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Yearly update (for early stagers, mainly). 19 years NED!

Forums General Melanoma Community Yearly update (for early stagers, mainly). 19 years NED!

  • Post
    Janner
    Participant

    In April 1992, I was diagnosed with a .58mm lesion.  (Stage IB under today's staging system).  Pre-internet days and no books on melanoma at my library.  It was incredibly difficult to find anything in print, and what was written was incredibly negative.  Mostly geared toward higher stages and low survival rates.  The internet and sites like this have become an incredible tool if you don't let them freak you out.  19 years later (and with 2 more primaries in 2000 and 2001), I'm still stage IB.

    In April 1992, I was diagnosed with a .58mm lesion.  (Stage IB under today's staging system).  Pre-internet days and no books on melanoma at my library.  It was incredibly difficult to find anything in print, and what was written was incredibly negative.  Mostly geared toward higher stages and low survival rates.  The internet and sites like this have become an incredible tool if you don't let them freak you out.  19 years later (and with 2 more primaries in 2000 and 2001), I'm still stage IB.

    This place can be scary for the newly diagnosed – especially those who are early stage.  Most stage 0 or 1's move on and don't stay to post here as their anxiety wanes.  So I'm posting as one of those long time stage I people who is still stage I after MANY years.  Heck, it's hard to remember my life without melanoma.

    Best wishes to all,

    Janner

     

    1992 – ..58mm, Clark Level II, 1 mitosis

    2000 – in situ

    2001 – .88mm, Clark Level III, 1 mitosis

    Tested positive for melanoma genetic defect, CDKN2A

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  • Replies
      Hawaii Bob
      Participant

      Congratulations Janner !

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      Hawaii Bob
      Participant

      Congratulations Janner !

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      lhaley
      Participant

      What a great number to celebrate!!   This is a good time to thank you for all of the info you have been able to give others!

      Congratulations,

      Linda

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      lhaley
      Participant

      What a great number to celebrate!!   This is a good time to thank you for all of the info you have been able to give others!

      Congratulations,

      Linda

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      FormerCaregiver
      Participant

      19 years NED is an amazing achievement!

      I feel that the shallow depth of each lesion, and your wise decision to
      promptly seek competent medical attention each time has kept you
      healthy. So many patients delay seeing a doctor and then they find that a
      suspicious lesion has become a very serious problem.

      If only all people would realise that a few millimetres (depth of primary)
      can mean the difference between being ok and having to face a

      desperate battle against an aggressive cancer.

      All the best,

      Frank from Australia
       

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      FormerCaregiver
      Participant

      19 years NED is an amazing achievement!

      I feel that the shallow depth of each lesion, and your wise decision to
      promptly seek competent medical attention each time has kept you
      healthy. So many patients delay seeing a doctor and then they find that a
      suspicious lesion has become a very serious problem.

      If only all people would realise that a few millimetres (depth of primary)
      can mean the difference between being ok and having to face a

      desperate battle against an aggressive cancer.

      All the best,

      Frank from Australia
       

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      triciad
      Participant

      Janner,

      Congratulations on such wonderful news!  Most of all, thank you for all of the knowledge that you share with us each and every day.  It's amazing how much you know about this dreadful disease.  Thanks for sticking around here when many in your stage would not.

      Here's to many more decades of stage 1!!!

      Tricia

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      triciad
      Participant

      Janner,

      Congratulations on such wonderful news!  Most of all, thank you for all of the knowledge that you share with us each and every day.  It's amazing how much you know about this dreadful disease.  Thanks for sticking around here when many in your stage would not.

      Here's to many more decades of stage 1!!!

      Tricia

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      DebbieH
      Participant

      Congratulations Jan!  Your anniversary should make the stage 1 people very hopeful about their future as well!  Here's to NED forever for you.

      Deb

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      DebbieH
      Participant

      Congratulations Jan!  Your anniversary should make the stage 1 people very hopeful about their future as well!  Here's to NED forever for you.

      Deb

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      ChrisB
      Participant

      Congrats Jan!! 

      Best wishes for a lifetime of NED.

       

      Chris

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      ChrisB
      Participant

      Congrats Jan!! 

      Best wishes for a lifetime of NED.

       

      Chris

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      Kimmer
      Participant

      Jan,

      You give an amazing amount of time and energy to help people.  I will always be grateful to you for helping ease my fears back in 2004 when I was first diagnosed.  You do that for everyone, with practical ease and a caring voice.

      19 years is a long time…many thanks for sticking around, My Friend.

      Take good care, k.

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      Kimmer
      Participant

      Jan,

      You give an amazing amount of time and energy to help people.  I will always be grateful to you for helping ease my fears back in 2004 when I was first diagnosed.  You do that for everyone, with practical ease and a caring voice.

      19 years is a long time…many thanks for sticking around, My Friend.

      Take good care, k.

