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Zelboraf
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Zelboraf

› Forums › General Melanoma Community › Zelboraf

  • Post
    • July 3, 2013 at 1:06 am
    mclaus23
    Participant
      Hello 🙂
      My father has been battling stage IV melanoma for several years.
      He was treated with Ipi and most recently the clinical trial drug PD-1.
      He had a very rare side effect on the PD-1 and can no longer take it.
      He has 2 masses on his adrenal glands which grew 1/2 inch since he stopped pd-1 which was about 4 weeks ago.
      He had a total of 5 infusions.
      The adrenal tumors were there with Ipi so he’s pretty stable at this time.
      I hope the Zelboraf will work for my father.
      I would love to hear any feedback from anyone on this drug, side effects, current prognosis!!

      Thanks so much in advance!!!!

      Margaret

    Viewing 2 reply threads
    • Replies
        • July 3, 2013 at 2:33 pm
        killmel
        Participant
          Hi Margaret
           
          I am sorry to hear your father had to get off pd1 because of a side effect?
           
          What was the RARE severe side effect that your father had on PD1? Was you father on Merck or BMS  PD1?
           
          I am sending positive thoughts to your father that Zelboraf will work. 
          • July 3, 2013 at 2:33 pm
          killmel
          Participant
            Hi Margaret
             
            I am sorry to hear your father had to get off pd1 because of a side effect?
             
            What was the RARE severe side effect that your father had on PD1? Was you father on Merck or BMS  PD1?
             
            I am sending positive thoughts to your father that Zelboraf will work. 
            • July 3, 2013 at 2:33 pm
            killmel
            Participant
              Hi Margaret
               
              I am sorry to hear your father had to get off pd1 because of a side effect?
               
              What was the RARE severe side effect that your father had on PD1? Was you father on Merck or BMS  PD1?
               
              I am sending positive thoughts to your father that Zelboraf will work. 
              • July 3, 2013 at 2:55 pm
              mclaus23
              Participant
                Thank you!
                He had acute joint pain.. His wrists, knees, ankles were so swollen and tender he couldn’t even touch them.
                He didn’t get up for days.
                He was on the bms pd-1.
                • July 3, 2013 at 2:55 pm
                mclaus23
                Participant
                  Thank you!
                  He had acute joint pain.. His wrists, knees, ankles were so swollen and tender he couldn’t even touch them.
                  He didn’t get up for days.
                  He was on the bms pd-1.
                  • July 3, 2013 at 2:55 pm
                  mclaus23
                  Participant
                    Thank you!
                    He had acute joint pain.. His wrists, knees, ankles were so swollen and tender he couldn’t even touch them.
                    He didn’t get up for days.
                    He was on the bms pd-1.
                    • July 3, 2013 at 3:00 pm
                    mclaus23
                    Participant
                      Thank you!
                      He had acute joint pain.. His wrists, knees, ankles were so swollen and tender he couldn’t even touch them.
                      He didn’t get up for days.
                      He was on the bms pd-1.
                      • July 3, 2013 at 3:00 pm
                      mclaus23
                      Participant
                        Thank you!
                        He had acute joint pain.. His wrists, knees, ankles were so swollen and tender he couldn’t even touch them.
                        He didn’t get up for days.
                        He was on the bms pd-1.
                        • July 3, 2013 at 3:00 pm
                        mclaus23
                        Participant
                          Thank you!
                          He had acute joint pain.. His wrists, knees, ankles were so swollen and tender he couldn’t even touch them.
                          He didn’t get up for days.
                          He was on the bms pd-1.
                          • July 7, 2013 at 2:49 am
                          awillett1991
                          Participant
                            You can check my profile to find my experience w Zel. There are current studies trying to extend the usefulness for most people by way of intermittent dosing – not sure it’s clear yet what the best strategy is.

                            Good luck to you and your father, take the photo sensitivity very seriously. I would burn in the car with windows up unless I wore long sleeves.

                            • July 7, 2013 at 2:49 am
                            awillett1991
                            Participant
                              You can check my profile to find my experience w Zel. There are current studies trying to extend the usefulness for most people by way of intermittent dosing – not sure it’s clear yet what the best strategy is.

                              Good luck to you and your father, take the photo sensitivity very seriously. I would burn in the car with windows up unless I wore long sleeves.

                              • July 7, 2013 at 2:49 am
                              awillett1991
                              Participant
                                You can check my profile to find my experience w Zel. There are current studies trying to extend the usefulness for most people by way of intermittent dosing – not sure it’s clear yet what the best strategy is.

                                Good luck to you and your father, take the photo sensitivity very seriously. I would burn in the car with windows up unless I wore long sleeves.

                            Viewing 2 reply threads
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