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Update – we’re calling it.

Forums General Melanoma Community Update – we’re calling it.

  • Post
    emilypen
    Participant

      Hi All,

      After  over 3 years of fighting this dreadful disease it's finally won the battle.

      Last Saturday Jason lost any feeling in his legs suddenly and after being rushed to the ER we discovered through MRI that a tumour in his spine has compressed his cord beyond repair. With all the previous surgery and radiation there is nothing more they can do.

      4 clinical trials, 2 rounds of chemo cocktails and a lot of radiation to his spine and brain and we're done.

      Strangely he said, it's a relief to finally know what comes next.

      Hi All,

      After  over 3 years of fighting this dreadful disease it's finally won the battle.

      Last Saturday Jason lost any feeling in his legs suddenly and after being rushed to the ER we discovered through MRI that a tumour in his spine has compressed his cord beyond repair. With all the previous surgery and radiation there is nothing more they can do.

      4 clinical trials, 2 rounds of chemo cocktails and a lot of radiation to his spine and brain and we're done.

      Strangely he said, it's a relief to finally know what comes next.

      My doctors are going to try and deliver our baby 3 weeks early ( first week of Feb) so he will hopefully have some time with him before he dies.

      We're home now with great hospice care and spending some time together.

      thanks for al your support over the last few years, keep up the fight. I truly believe that this disease will be cured sooner than we think.

       

      Emily

    Viewing 32 reply threads
    • Replies
        washoegal
        Participant

          Emily,

          My heart goes out to you and Jason and hopefully soon your new baby.  So much to deal with.  Take care of yourself and may Jason have a relative pain free passage.

          Mary

          Stage 3

          washoegal
          Participant

            Emily,

            My heart goes out to you and Jason and hopefully soon your new baby.  So much to deal with.  Take care of yourself and may Jason have a relative pain free passage.

            Mary

            Stage 3

            washoegal
            Participant

              Emily,

              My heart goes out to you and Jason and hopefully soon your new baby.  So much to deal with.  Take care of yourself and may Jason have a relative pain free passage.

              Mary

              Stage 3

              lhaley
              Participant

                Emily,

                I'm sorry it has come to this point but I do understand how much Mike has gone through.  I do hope that he is out of pain and gets to spend some time with the baby.  You have so many emotional issues to deal right now. Take care of yourself also.

                Let hospice as much as you can.

                Linda

                  lhaley
                  Participant

                    After I sent this message I realized I put down the wrong name, I'm sorry of not using Jason's name.  Then it sent several message and have had a difficult time for this to go through.  Dealing with my brain edema has made a few things more difficult.

                    Linda

                    lhaley
                    Participant

                      After I sent this message I realized I put down the wrong name, I'm sorry of not using Jason's name.  Then it sent several message and have had a difficult time for this to go through.  Dealing with my brain edema has made a few things more difficult.

                      Linda

                      lhaley
                      Participant

                        After I sent this message I realized I put down the wrong name, I'm sorry of not using Jason's name.  Then it sent several message and have had a difficult time for this to go through.  Dealing with my brain edema has made a few things more difficult.

                        Linda

                      lhaley
                      Participant

                        Emily,

                        I'm sorry it has come to this point but I do understand how much Mike has gone through.  I do hope that he is out of pain and gets to spend some time with the baby.  You have so many emotional issues to deal right now. Take care of yourself also.

                        Let hospice as much as you can.

                        Linda

                        lhaley
                        Participant

                          Emily,

                          I'm sorry it has come to this point but I do understand how much Mike has gone through.  I do hope that he is out of pain and gets to spend some time with the baby.  You have so many emotional issues to deal right now. Take care of yourself also.

                          Let hospice as much as you can.