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      Carol Taylor
      Participant

      Wonderful news and happy 19th!  I haven't "known" you long, but I asked when I first read one of your posts if you're a doctor and you said "no."  I think you deserve an honorary doctorate…they are bestowed for generous contributions and you sure have made and continue to make generous contributions to us all every day.

      Here's to your 20th, Dr. Janner.

      Grace, peace, and many thanks,

      Carol

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      Carol Taylor
      Participant

      Wonderful news and happy 19th!  I haven't "known" you long, but I asked when I first read one of your posts if you're a doctor and you said "no."  I think you deserve an honorary doctorate…they are bestowed for generous contributions and you sure have made and continue to make generous contributions to us all every day.

      Here's to your 20th, Dr. Janner.

      Grace, peace, and many thanks,

      Carol

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      King
      Participant

      Congratulations, Janner!  I'm so happy for you.  Thank you  SO much for all that you contribute to melanoma education.  Your knowledge is awesome.

       

      Stay Strong
      King

      Stage IV  7/05 Liver mets

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      King
      Participant

      Congratulations, Janner!  I'm so happy for you.  Thank you  SO much for all that you contribute to melanoma education.  Your knowledge is awesome.

       

      Stay Strong
      King

      Stage IV  7/05 Liver mets

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      dian in spokane
      Participant

      Girl!~Congrats on the Nedversary! And thank you for your continued commitment to this site, and to helping all of us melanoma patients, of every stage, understand this disease and it's particulars.

      Even for higher stage patients, you have a way of cutting through the medical terminology and making things more understandable. And that is in valuable.

      thank you!

      Dian

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        Vermont_Donna
        Participant

        Dear Janner,

          Congratulations on such wonderful news. You are a wonderfully knowledgeable and compassionate woman, who is a Godsend to people on this MPIP board. Thanks for keeping on coming back, daily, and your wise posts. This place wouldnt be the same without you.

        Vermont_Donna, stage 3a

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        Vermont_Donna
        Participant

        Dear Janner,

          Congratulations on such wonderful news. You are a wonderfully knowledgeable and compassionate woman, who is a Godsend to people on this MPIP board. Thanks for keeping on coming back, daily, and your wise posts. This place wouldnt be the same without you.

        Vermont_Donna, stage 3a

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      dian in spokane
      Participant

      Girl!~Congrats on the Nedversary! And thank you for your continued commitment to this site, and to helping all of us melanoma patients, of every stage, understand this disease and it's particulars.

      Even for higher stage patients, you have a way of cutting through the medical terminology and making things more understandable. And that is in valuable.

      thank you!

      Dian

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      washoegal
      Participant

      Congratulations!  And thanks for all that you give to the folks on the board.  You are such a valuable asset, MRF should put you on the payroll!

      Mary

      Stage 3

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        Janner
        Participant

        Thanks, All!  And thanks, Mary – I wish I was on the payroll since I'm out of work at the moment, lol!

        Janner

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        Janner
        Participant

        Thanks, All!  And thanks, Mary – I wish I was on the payroll since I'm out of work at the moment, lol!

        Janner

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      washoegal
      Participant

      Congratulations!  And thanks for all that you give to the folks on the board.  You are such a valuable asset, MRF should put you on the payroll!

      Mary

      Stage 3

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      Carver
      Participant

      Wooohoooo! Jan I didn't know you had posted this or I would have replied sooner. Someone told me about it so I just wanted to add my voice and let you know how happy I am that you continue to be such a great support on this board and are N.E.D. I am terrible about not checking the MPIP anymore although I think about everyone and LOVE good news. Cheers, Carver

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      Carver
      Participant

      Wooohoooo! Jan I didn't know you had posted this or I would have replied sooner. Someone told me about it so I just wanted to add my voice and let you know how happy I am that you continue to be such a great support on this board and are N.E.D. I am terrible about not checking the MPIP anymore although I think about everyone and LOVE good news. Cheers, Carver

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      ValinMtl
      Participant

      Congratulations on 19 years Janner!  You are such an integral part of this bulletin board, when I see your name, you can always be sure I'm reading what you have written. Your sound and well-researched advice always has been and continues to be appreciated.  Please stay on board here for at least another 19 years! You are so needed.  Val xx

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      ValinMtl
      Participant

      Congratulations on 19 years Janner!  You are such an integral part of this bulletin board, when I see your name, you can always be sure I'm reading what you have written. Your sound and well-researched advice always has been and continues to be appreciated.  Please stay on board here for at least another 19 years! You are so needed.  Val xx

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      CKasper
      Participant

      Congratulations!!!

       

      Our numbers are growing.  First diagnosed in 1984 and it hasn't been an easy road but I'm still here.  27 years.

       

      C

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        CKasper
        Participant

        Forgot to tell you Stage IIIB

         

        C

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        CKasper
        Participant

        Forgot to tell you Stage IIIB

         

        C

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      CKasper
      Participant

      Congratulations!!!

       

      Our numbers are growing.  First diagnosed in 1984 and it hasn't been an easy road but I'm still here.  27 years.

       

      C

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