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Stage III…NED for 8 years now!
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Stage III…NED for 8 years now!

› Forums › General Melanoma Community › Stage III…NED for 8 years now!

  • Post
    • September 15, 2015 at 10:58 pm
    JakeinNY
    Participant

      I haven't been on our site for about 2 years, but I'm so happy to find out today that my PET/CT scan was negative. I'm now 8 years NED since my surgery performed by Dr. Dennis Kraus (thank you Dr. Kraus!) in New York. Although my surgery was done at Sloan Kettering, I am tremendously grateful to my oncologist, Dr. Anna Pavlick at NYU, for the fantastic advice, warmth, and general down-to-earthness she has always shown. I would tell anyone with melanoma to go to Dr. Pavlick at NYU. Her and her staff are the best and they strictly deal with melanoma. If you don't love dealing with Dr. Pavlick, you will not like dealing with any doctor! I thank God that I chose to go with her after my surgery back in 2007.

    Viewing 11 reply threads
    • Replies
        • September 15, 2015 at 11:59 pm
        aquamak
        Participant

          Awesome news and conratulations!  I just celebrated 2 years, 4 months (stage 3C).

          • September 15, 2015 at 11:59 pm
          aquamak
          Participant

            Awesome news and conratulations!  I just celebrated 2 years, 4 months (stage 3C).

              • September 16, 2015 at 7:19 am
              cavsnut
              Participant

                Congratulations! That's wonderful news…I'm also stage 3… Best of luck to your future health… 

                Craig

                • September 16, 2015 at 7:19 am
                cavsnut
                Participant

                  Congratulations! That's wonderful news…I'm also stage 3… Best of luck to your future health… 

                  Craig

                  • September 16, 2015 at 7:19 am
                  cavsnut
                  Participant

                    Congratulations! That's wonderful news…I'm also stage 3… Best of luck to your future health… 

                    Craig

                    • September 16, 2015 at 3:54 pm
                    JakeinNY
                    Participant

                      Thank You. Keep the faith and keep it up!

                      • September 16, 2015 at 3:54 pm
                      JakeinNY
                      Participant

                        Thank You. Keep the faith and keep it up!

                        • September 16, 2015 at 3:54 pm
                        JakeinNY
                        Participant

                          Thank You. Keep the faith and keep it up!

                        • September 15, 2015 at 11:59 pm
                        aquamak
                        Participant

                          Awesome news and conratulations!  I just celebrated 2 years, 4 months (stage 3C).

                          • September 16, 2015 at 9:57 am
                          stars
                          Participant

                            Celebrate! Great news, JakeinNY.

                            • September 16, 2015 at 9:57 am
                            stars
                            Participant

                              Celebrate! Great news, JakeinNY.

                              • September 16, 2015 at 9:57 am
                              stars
                              Participant

                                Celebrate! Great news, JakeinNY.

                                  • September 16, 2015 at 3:55 pm
                                  JakeinNY
                                  Participant

                                    Thank You

                                    • September 16, 2015 at 3:55 pm
                                    JakeinNY
                                    Participant

                                      Thank You

                                      • September 16, 2015 at 3:55 pm
                                      JakeinNY
                                      Participant

                                        Thank You

                                      • September 16, 2015 at 1:10 pm
                                      dentholla
                                      Participant

                                        Wonderful news!  Thank you for sharing – cheers!

                                        • September 16, 2015 at 1:10 pm
                                        dentholla
                                        Participant

                                          Wonderful news!  Thank you for sharing – cheers!

                                          • September 16, 2015 at 1:10 pm
                                          dentholla
                                          Participant

                                            Wonderful news!  Thank you for sharing – cheers!

                                              • September 16, 2015 at 3:55 pm
                                              JakeinNY
                                              Participant

                                                No problem….thank you!

                                                • September 16, 2015 at 3:55 pm
                                                JakeinNY
                                                Participant

                                                  No problem….thank you!

                                                  • September 16, 2015 at 3:55 pm
                                                  JakeinNY
                                                  Participant

                                                    No problem….thank you!

