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Update- the really great and the side effects
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Update- the really great and the side effects

› Forums › General Melanoma Community › Update- the really great and the side effects

  • Post
    • June 28, 2019 at 2:45 pm
    Lucygoose
    Participant
      Got my 6-week post surgery scan results. STILL NED!!! That’s the really great.

      The side effects were secondary adrenal insufficiency and hypothyroidism due to combination treatment wiping out that part of my pituitary.

      I am thrilled to be NED!!! I hope this clinical trial leads to better treatments for the future. I also hope they figure out how to control the side effects. I’m good with taking replacement therapy for the rest of my life, but I know they are trying to dial back these types of side effects.

      Here’s to everyone one the board! Hope all is well with you.

      Lucy

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    • Replies
        • June 28, 2019 at 3:43 pm
        ed williams
        Participant
          Lucy, glad to hear scans are good. Now, did you do Ipi+Vx-15 as neoadjuvant treatment and are now moving on to Nivo? Or did you have Nivo+ new drug from the start? Best Wishes!!! Ed
            • June 29, 2019 at 9:03 pm
            Lucygoose
            Participant
              Hi

              I was on Ipi+Vx-15 and am moving on to Nivo. I did have a complete pathological response with the Ipi+Vx-15

            • June 29, 2019 at 11:50 pm
            Linny
            Participant
              So pleased to hear about the NED status!!!! YAY!!!
              • June 30, 2019 at 12:00 am
              Bubbles
              Participant
                So sorry for the side effects. But YAY!!! For the NED! Way to gut it out!! You are an awesome rattie!!! c
                • June 30, 2019 at 1:55 pm
                lkb
                Participant
                  Still NED–yes, ma’m! Wonderful news!
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