candi13
            Participant

              For what it is worth, I was on PD1 and NED for over 1 + years  while on  PD1 then got a brain met. Not sure if PD1 crosses the brain blood barrrier to kill tumors in the brain

              • June 24, 2013 at 3:44 am
              aldakota22
              Participant

                Brendan you will be in my prayers and so many  others for the best outcome from Tuesdays operation.Expecting to hear fantastic news in next post.All the best.Beat the Beast.    Al

                • June 24, 2013 at 3:44 am
                aldakota22
                Participant

                  Brendan you will be in my prayers and so many  others for the best outcome from Tuesdays operation.Expecting to hear fantastic news in next post.All the best.Beat the Beast.    Al

                  • June 24, 2013 at 3:44 am
                  aldakota22
                  Participant

                    Brendan you will be in my prayers and so many  others for the best outcome from Tuesdays operation.Expecting to hear fantastic news in next post.All the best.Beat the Beast.    Al

                    • June 24, 2013 at 1:36 am
                    Brendan
                    Participant

                      HI,

                      My surgeon and med onc have decided to use the wafers.  The surgeon has used them before.  My CT on Sat (chest, abdomen, pelvis) was clear, so I wll be NED after surgery, now 21 months at Stage IV.  This will certainly get through the BBB, and then it's more wait and see.

                      Craniotomy is planned for Tues.  

                      Brendan

                       

                      • June 24, 2013 at 1:36 am
                      Brendan
                      Participant

                        HI,

                        My surgeon and med onc have decided to use the wafers.  The surgeon has used them before.  My CT on Sat (chest, abdomen, pelvis) was clear, so I wll be NED after surgery, now 21 months at Stage IV.  This will certainly get through the BBB, and then it's more wait and see.

                        Craniotomy is planned for Tues.  

                        Brendan

                         

                        • June 24, 2013 at 1:36 am
                        Brendan
                        Participant

                          HI,

                          My surgeon and med onc have decided to use the wafers.  The surgeon has used them before.  My CT on Sat (chest, abdomen, pelvis) was clear, so I wll be NED after surgery, now 21 months at Stage IV.  This will certainly get through the BBB, and then it's more wait and see.

                          Craniotomy is planned for Tues.  

                          Brendan

                           

                      Viewing 5 reply threads
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