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WBR improvements

Forums General Melanoma Community WBR improvements

  • Post

    I have been so out of it for the past month.  bedridden, throwing up, double vision, siatica nerve in bsck snd neck with seizures…. 

    Anxious for changes!  This week everyday there have been imptovments.  Today I sat at the dinner table with my family!  a major triumph!

    MRI showed radiation it has shrunk the 2 large tumors. No new growth on the chest tumors from before.   Now we wait for a month and see if more it dies, ince I am seeing healthy improvements now.   (Last 4 days I have seen improvements with my left side!)

    I have been so out of it for the past month.  bedridden, throwing up, double vision, siatica nerve in bsck snd neck with seizures…. 

    Anxious for changes!  This week everyday there have been imptovments.  Today I sat at the dinner table with my family!  a major triumph!

    MRI showed radiation it has shrunk the 2 large tumors. No new growth on the chest tumors from before.   Now we wait for a month and see if more it dies, ince I am seeing healthy improvements now.   (Last 4 days I have seen improvements with my left side!)

     Today has been another successful day!  Whoa!  A trip in the car to the doctors appt, sat at the dinner table for the first time in a month with my family; and George, Dad, and Lisa, along with our friend Alwyn helping interpret a tour of the Lukas Klinik and a Hospic im Parc facility in Arlesheim (all just trying to learn about options… but after today’s news not necessary for awhile.

     Today’s’ plan is that we will wait one month, stay on the Braf, reduce steroids, start the Linac (STS radiation), wait for more shrinking… then try the Iplimumab ( Yervoy).  Lots of investigation still to do…

     

     

      

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  • Replies
      lhaley
      Participant

        So nice to hear good news from you! 

        Linda

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        lhaley
        Participant

          So nice to hear good news from you! 

          Linda

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          Cate
          Participant

            Glad to hear you are improving!  Take care and sending good thoughts your way.

            Cate

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            Cate
            Participant

              Glad to hear you are improving!  Take care and sending good thoughts your way.

              Cate

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              Phil S
              Participant

                Great news!! So glad to hear that you are feeling better and stronger with each day.  Enjoy your family and all the wonderful small moments of the day, like a nice dinner together.  I have been following your story on your caring bridge page, and so admire your fight against this disease.  It seems like you have a wonderful, loving, and supportive family.  God Bless!!  Valerie (Phil's wife)

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                Phil S
                Participant

                  Great news!! So glad to hear that you are feeling better and stronger with each day.  Enjoy your family and all the wonderful small moments of the day, like a nice dinner together.  I have been following your story on your caring bridge page, and so admire your fight against this disease.  It seems like you have a wonderful, loving, and supportive family.  God Bless!!  Valerie (Phil's wife)

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                  Kim K
                  Participant
                    I am so glad you are improving. It really sucked to hear about your mets and I am glad the radiation is working.

                    I am also glad you are able to spend good time with family. I was taken aback by your visiting hospice…. I understand but it was sad to read. NOT MY FELLOW lung met buddy!!!!

                    Hopefully the lung tumor is dead as well…..

                    Keep on kicking mel’s A$$ :)

                    Hugs from Hawaii,

                    Kim

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                    Kim K
                    Participant
                      I am so glad you are improving. It really sucked to hear about your mets and I am glad the radiation is working.

                      I am also glad you are able to spend good time with family. I was taken aback by your visiting hospice…. I understand but it was sad to read. NOT MY FELLOW lung met buddy!!!!

                      Hopefully the lung tumor is dead as well…..

                      Keep on kicking mel’s A$$ :)

                      Hugs from Hawaii,

                      Kim

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