MRF-Logo2019-Horizontal-RGB
Zelboraf holiday is over
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Zelboraf holiday is over

› Forums › General Melanoma Community › Zelboraf holiday is over

  • Post
    • August 22, 2013 at 2:57 pm
    Richard_K
    Participant

      Last week I received good scan news but bad blood news.  My bilirubin was up and I was placed on a “holiday” from Zelboraf.  Yesterday I had blood retested locally and this morning I was told the bilirubin was back to normal, my “holiday” was over.  Whew!  Next week I will have completed 43 months on Zelboraf.

      Last week I received good scan news but bad blood news.  My bilirubin was up and I was placed on a “holiday” from Zelboraf.  Yesterday I had blood retested locally and this morning I was told the bilirubin was back to normal, my “holiday” was over.  Whew!  Next week I will have completed 43 months on Zelboraf.

    Viewing 10 reply threads
    • Replies
        • August 22, 2013 at 4:38 pm
        mary in Rhode Island
        Participant

          Hi …..I am so happy to see you doing so well.  I have had raised bilirubin for months …but never high enough to stop.  

          November 13( or there abouts)  will be 2 years for me. Next week is my monthly visit to Dana Farber…no pet or mri

          this month…..just blood ,ekg and Drs. visits….nice and easy!!!  Best wishes, mary

          • August 22, 2013 at 4:38 pm
          mary in Rhode Island
          Participant

            Hi …..I am so happy to see you doing so well.  I have had raised bilirubin for months …but never high enough to stop.  

            November 13( or there abouts)  will be 2 years for me. Next week is my monthly visit to Dana Farber…no pet or mri

            this month…..just blood ,ekg and Drs. visits….nice and easy!!!  Best wishes, mary

            • August 22, 2013 at 4:38 pm
            mary in Rhode Island
            Participant

              Hi …..I am so happy to see you doing so well.  I have had raised bilirubin for months …but never high enough to stop.  

              November 13( or there abouts)  will be 2 years for me. Next week is my monthly visit to Dana Farber…no pet or mri

              this month…..just blood ,ekg and Drs. visits….nice and easy!!!  Best wishes, mary

              • August 22, 2013 at 4:42 pm
              mary in Rhode Island
              Participant

                Oh my..I have to tell you I used you first name in my last msg. and had to remove it because i hit the"profanity" filter..ha ha

                • August 22, 2013 at 5:38 pm
                Richard_K
                Participant
                  Ha. Ran into that a while back. I no longer “sign” my posts.
                  • August 23, 2013 at 11:36 am
                  jmmm
                  Participant
                    Yeah…keep posting this good news! My husband has scans in a couple of weeks and it will be 23 months on Zelboraf. We’re praying for continued NED. You keep us optimistic that this medicine may work long term on some patients. He had a few months of elevated bilirubin, but now he has a slightly raised creatnin level and occasional elevated liver levels (but not enough to make him stop taking Zelboraf).
                    • August 23, 2013 at 11:36 am
                    jmmm
                    Participant
                      Yeah…keep posting this good news! My husband has scans in a couple of weeks and it will be 23 months on Zelboraf. We’re praying for continued NED. You keep us optimistic that this medicine may work long term on some patients. He had a few months of elevated bilirubin, but now he has a slightly raised creatnin level and occasional elevated liver levels (but not enough to make him stop taking Zelboraf).
                      • August 23, 2013 at 11:36 am
                      jmmm
                      Participant
                        Yeah…keep posting this good news! My husband has scans in a couple of weeks and it will be 23 months on Zelboraf. We’re praying for continued NED. You keep us optimistic that this medicine may work long term on some patients. He had a few months of elevated bilirubin, but now he has a slightly raised creatnin level and occasional elevated liver levels (but not enough to make him stop taking Zelboraf).
                        • August 25, 2013 at 1:33 am
                        Tina D
                        Participant

                          That is indeed good news! So glad you continue to do well and that the bili is back to normal. 43 months…AWESOME!!

                          Tina

                          • August 25, 2013 at 1:33 am
                          Tina D
                          Participant

                            That is indeed good news! So glad you continue to do well and that the bili is back to normal. 43 months…AWESOME!!

                            Tina

                            • August 25, 2013 at 1:33 am
                            Tina D
                            Participant

                              That is indeed good news! So glad you continue to do well and that the bili is back to normal. 43 months…AWESOME!!

                              Tina

                              • August 22, 2013 at 4:42 pm
                              mary in Rhode Island
                              Participant

                                Oh my..I have to tell you I used you first name in my last msg. and had to remove it because i hit the"profanity" filter..ha ha

                                • August 22, 2013 at 4:42 pm
                                mary in Rhode Island
                                Participant

                                  Oh my..I have to tell you I used you first name in my last msg. and had to remove it because i hit the"profanity" filter..ha ha

                                  • August 22, 2013 at 5:38 pm
                                  Richard_K
                                  Participant
                                    Ha. Ran into that a while back. I no longer “sign” my posts.
                                    • August 22, 2013 at 5:38 pm
                                    Richard_K
                                    Participant
                                      Ha. Ran into that a while back. I no longer “sign” my posts.
                                  Viewing 10 reply threads
                                  • You must be logged in to reply to this topic.
                                  About the MRF Patient Forum

                                  The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                  The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                  Popular Topics