                                                  • September 16, 2015 at 1:23 pm
                                                  jenny22
                                                  Participant

                                                    Hi JakeinNY-

                                                    I am so happy to read your NED status after 8 years…I am guessing you were stage 3c? I also wanted to add that I had my first (and 2nd, and 3rd) surgeries at Sloan also, with Dr. Coit……but after my recurernce (I went from stage 1b to stage 3b)….I too chose Anna Pavlick as my oncologist…..I just completed a vaccine trial (in MAY) and of course HOPING I also remain NED….

                                                    I couldnt agree with you more about Dr. Pavlick….she is clearly an expert in the fied of Melanoma and all the  latest reaserach.  Additionally she is an incredibly compassionate and down to earth doctor….her staff is like none other…they are always there and available to answer questions and alleviate any fears or anxiety…Just an amazing practice, inclding Dr. Pavlick and her entire team. 

                                                    Congrats again on your 8 years of NED, may it continue forever!

                                                     

                                                    • September 16, 2015 at 1:23 pm
                                                    jenny22
                                                    Participant

                                                      Hi JakeinNY-

                                                      I am so happy to read your NED status after 8 years…I am guessing you were stage 3c? I also wanted to add that I had my first (and 2nd, and 3rd) surgeries at Sloan also, with Dr. Coit……but after my recurernce (I went from stage 1b to stage 3b)….I too chose Anna Pavlick as my oncologist…..I just completed a vaccine trial (in MAY) and of course HOPING I also remain NED….

                                                      I couldnt agree with you more about Dr. Pavlick….she is clearly an expert in the fied of Melanoma and all the  latest reaserach.  Additionally she is an incredibly compassionate and down to earth doctor….her staff is like none other…they are always there and available to answer questions and alleviate any fears or anxiety…Just an amazing practice, inclding Dr. Pavlick and her entire team. 

                                                      Congrats again on your 8 years of NED, may it continue forever!

                                                       

                                                        • September 16, 2015 at 3:54 pm
                                                        JakeinNY
                                                        Participant

                                                          Hi Jenny,

                                                          Thank you very much.

                                                          I am pretty sure that I was stage 3C. I had the radiation to the parotid and neck areas but then I just went very holistic….now I'm not as stringent but I still stay away from the worst things for the body….sugar and empty carbohydrates.

                                                          You are so right, Dr. Pavlick and her staff, including Nurse Practioners Rajni and Kathy, are so sweet, compassionate, etc…..I can't imagine that there is any better place to go for melanoma. For the past few years, I give big hugs to Dr. Pavlick and the NPs before I leave.

                                                          Best wishes and may your NED continue forever!

                                                           

                                                          • September 23, 2015 at 12:15 am
                                                          wasserd
                                                          Participant
                                                            Congrats Jake!

                                                            Another super grateful patient of Dr. Pavlick here. I can’t say enough good things about her and her team. They are all top-notch.

                                                            • September 23, 2015 at 12:15 am
                                                            wasserd
                                                            Participant
                                                              Congrats Jake!

                                                              Another super grateful patient of Dr. Pavlick here. I can’t say enough good things about her and her team. They are all top-notch.

                                                              • September 23, 2015 at 12:15 am
                                                              wasserd
                                                              Participant
                                                                Congrats Jake!

                                                                Another super grateful patient of Dr. Pavlick here. I can’t say enough good things about her and her team. They are all top-notch.

                                                                • November 19, 2015 at 2:03 am
                                                                jenny22
                                                                Participant

                                                                  HI JakeinNY-

                                                                  Thanks for the good wishes…..unfortunately i just had my 2nd recurrence….had almost made the 1 year mark when i felt something in my neck….right near the scar…..tiny, 5mm, subq….just had more surgery and due to see Anna Pavlick on monday…..seeing radiation oncs too as she is suggesting that i do radiation in the hopes of preventing any more local recurrences…..needless to say i am scared to death…..wondering what to do to prevent stage IV…

                                                                  Hoping pavlick has some reassuring words for me on modnay…..

                                                                  Radiation to the NECK…..scary??????

                                                                  hoping it wont be too bad and will keep me NED for a while.

