zelobraf update
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zelobraf update

› Forums › General Melanoma Community › zelobraf update

  • Post
    • July 6, 2012 at 1:54 am
    bikerwife
    Participant
    Lynn started this medicine 4 pills in morning and 4 pills in the afternoon last Monday so we went for his one week checkup Tuesday. Dr. Shirai was totally overwhelmed he said I told you thuis would happen. The tumors on his body that you can see are visible disappearing. The ones that were the size of marbles are size of peas the one that was golf ball size is now marble size. They all are shrinking.

    The blood was at 400 has dropped to 279.

    The only side effect so far is a small rash in beard and around nose. Dr gave cream for this. Having bllodwork regular at home go back on 18 for another brain scan. Will have ct. Scan of chest and kidney in five weeks and hopefully that will show shrinkage also.

    Our dr was so happy he hugged lynns neck and it made us feel so good. Having a caring dr is one of the main things u need in this fight.

    May God bless each of you with strength and courage to continue on each and everyday.

Viewing 11 reply threads
  • Replies
      • July 6, 2012 at 3:59 am
      gabsound
      Participant
      So happy to hear your great news!! Yeah Lynn. I hope he has a long term response to this drug.

      Congrats,

      Julie in Las Vegas

      • July 6, 2012 at 3:59 am
      gabsound
      Participant
      So happy to hear your great news!! Yeah Lynn. I hope he has a long term response to this drug.

      Congrats,

      Julie in Las Vegas

      • July 6, 2012 at 3:59 am
      gabsound
      Participant
      So happy to hear your great news!! Yeah Lynn. I hope he has a long term response to this drug.

      Congrats,

      Julie in Las Vegas

      • July 6, 2012 at 1:43 pm
      aldakota22
      Participant

      Great that Lynn is responding so well to "Z".It truly is a miracle drug for us.Pray it works forever. Will start my 10TH month on it next week.Can live with the side effects which vary from patient to patient. Even then it varies thruout useage.  All the best.  Al

      • July 6, 2012 at 1:43 pm
      aldakota22
      Participant

      Great that Lynn is responding so well to "Z".It truly is a miracle drug for us.Pray it works forever. Will start my 10TH month on it next week.Can live with the side effects which vary from patient to patient. Even then it varies thruout useage.  All the best.  Al

        • July 8, 2012 at 7:56 pm
        NYKaren
        Participant

        Great news.  I'm so glad that Lynn is doing so well on zelobraf.  I have wished many times that I were Braf+!  

        Keep up the great response, Lynn!

        take care,

        karen

        • July 8, 2012 at 7:56 pm
        NYKaren
        Participant

        Great news.  I'm so glad that Lynn is doing so well on zelobraf.  I have wished many times that I were Braf+!  

        Keep up the great response, Lynn!

        take care,

        karen

        • July 8, 2012 at 7:56 pm
        NYKaren
        Participant

        Great news.  I'm so glad that Lynn is doing so well on zelobraf.  I have wished many times that I were Braf+!  

        Keep up the great response, Lynn!

        take care,

        karen

      • July 6, 2012 at 1:43 pm
      aldakota22
      Participant

      Great that Lynn is responding so well to "Z".It truly is a miracle drug for us.Pray it works forever. Will start my 10TH month on it next week.Can live with the side effects which vary from patient to patient. Even then it varies thruout useage.  All the best.  Al

      • July 9, 2012 at 10:37 am
      Richard_K
      Participant

      Great news, thanks for sharing.

      Dick

      • July 9, 2012 at 10:37 am
      Richard_K
      Participant

      Great news, thanks for sharing.

      Dick

      • July 9, 2012 at 10:37 am
      Richard_K
      Participant

      Great news, thanks for sharing.

      Dick

      • July 12, 2012 at 5:37 am
      H555
      Participant

      i'm glad to hear of Lynn's positive progress. I'm at month 4 and doing better each month. i had significant improvement during the 1st 2 months, with mild rash and wart problems, some nausea, some foot pain but so far this stuff is miraculous. God's blessings for continued progress. Ron

      • July 12, 2012 at 5:37 am
      H555
      Participant

      i'm glad to hear of Lynn's positive progress. I'm at month 4 and doing better each month. i had significant improvement during the 1st 2 months, with mild rash and wart problems, some nausea, some foot pain but so far this stuff is miraculous. God's blessings for continued progress. Ron

      • July 12, 2012 at 5:37 am
      H555
      Participant

      i'm glad to hear of Lynn's positive progress. I'm at month 4 and doing better each month. i had significant improvement during the 1st 2 months, with mild rash and wart problems, some nausea, some foot pain but so far this stuff is miraculous. God's blessings for continued progress. Ron

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