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Victory over Kaiser! Approval for Participation in Phase Ib Trial BRAF/MEK

Forums General Melanoma Community Victory over Kaiser! Approval for Participation in Phase Ib Trial BRAF/MEK

  • Post
    Eileen L
    Participant

    Just got word this morning that Kaiser has approved my going to UCSF to participate in the BRAF/MEK clinical trial!  I realized that most of my "angst" could have been avoided if my oncologist supported my participation in the trial. Other Kaiser members on this board just got referred over with no problem because their Kaiser oncologist supported their decision to participate.

    Just got word this morning that Kaiser has approved my going to UCSF to participate in the BRAF/MEK clinical trial!  I realized that most of my "angst" could have been avoided if my oncologist supported my participation in the trial. Other Kaiser members on this board just got referred over with no problem because their Kaiser oncologist supported their decision to participate.

    Next steps for me are going through the pre-testing to qualify for the trial. I know I am BRAF positive from an earlier test, but because it was done before the current standards it needs to be repeated. Scans, lab work, eye exam, vist to dermatologist and oncologist all in the next week or so. I have two more weeks to finish the "wash out" of my previous therapy, Nexavar, so the pre-qualification stuff should be completed in time for me to start the trial on May 9 or so.

    Thanks to everyone on this board for your suggestions and encouragement. I will be looking for a new oncologist once the dust settles. I was going to change health plans but now I realize that if I just get the right doc I can manage, at least for now, within the Kaiser system. Since my care will be basically under Dr. Daud at UCSF during the trial, I will have access to a great melanoma specialist without having to change health plans right now.

    Keep on fighting!

    Eileen L

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  • Replies
      jim Breitfeller
      Participant

      Congrats!!!!

      Keep up the Fight and never give up!!!

       

      Jimmy B

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      jim Breitfeller
      Participant

      Congrats!!!!

      Keep up the Fight and never give up!!!

       

      Jimmy B

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      jim Breitfeller
      Participant

      Congrats!!!!

      Keep up the Fight and never give up!!!

       

      Jimmy B

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      rbruce
      Participant

      Congratulations! I see Dr. Daud for the Pd1 trial, you are in great hands.  

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      rbruce
      Participant

      Congratulations! I see Dr. Daud for the Pd1 trial, you are in great hands.  

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      rbruce
      Participant

      Congratulations! I see Dr. Daud for the Pd1 trial, you are in great hands.  

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        NYKaren
        Participant

        Good for you, Eileen.  I'm really happy for you.

        as is said on here so many times, we have to be our own advocates! 

        looking forward to following your progress in the trial,

        karen

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        NYKaren
        Participant

        Good for you, Eileen.  I'm really happy for you.

        as is said on here so many times, we have to be our own advocates! 

        looking forward to following your progress in the trial,

        karen

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        NYKaren
        Participant

        Good for you, Eileen.  I'm really happy for you.

        as is said on here so many times, we have to be our own advocates! 

        looking forward to following your progress in the trial,

        karen

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      Harry in Fair Oaks
      Participant

      Congrats!  You are very right re changing oncologists.  In my 15+ years of melanoma history, I had to "fire" a couple of Kaiser docs.  They were just too fatalistic for my taste, and were not supportive of the clinical trials I chose (I'm on my 3rd one – I guess you can call me a professional lab rat).  But Kaiser has some great docs….

      Best regards,

      Harry

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      Harry in Fair Oaks
      Participant

      Congrats!  You are very right re changing oncologists.  In my 15+ years of melanoma history, I had to "fire" a couple of Kaiser docs.  They were just too fatalistic for my taste, and were not supportive of the clinical trials I chose (I'm on my 3rd one – I guess you can call me a professional lab rat).  But Kaiser has some great docs….

      Best regards,

      Harry

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      Harry in Fair Oaks
      Participant

      Congrats!  You are very right re changing oncologists.  In my 15+ years of melanoma history, I had to "fire" a couple of Kaiser docs.  They were just too fatalistic for my taste, and were not supportive of the clinical trials I chose (I'm on my 3rd one – I guess you can call me a professional lab rat).  But Kaiser has some great docs….

      Best regards,

      Harry

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      King
      Participant

      Good for you, Eileen!  I'm really happy to read this.  And you know what I think of Dr. Daud. :)  Please keep us posted and I'm wishing you the very best.

      Stay Strong
      King

      Stage IV 7/05  Liver mets

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      King
      Participant

      Good for you, Eileen!  I'm really happy to read this.  And you know what I think of Dr. Daud. :)  Please keep us posted and I'm wishing you the very best.

      Stay Strong
      King

      Stage IV 7/05  Liver mets

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      King
      Participant

      Good for you, Eileen!  I'm really happy to read this.  And you know what I think of Dr. Daud. :)  Please keep us posted and I'm wishing you the very best.

      Stay Strong
      King

      Stage IV 7/05  Liver mets

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      Eileen L
      Participant

      Thanks to all for your encouraging words! I go for a round of pre-trial tests on Tuesday. Then the opthamology appointment the following Tuesday. Will hopefully start the trial drugs on May 10 or so! I am a trial virgin, this is my first. Very curious to see how it all goes. And very happy that Dr. Daud will be overseeing my care while I am in the trial.

      Eileen L

       

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        JerryfromFauq
        Participant

        Getr'r done, Gal.  Very glad it worked  out this way.

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        JerryfromFauq
        Participant

        Getr'r done, Gal.  Very glad it worked  out this way.

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        JerryfromFauq
        Participant

        Getr'r done, Gal.  Very glad it worked  out this way.

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      Eileen L
      Participant

      Thanks to all for your encouraging words! I go for a round of pre-trial tests on Tuesday. Then the opthamology appointment the following Tuesday. Will hopefully start the trial drugs on May 10 or so! I am a trial virgin, this is my first. Very curious to see how it all goes. And very happy that Dr. Daud will be overseeing my care while I am in the trial.

      Eileen L

       

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      Eileen L
      Participant

      Thanks to all for your encouraging words! I go for a round of pre-trial tests on Tuesday. Then the opthamology appointment the following Tuesday. Will hopefully start the trial drugs on May 10 or so! I am a trial virgin, this is my first. Very curious to see how it all goes. And very happy that Dr. Daud will be overseeing my care while I am in the trial.

      Eileen L

       

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