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aldakota22
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aldakota22

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      • February 12, 2014 at 5:01 pm
      aldakota22
      Participant

        Praying that this is only year 1 of a lifetime of NED.You will Beat the Beast.   aldakota22

        • February 12, 2014 at 5:01 pm
        aldakota22
        Participant

          Praying that this is only year 1 of a lifetime of NED.You will Beat the Beast.   aldakota22

          • February 12, 2014 at 5:01 pm
          aldakota22
          Participant

            Praying that this is only year 1 of a lifetime of NED.You will Beat the Beast.   aldakota22

            • February 5, 2014 at 6:14 pm
            aldakota22
            Participant

              FYI  I was on "Z"   as soon as it was appoved and the drug effectively worked for a little over 20 months. The side affects I did have were all tolerable.None really lasted the whole 20 months.Now I am on it replacement   Tafinlar and the MEK inhibitor.The combination seems to be working .Remember each fighter here is different .You may be a lucky one like Dick.Prayers sent your wayBeat the Beast.     aldakota

              • February 5, 2014 at 6:14 pm
              aldakota22
              Participant

                FYI  I was on "Z"   as soon as it was appoved and the drug effectively worked for a little over 20 months. The side affects I did have were all tolerable.None really lasted the whole 20 months.Now I am on it replacement   Tafinlar and the MEK inhibitor.The combination seems to be working .Remember each fighter here is different .You may be a lucky one like Dick.Prayers sent your wayBeat the Beast.     aldakota

                • February 5, 2014 at 6:14 pm
                aldakota22
                Participant

                  FYI  I was on "Z"   as soon as it was appoved and the drug effectively worked for a little over 20 months. The side affects I did have were all tolerable.None really lasted the whole 20 months.Now I am on it replacement   Tafinlar and the MEK inhibitor.The combination seems to be working .Remember each fighter here is different .You may be a lucky one like Dick.Prayers sent your wayBeat the Beast.     aldakota

                  • January 21, 2014 at 7:46 pm
                  aldakota22
                  Participant

                    Prayers sent to Kevin and family.Keep your PMA (positive mind attitude) as high as posible.Like you say many live productive lives with a stage 4 diagnosis.Praying ond day soon medcine will kick mels ass very soon.   aldakota

                    • January 21, 2014 at 7:46 pm
                    aldakota22
                    Participant

                      Prayers sent to Kevin and family.Keep your PMA (positive mind attitude) as high as posible.Like you say many live productive lives with a stage 4 diagnosis.Praying ond day soon medcine will kick mels ass very soon.   aldakota

                      • January 21, 2014 at 7:46 pm
                      aldakota22
                      Participant

                        Prayers sent to Kevin and family.Keep your PMA (positive mind attitude) as high as posible.Like you say many live productive lives with a stage 4 diagnosis.Praying ond day soon medcine will kick mels ass very soon.   aldakota

                        • January 30, 2014 at 2:51 am
                        aldakota22
                        Participant

                          Dear Snickers 60, I say  in no way meant to ignore  you or anyone here.Will fill you in on doctors report.Just trying to sort things out.Beleive me so much to sort through.So Happy Wayne is doing so good.Find all the people here as a great means of support as I fight this mess.Love all you fellow fighters and care givers.Always in my prayers.Will update tommorrow Thursday. Beat  the Beast.     Aldakota22

                          • January 30, 2014 at 2:51 am
                          aldakota22
                          Participant

                            Dear Snickers 60, I say  in no way meant to ignore  you or anyone here.Will fill you in on doctors report.Just trying to sort things out.Beleive me so much to sort through.So Happy Wayne is doing so good.Find all the people here as a great means of support as I fight this mess.Love all you fellow fighters and care givers.Always in my prayers.Will update tommorrow Thursday. Beat  the Beast.     Aldakota22

                            • January 30, 2014 at 2:51 am
                            aldakota22
                            Participant

                              Dear Snickers 60, I say  in no way meant to ignore  you or anyone here.Will fill you in on doctors report.Just trying to sort things out.Beleive me so much to sort through.So Happy Wayne is doing so good.Find all the people here as a great means of support as I fight this mess.Love all you fellow fighters and care givers.Always in my prayers.Will update tommorrow Thursday. Beat  the Beast.     Aldakota22

                              • January 28, 2014 at 7:08 pm
                              aldakota22
                              Participant

                                Thanks Dick. Always consider you as the man to strive to be like.Did have a good run with "Z" for about 20 months before brain issues kicked in starting with tumors that was gamma knifed.Then this other mess took over.Still keeping my PMA and faith high.My visit with Dr Pavlick is tommorrow at 2:30 PM.Love to meet the "Z" Poster boy.Prayers you will be the part of the answer to cure this beast.Long healthy and happy life Dick.Fellow fighter & freind …aldakota

                                • January 28, 2014 at 7:08 pm
                                aldakota22
                                Participant

                                  Thanks Dick. Always consider you as the man to strive to be like.Did have a good run with "Z" for about 20 months before brain issues kicked in starting with tumors that was gamma knifed.Then this other mess took over.Still keeping my PMA and faith high.My visit with Dr Pavlick is tommorrow at 2:30 PM.Love to meet the "Z" Poster boy.Prayers you will be the part of the answer to cure this beast.Long healthy and happy life Dick.Fellow fighter & freind …aldakota

                                  • January 28, 2014 at 7:08 pm
                                  aldakota22
                                  Participant

                                    Thanks Dick. Always consider you as the man to strive to be like.Did have a good run with "Z" for about 20 months before brain issues kicked in starting with tumors that was gamma knifed.Then this other mess took over.Still keeping my PMA and faith high.My visit with Dr Pavlick is tommorrow at 2:30 PM.Love to meet the "Z" Poster boy.Prayers you will be the part of the answer to cure this beast.Long healthy and happy life Dick.Fellow fighter & freind …aldakota

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