                                                                   

                                                                  TKs, and best,

                                                                  jenny

                                                                   

                                                                   

                                                                  • November 19, 2015 at 2:03 am
                                                                  jenny22
                                                                  Participant

                                                                    HI JakeinNY-

                                                                    Thanks for the good wishes…..unfortunately i just had my 2nd recurrence….had almost made the 1 year mark when i felt something in my neck….right near the scar…..tiny, 5mm, subq….just had more surgery and due to see Anna Pavlick on monday…..seeing radiation oncs too as she is suggesting that i do radiation in the hopes of preventing any more local recurrences…..needless to say i am scared to death…..wondering what to do to prevent stage IV…

                                                                    Hoping pavlick has some reassuring words for me on modnay…..

                                                                    Radiation to the NECK…..scary??????

                                                                    hoping it wont be too bad and will keep me NED for a while.

                                                                     

                                                                    TKs, and best,

                                                                    jenny

                                                                     

                                                                     

                                                                    • November 19, 2015 at 2:03 am
                                                                    jenny22
                                                                    Participant

                                                                      HI JakeinNY-

                                                                      Thanks for the good wishes…..unfortunately i just had my 2nd recurrence….had almost made the 1 year mark when i felt something in my neck….right near the scar…..tiny, 5mm, subq….just had more surgery and due to see Anna Pavlick on monday…..seeing radiation oncs too as she is suggesting that i do radiation in the hopes of preventing any more local recurrences…..needless to say i am scared to death…..wondering what to do to prevent stage IV…

                                                                      Hoping pavlick has some reassuring words for me on modnay…..

                                                                      Radiation to the NECK…..scary??????

                                                                      hoping it wont be too bad and will keep me NED for a while.

                                                                       

                                                                      TKs, and best,

                                                                      jenny

                                                                       

                                                                       

                                                                      • September 16, 2015 at 3:54 pm
                                                                      JakeinNY
                                                                      Participant

                                                                        Hi Jenny,

                                                                        Thank you very much.

                                                                        I am pretty sure that I was stage 3C. I had the radiation to the parotid and neck areas but then I just went very holistic….now I'm not as stringent but I still stay away from the worst things for the body….sugar and empty carbohydrates.

                                                                        You are so right, Dr. Pavlick and her staff, including Nurse Practioners Rajni and Kathy, are so sweet, compassionate, etc…..I can't imagine that there is any better place to go for melanoma. For the past few years, I give big hugs to Dr. Pavlick and the NPs before I leave.

                                                                        Best wishes and may your NED continue forever!

                                                                         

                                                                        • September 16, 2015 at 3:54 pm
                                                                        JakeinNY
                                                                        Participant

                                                                          Hi Jenny,

                                                                          Thank you very much.

                                                                          I am pretty sure that I was stage 3C. I had the radiation to the parotid and neck areas but then I just went very holistic….now I'm not as stringent but I still stay away from the worst things for the body….sugar and empty carbohydrates.

                                                                          You are so right, Dr. Pavlick and her staff, including Nurse Practioners Rajni and Kathy, are so sweet, compassionate, etc…..I can't imagine that there is any better place to go for melanoma. For the past few years, I give big hugs to Dr. Pavlick and the NPs before I leave.

                                                                          Best wishes and may your NED continue forever!

                                                                           

                                                                        • September 16, 2015 at 1:23 pm
                                                                        jenny22
                                                                        Participant

                                                                          Hi JakeinNY-

                                                                          I am so happy to read your NED status after 8 years…I am guessing you were stage 3c? I also wanted to add that I had my first (and 2nd, and 3rd) surgeries at Sloan also, with Dr. Coit……but after my recurernce (I went from stage 1b to stage 3b)….I too chose Anna Pavlick as my oncologist…..I just completed a vaccine trial (in MAY) and of course HOPING I also remain NED….

                                                                          I couldnt agree with you more about Dr. Pavlick….she is clearly an expert in the fied of Melanoma and all the  latest reaserach.  Additionally she is an incredibly compassionate and down to earth doctor….her staff is like none other…they are always there and available to answer questions and alleviate any fears or anxiety…Just an amazing practice, inclding Dr. Pavlick and her entire team. 

                                                                          Congrats again on your 8 years of NED, may it continue forever!

                                                                           

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