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bkinman

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      bkinman
      Participant
        Seven days later still in hospital working on pain meds they can send me home with. rad Dr said it was the largest previous tumor he has seen ablations Done on and rarely does he see them just a day apart. Last couple days can’t get situated in bed. somewhat on chair. Usually jerk every 30 to an hour due to pain.
        bkinman
        Participant
          Seven days later still in hospital working on pain meds they can send me home with. rad Dr said it was the largest previous tumor he has seen ablations Done on and rarely does he see them just a day apart. Last couple days can’t get situated in bed. somewhat on chair. Usually jerk every 30 to an hour due to pain.
          bkinman
          Participant
            Seven days later still in hospital working on pain meds they can send me home with. rad Dr said it was the largest previous tumor he has seen ablations Done on and rarely does he see them just a day apart. Last couple days can’t get situated in bed. somewhat on chair. Usually jerk every 30 to an hour due to pain.
            bkinman
            Participant
              Since we finally got ins approval on MEK and Tafinlar together (today) and we just did the ablation and chemoembolization on my liver my Dr and i have decided to stay the course for now.
              bkinman
              Participant
                Since we finally got ins approval on MEK and Tafinlar together (today) and we just did the ablation and chemoembolization on my liver my Dr and i have decided to stay the course for now.
                bkinman
                Participant
                  Since we finally got ins approval on MEK and Tafinlar together (today) and we just did the ablation and chemoembolization on my liver my Dr and i have decided to stay the course for now.
                  bkinman
                  Participant
                    Thank you for this post. It clearly explains this battle. I just copied and sent it to my family. Also helps me feel better about decision I have to make in next couple weeks.
                    Good Bless- Becky
                    bkinman
                    Participant
                      Thank you for this post. It clearly explains this battle. I just copied and sent it to my family. Also helps me feel better about decision I have to make in next couple weeks.
                      Good Bless- Becky
                      bkinman
                      Participant
                        Thank you for this post. It clearly explains this battle. I just copied and sent it to my family. Also helps me feel better about decision I have to make in next couple weeks.
                        Good Bless- Becky
                        bkinman
                        Participant

                          Thanks Brian.

                          Met with Clinical Trial Dr today. Did not mention the ERK trial. He leaned toward me adding the MEK to the Taflinar which we have been trying to get insurance to approve.  They just denied the prior authorization requesting peer reveiw articles. They did the same thing prior to the FDA approving it as combo therapy.

                          I felt better after meeting with him. He is going to consult with Dr Papa concerning potential clinical trials/treatments before suggesting a treatment plan.

                          Scheduled to have chemoembolization Friday. He said it would not interfer with the clinical trial if I decided to go that way.

                           

                          Becky

                          bkinman
                          Participant

                            Thanks Brian.

                            Met with Clinical Trial Dr today. Did not mention the ERK trial. He leaned toward me adding the MEK to the Taflinar which we have been trying to get insurance to approve.  They just denied the prior authorization requesting peer reveiw articles. They did the same thing prior to the FDA approving it as combo therapy.

                            I felt better after meeting with him. He is going to consult with Dr Papa concerning potential clinical trials/treatments before suggesting a treatment plan.

                            Scheduled to have chemoembolization Friday. He said it would not interfer with the clinical trial if I decided to go that way.

                             

                            Becky

                            bkinman
                            Participant

                              Thanks Brian.

                              Met with Clinical Trial Dr today. Did not mention the ERK trial. He leaned toward me adding the MEK to the Taflinar which we have been trying to get insurance to approve.  They just denied the prior authorization requesting peer reveiw articles. They did the same thing prior to the FDA approving it as combo therapy.

                              I felt better after meeting with him. He is going to consult with Dr Papa concerning potential clinical trials/treatments before suggesting a treatment plan.

                              Scheduled to have chemoembolization Friday. He said it would not interfer with the clinical trial if I decided to go that way.

                               

                              Becky

                              bkinman
                              Participant
                                I have BCBS of AL. I have to go through speciality pharmacy, but Zelboraf, tafinlar and MEK have all been covered. I do know my employer is self insured. Don’t know if makes a difference.
                                bkinman
                                Participant
                                  I have BCBS of AL. I have to go through speciality pharmacy, but Zelboraf, tafinlar and MEK have all been covered. I do know my employer is self insured. Don’t know if makes a difference.
                                  bkinman
                                  Participant
                                    I have BCBS of AL. I have to go through speciality pharmacy, but Zelboraf, tafinlar and MEK have all been covered. I do know my employer is self insured. Don’t know if makes a difference.
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