                          Linda

                          Phil S
                          Participant
                            Emily, I hope that Jason is without pain and that hospice helps you keep him comfortable along the way. Please take care of yourself, you have to be tired after all these months of battle. I hope the baby comes soon, and is happy and healthy, and fills your time with joyous moments. Jason will truly live on in your son! May Jason have a peaceful next step in his battle, God Bless You Both, Valerie (Phil’s wife)
                            Phil S
                            Participant
                              Emily, I hope that Jason is without pain and that hospice helps you keep him comfortable along the way. Please take care of yourself, you have to be tired after all these months of battle. I hope the baby comes soon, and is happy and healthy, and fills your time with joyous moments. Jason will truly live on in your son! May Jason have a peaceful next step in his battle, God Bless You Both, Valerie (Phil’s wife)
                              Phil S
                              Participant
                                Emily, I hope that Jason is without pain and that hospice helps you keep him comfortable along the way. Please take care of yourself, you have to be tired after all these months of battle. I hope the baby comes soon, and is happy and healthy, and fills your time with joyous moments. Jason will truly live on in your son! May Jason have a peaceful next step in his battle, God Bless You Both, Valerie (Phil’s wife)
                                hope4cure1
                                Participant

                                  Emily, I admire your and Jason's strength and love for each other. Your baby will be the most wonderful gift to you both, as you are to your baby. It sounds like hospice is providing you with good supportive care.  I will hold you in my thoughts and prayers as you spend some very special time together.

                                  Hope

                                  hope4cure1
                                  Participant

                                    Emily, I admire your and Jason's strength and love for each other. Your baby will be the most wonderful gift to you both, as you are to your baby. It sounds like hospice is providing you with good supportive care.  I will hold you in my thoughts and prayers as you spend some very special time together.

                                    Hope

                                      NYKaren
                                      Participant

                                        Emily, please know that my thoughts are with you and Jason.

                                        karen

                                        NYKaren
                                        Participant

                                          Emily, please know that my thoughts are with you and Jason.

                                          karen

                                          NYKaren
                                          Participant

                                            Emily, please know that my thoughts are with you and Jason.

                                            karen

                                          hope4cure1
                                          Participant

                                            Emily, I admire your and Jason's strength and love for each other. Your baby will be the most wonderful gift to you both, as you are to your baby. It sounds like hospice is providing you with good supportive care.  I will hold you in my thoughts and prayers as you spend some very special time together.

                                            Hope

                                            justlittleoleme
                                            Participant
                                              Emily, may God be with you and Jason during this difficult journey. I pray for a beautiful birth and that Jason is with you for all of this. You will be in my prayers.
                                              justlittleoleme
                                              Participant
                                                Emily, may God be with you and Jason during this difficult journey. I pray for a beautiful birth and that Jason is with you for all of this. You will be in my prayers.
                                                justlittleoleme
                                                Participant
                                                  Emily, may God be with you and Jason during this difficult journey. I pray for a beautiful birth and that Jason is with you for all of this. You will be in my prayers.
                                                  Lori C
                                                  Participant

                                                    Emily, it's an extraordinarily difficult thing and you have both fought a tremendous fight.  Prayers to all your family for comfort, peace, and strength.

                                                     

                                                    Lori

                                                    Lori C
                                                    Participant

                                                      Emily, it's an extraordinarily difficult thing and you have both fought a tremendous fight.  Prayers to all your family for comfort, peace, and strength.

                                                       

                                                      Lori

                                                      Lori C
                                                      Participant

                                                        Emily, it's an extraordinarily difficult thing and you have both fought a tremendous fight.  Prayers to all your family for comfort, peace, and strength.

                                                         

                                                        Lori

                                                        glewis923
                                                        Participant

                                                          Dear Emily & Jason-  Our thoughts and prayers are with you…..and Congradulations in advance on your upcoming Baby !!!

                                                          glewis923
                                                          Participant

                                                            Dear Emily & Jason-  Our thoughts and prayers are with you…..and Congradulations in advance on your upcoming Baby !!!

