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blessd4x

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      blessd4x
      Participant

        Josh, Everytime I see your face pop up I breathe a sigh of relief!  You are our hero. and your family's hero!  Hang on, we are relying on you to see you become the next miracle here.  So no pressure!  God bless, in many prayers.

        R

        blessd4x
        Participant

          So good to hear about your baby doing well on Opdivo!  My husband, stage IV, was on it and has been NED for almost a year. God bless!

          R

          blessd4x
          Participant

            I dont think the original Anon was trying to spark controversy over the article and its legitamacy or how accurate it is.  We Anon's for the greater part are finding our way here out of fear and desperation.  We do not know the in's and out's, whats accurate or not.  Sometimes we post things just to get clarification but not to piss anyone off.  I believe this is a place of support and when we first come here we are naive and need some of you experts to take our hand and guide us.  But if were here and posting its because we are touched by this horrific disease, please dont condemn us or belittle us by our lack of education thus far.  We're reaching out.  Please be kind.

            blessd4x
            Participant

              I dont think the original Anon was trying to spark controversy over the article and its legitamacy or how accurate it is.  We Anon's for the greater part are finding our way here out of fear and desperation.  We do not know the in's and out's, whats accurate or not.  Sometimes we post things just to get clarification but not to piss anyone off.  I believe this is a place of support and when we first come here we are naive and need some of you experts to take our hand and guide us.  But if were here and posting its because we are touched by this horrific disease, please dont condemn us or belittle us by our lack of education thus far.  We're reaching out.  Please be kind.

              blessd4x
              Participant

                I dont think the original Anon was trying to spark controversy over the article and its legitamacy or how accurate it is.  We Anon's for the greater part are finding our way here out of fear and desperation.  We do not know the in's and out's, whats accurate or not.  Sometimes we post things just to get clarification but not to piss anyone off.  I believe this is a place of support and when we first come here we are naive and need some of you experts to take our hand and guide us.  But if were here and posting its because we are touched by this horrific disease, please dont condemn us or belittle us by our lack of education thus far.  We're reaching out.  Please be kind.

                blessd4x
                Participant

                  Im so sorry to hear of your loss.  God bless you and your husband. 

                  R

                  blessd4x
                  Participant

                    Im so sorry to hear of your loss.  God bless you and your husband. 

                    R

                    blessd4x
                    Participant

                      Im so sorry to hear of your loss.  God bless you and your husband. 

                      R

                      blessd4x
                      Participant

                        yes they are giving him Steroids now.  That should make him just a delight to be around. lol  I hope it works.  He's the shell of the man he was 2 years ago.  If the biopises come back more mel, then what?  With Lupus you cant be on Opdivo or Keytruda.  My heads about to blow up.  

                        blessd4x
                        Participant

                          Just Opdivo.  Rash, temp fluxuation, depression, just recently his whole body has swollen, moles popping up, in constant pain, the basil coming up on his nose and head constantly, now dr saying he has lupus and the growths we dont know anything yes and biopsies are not back on the moles. 

                          blessd4x
                          Participant

                            I agree. I talk on deaf ears with him.  Selling himself short and cutting his life short I fear. 

                            blessd4x
                            Participant

                              I agree. I talk on deaf ears with him.  Selling himself short and cutting his life short I fear. 

                              blessd4x
                              Participant

                                I agree. I talk on deaf ears with him.  Selling himself short and cutting his life short I fear. 

                                blessd4x
                                Participant

                                  I agree with you. But my husband likes this Onc.  Wont see a specialist in Moffitt.  We've been seeing her on this for 18 months now.  Theres been times i dont think shes done enough etc.  But he wont change now.  She said the lymph node activity is causing his fatigue.  Does that sound right?

                                  Thank you everyone!

                                  R

                                  blessd4x
                                  Participant

                                    I agree with you. But my husband likes this Onc.  Wont see a specialist in Moffitt.  We've been seeing her on this for 18 months now.  Theres been times i dont think shes done enough etc.  But he wont change now.  She said the lymph node activity is causing his fatigue.  Does that sound right?

                                    Thank you everyone!

                                    R

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