Forum Replies Created
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- May 31, 2018 at 2:01 am
Hey jjk17. i'm also stage 3C and have just passed the 5 year NED mark! PET scan showed a mildy prominent submandibular lymph node on the right side of my neck but since I have no lymph nodes left on the left side of my neck, my doc at MSKCC is not to concerned as I have been fighting allergies and sinus infections all spring. Since no other activity seen anywhere else she hugged me and gave me my 5 year award and said re-scan in 3 months to get a "clean" report. Lymph nodes react as they should to all types of infections and viruses. If they were concerned they would have sent you for a biopsy and not wait 3 months.
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- May 12, 2018 at 11:44 am
Hello All:
PET/CT scans were good! One small lymph node in neck that will be evaluted again in 3 months that is most likely reactive due to the allergy and sinus issues I've been having. My doctor is not concerned but wants a "clean" report but she has agreed 5 years NED!
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- November 24, 2015 at 4:11 am
Stage 1B September 2012 with a left neck melanoma. SNB clear. Local recurrance May 2013 with left neck CLND. 64 nodes removed, 1 with macro and 2 small in-transits in same nodal basin-Stage 3C. Completed dendtritic cell vaccine trial at MSKCC. NED for 2-1/2 years!
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- November 24, 2015 at 4:11 am
Stage 1B September 2012 with a left neck melanoma. SNB clear. Local recurrance May 2013 with left neck CLND. 64 nodes removed, 1 with macro and 2 small in-transits in same nodal basin-Stage 3C. Completed dendtritic cell vaccine trial at MSKCC. NED for 2-1/2 years!
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- November 24, 2015 at 4:11 am
Stage 1B September 2012 with a left neck melanoma. SNB clear. Local recurrance May 2013 with left neck CLND. 64 nodes removed, 1 with macro and 2 small in-transits in same nodal basin-Stage 3C. Completed dendtritic cell vaccine trial at MSKCC. NED for 2-1/2 years!
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- September 9, 2015 at 12:35 am
I have seen that term before in some of my past CT reports prior to melanoma. Basically means not the same as the other areas of the liver. In my case, nothing to do with melanoma but instead I have a "fatty liver" which is common. Hopefully that is the case for you. Have they ordered an MRI? This is the best imaging test for the liver.
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- September 9, 2015 at 12:35 am
I have seen that term before in some of my past CT reports prior to melanoma. Basically means not the same as the other areas of the liver. In my case, nothing to do with melanoma but instead I have a "fatty liver" which is common. Hopefully that is the case for you. Have they ordered an MRI? This is the best imaging test for the liver.
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- September 9, 2015 at 12:35 am
I have seen that term before in some of my past CT reports prior to melanoma. Basically means not the same as the other areas of the liver. In my case, nothing to do with melanoma but instead I have a "fatty liver" which is common. Hopefully that is the case for you. Have they ordered an MRI? This is the best imaging test for the liver.
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- August 4, 2015 at 1:33 am
Hey Mark:
Sorry to hear about your recurrance. I had a 1.3mm melanoma removed from my left neck alsong with a sentinal node down around my adam's apple in Oct. 2012. Margins clear, sntinal node clear so Stage 1B. 8 weeks later a lump suddenly appeared on my neck under my left ear. 2 benign needle biopsies and an ultrasound and then in May 2013 a PET/CT which lit up in that area. Had a left neck dissection and left full parotidectomy at MSKCC in NYC. 68 lymph nodes removed, 1 with macro plus 2 small in-transit mets. Had some facial issues for about 6 months but now no issues just no sensation on lower part of ear and lobe plus some loss of sensation along jawline on cheek. Did a dendritic cell vaccine trial at MSKCC and so far NED for 2 years+. Next scans teh end of this month. Good Luck to you!
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- August 4, 2015 at 1:33 am
Hey Mark:
Sorry to hear about your recurrance. I had a 1.3mm melanoma removed from my left neck alsong with a sentinal node down around my adam's apple in Oct. 2012. Margins clear, sntinal node clear so Stage 1B. 8 weeks later a lump suddenly appeared on my neck under my left ear. 2 benign needle biopsies and an ultrasound and then in May 2013 a PET/CT which lit up in that area. Had a left neck dissection and left full parotidectomy at MSKCC in NYC. 68 lymph nodes removed, 1 with macro plus 2 small in-transit mets. Had some facial issues for about 6 months but now no issues just no sensation on lower part of ear and lobe plus some loss of sensation along jawline on cheek. Did a dendritic cell vaccine trial at MSKCC and so far NED for 2 years+. Next scans teh end of this month. Good Luck to you!
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- August 4, 2015 at 1:33 am
Hey Mark:
Sorry to hear about your recurrance. I had a 1.3mm melanoma removed from my left neck alsong with a sentinal node down around my adam's apple in Oct. 2012. Margins clear, sntinal node clear so Stage 1B. 8 weeks later a lump suddenly appeared on my neck under my left ear. 2 benign needle biopsies and an ultrasound and then in May 2013 a PET/CT which lit up in that area. Had a left neck dissection and left full parotidectomy at MSKCC in NYC. 68 lymph nodes removed, 1 with macro plus 2 small in-transit mets. Had some facial issues for about 6 months but now no issues just no sensation on lower part of ear and lobe plus some loss of sensation along jawline on cheek. Did a dendritic cell vaccine trial at MSKCC and so far NED for 2 years+. Next scans teh end of this month. Good Luck to you!
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