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Vascular Brain Tumor HELP!

Forums General Melanoma Community Vascular Brain Tumor HELP!

  • Post
    EricNJill
    Participant

    Tuesday we found out that Eric has a 3CM Vascular Tumor in the brain.  Eric's Oncologist in Dayton and in Pittsburgh both recommeded surgery because the tumor is new since September 8th's scan, it's vascular, and the size.  So we met with a neurosurgeon today and she said that she wants to do a PET and if his cancer has spread out from his leg and brain then she does not recommend treating the brain tumor.  She said she's never removed a Melanoma vascular tumor in the brain and that they were rare.  She said that he would never regain his peripheral visio

    Tuesday we found out that Eric has a 3CM Vascular Tumor in the brain.  Eric's Oncologist in Dayton and in Pittsburgh both recommeded surgery because the tumor is new since September 8th's scan, it's vascular, and the size.  So we met with a neurosurgeon today and she said that she wants to do a PET and if his cancer has spread out from his leg and brain then she does not recommend treating the brain tumor.  She said she's never removed a Melanoma vascular tumor in the brain and that they were rare.  She said that he would never regain his peripheral vision and may even lose all his vision on the right.  He will never drive again.  She also said that she is concerned about the risk of infection because the vasular tumors on his leg are seeping and she said that infection can spread to the brain easily when you are doing brain surgery.

    Has anyone ever had surgery on a Vascular Brain Tumor.  I am so worried and feel terribly helpless.

    JillNEric in OH

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  • Replies
      KatyWI
      Participant

      I was told that melanoma tumors in general were highly vascular.  Has that neurosurgeon seen melanoma before?  If not, maybe a second opinion is warranted.  And maybe even if so.  I would have a hard time getting on board with a neurosurgeon who's already prepared to give up.

      My brain mets were described as vascular, and we did cyberknife on them.  Surgery wasn't ruled out, but because of the relatively small size (biggest was 1.5 cm) cyberknife was deemed the better option.

      I know how it is to feel worried and helpless – take a little time and then pick up the fight again.

      Good luck,

      KatyWI

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      KatyWI
      Participant

      I was told that melanoma tumors in general were highly vascular.  Has that neurosurgeon seen melanoma before?  If not, maybe a second opinion is warranted.  And maybe even if so.  I would have a hard time getting on board with a neurosurgeon who's already prepared to give up.

      My brain mets were described as vascular, and we did cyberknife on them.  Surgery wasn't ruled out, but because of the relatively small size (biggest was 1.5 cm) cyberknife was deemed the better option.

      I know how it is to feel worried and helpless – take a little time and then pick up the fight again.

      Good luck,

      KatyWI

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      Cate
      Participant

      Hi Jill,  my dad had SRS on 3 tumors and then had surgery on two.  I believe that all melanoma brain tumors are vascular and they do worry about bleeding.  Are you working with a Melanoma specialist?    Cate

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      Cate
      Participant

      Hi Jill,  my dad had SRS on 3 tumors and then had surgery on two.  I believe that all melanoma brain tumors are vascular and they do worry about bleeding.  Are you working with a Melanoma specialist?    Cate

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      naty
      Participant

      I'm sorry Jill.  I don't know much as I'm new to all this, but giving you a cyber hug!  I know one oncologist we saw said melanoma brain tumors have a tendency to bleed.  But he was also a downer!  

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      naty
      Participant

      I'm sorry Jill.  I don't know much as I'm new to all this, but giving you a cyber hug!  I know one oncologist we saw said melanoma brain tumors have a tendency to bleed.  But he was also a downer!  

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      James from Sydney
      Participant

      Hi Jill

      Our son had a blackout one day and we rushed him to ER The tumor  appeared on the 1st Scan as about 8cm and the ER said he might not pull through, we then saw a Neuro Surgeon who viewed the Scan and immediatly said it was a bleeder and not to panic as he can get to it  It was a 1 hour Operation and he removed it with no problems. 

       The tumor was a 3rd of the size the 1st person thought, it was the bleeding that made it look bigger than it was. If the tumor is relatively close to the surface then a trap door style incision is made. Our son did not have any further recurrance in that area and was back to normal very quickly. 

       

      best wishes

      James

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      James from Sydney
      Participant

      Hi Jill

      Our son had a blackout one day and we rushed him to ER The tumor  appeared on the 1st Scan as about 8cm and the ER said he might not pull through, we then saw a Neuro Surgeon who viewed the Scan and immediatly said it was a bleeder and not to panic as he can get to it  It was a 1 hour Operation and he removed it with no problems. 

       The tumor was a 3rd of the size the 1st person thought, it was the bleeding that made it look bigger than it was. If the tumor is relatively close to the surface then a trap door style incision is made. Our son did not have any further recurrance in that area and was back to normal very quickly. 

       

      best wishes

      James

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      washoegal
      Participant

      Jill, get a referral to another surgeon and do it quickly!  Realize they need to tell you the risks but they also should give you some hope if there is some and this board is full of folks that have has vascular tumors removed successfully. 

       

      Good luck!

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      washoegal
      Participant

      Jill, get a referral to another surgeon and do it quickly!  Realize they need to tell you the risks but they also should give you some hope if there is some and this board is full of folks that have has vascular tumors removed successfully. 

       

      Good luck!

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      molly
      Participant

      Jill,

      I have thought of ya'll so much and have been anxiously awaiting Eric's results. I am so, so sorry for this news. I am praying that you will be able to get a surgeon willing to do the surgery. I know you must feel like yesterday wouldn't be soon enough. . Hopefully, your doctors and onc. can help get this moving quickly. I also hope they were able to do something to help Eric's nausea….that has got to be awful for him.

      Love and prayers,

      molly

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      molly
      Participant

      Jill,

      I have thought of ya'll so much and have been anxiously awaiting Eric's results. I am so, so sorry for this news. I am praying that you will be able to get a surgeon willing to do the surgery. I know you must feel like yesterday wouldn't be soon enough. . Hopefully, your doctors and onc. can help get this moving quickly. I also hope they were able to do something to help Eric's nausea….that has got to be awful for him.

      Love and prayers,

      molly

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      Brandi
      Participant

      Hi Jill,

      I don't have any words of wisdom for you except find a new neurosurgeon. I just want to tell you I am sorry about your news and I said a prayer for  you and Eric. I hope that all goes well for you. Keep yourself in the fight I know its difficult. give yourself time to digest and destress and then go at it full force. Good luck to you both.

      Best wishes.

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      Brandi
      Participant

      Hi Jill,

      I don't have any words of wisdom for you except find a new neurosurgeon. I just want to tell you I am sorry about your news and I said a prayer for  you and Eric. I hope that all goes well for you. Keep yourself in the fight I know its difficult. give yourself time to digest and destress and then go at it full force. Good luck to you both.

      Best wishes.

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