                                                            glewis923
                                                            Participant

                                                              Dear Emily & Jason-  Our thoughts and prayers are with you…..and Congradulations in advance on your upcoming Baby !!!

                                                              MaryD
                                                              Participant

                                                                Emily,

                                                                I will keep all of you in my prayers during this very difficult time.  I hope that you and Jason are able to have some precious and joyful time with your new baby and that  Jason experiences a peaceful and pain free journey.

                                                                Mary

                                                                MaryD
                                                                Participant

                                                                  Emily,

                                                                  I will keep all of you in my prayers during this very difficult time.  I hope that you and Jason are able to have some precious and joyful time with your new baby and that  Jason experiences a peaceful and pain free journey.

                                                                  Mary

                                                                  MaryD
                                                                  Participant

                                                                    Emily,

                                                                    I will keep all of you in my prayers during this very difficult time.  I hope that you and Jason are able to have some precious and joyful time with your new baby and that  Jason experiences a peaceful and pain free journey.

                                                                    Mary

                                                                    FormerCaregiver
                                                                    Participant

                                                                      Emily, I am saddened to read this. I can truly understand what Jason means by what he has said re that it's a relief to finally know what comes next.

                                                                      Remember that you are not alone, so please let us know if there is anything that the people here can help you with.

                                                                      You are in my thoughts and prayers.

                                                                      Frank from Australia

                                                                      FormerCaregiver
                                                                      Participant

                                                                        Emily, I am saddened to read this. I can truly understand what Jason means by what he has said re that it's a relief to finally know what comes next.

                                                                        Remember that you are not alone, so please let us know if there is anything that the people here can help you with.

                                                                        You are in my thoughts and prayers.

                                                                        Frank from Australia

                                                                        FormerCaregiver
                                                                        Participant

                                                                          Emily, I am saddened to read this. I can truly understand what Jason means by what he has said re that it's a relief to finally know what comes next.

                                                                          Remember that you are not alone, so please let us know if there is anything that the people here can help you with.

                                                                          You are in my thoughts and prayers.

                                                                          Frank from Australia

                                                                          Kelli100299
                                                                          Participant

                                                                            Emily…I am new to this forum and sadden to read this about Jason. Know that you both are an inspiration and best wishes to you new addition.

                                                                            Kelli100299
                                                                            Participant

                                                                              Emily…I am new to this forum and sadden to read this about Jason. Know that you both are an inspiration and best wishes to you new addition.

                                                                              Kelli100299
                                                                              Participant

                                                                                Emily…I am new to this forum and sadden to read this about Jason. Know that you both are an inspiration and best wishes to you new addition.

                                                                                Lauri England
                                                                                Participant

                                                                                  I am very saddened for you.  Prayers are going out to you now.  I do pray that Jason gets some time with your new family addition.  How precious that would be.  Stay strong and know you are not alone. 

                                                                                  Lauri England
                                                                                  Participant

                                                                                    I am very saddened for you.  Prayers are going out to you now.  I do pray that Jason gets some time with your new family addition.  How precious that would be.  Stay strong and know you are not alone. 

                                                                                      deardad
                                                                                      Participant

                                                                                        Dear Emily,

                                                                                        I'm so very sad to hear your news, I am thinking of you and Jason as you face this. 

                                                                                        Nahmi from Melbourne

                                                                                        deardad
                                                                                        Participant

                                                                                          Dear Emily,

                                                                                          I'm so very sad to hear your news, I am thinking of you and Jason as you face this. 

                                                                                          Nahmi from Melbourne

                                                                                          deardad
                                                                                          Participant

                                                                                            Dear Emily,

                                                                                            I'm so very sad to hear your news, I am thinking of you and Jason as you face this. 

                                                                                            Nahmi from Melbourne

                                                                                          Lauri England
                                                                                          Participant

                                                                                            I am very saddened for you.  Prayers are going out to you now.  I do pray that Jason gets some time with your new family addition.  How precious that would be.  Stay strong and know you are not alone. 

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