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update on ipi trial
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update on ipi trial

› Forums › General Melanoma Community › update on ipi trial

  • Post
    • August 29, 2011 at 9:26 pm
    petie540
    Participant

      Discontinued Temodar in June due to slight increase in size of lung mets. Still subcentimeter. Began a clinical trial with ipi 10mg/kg and GSM-250 fourteen days after each infusion. Nothing dramatic until four days after the third infusion when I developed quite a nasty rash-quite uncomfortable. Started on prednisone 40mg/day and after two days feel much better. One more infusion, then cat/mri on 9/30.Keep you all posted!

      Discontinued Temodar in June due to slight increase in size of lung mets. Still subcentimeter. Began a clinical trial with ipi 10mg/kg and GSM-250 fourteen days after each infusion. Nothing dramatic until four days after the third infusion when I developed quite a nasty rash-quite uncomfortable. Started on prednisone 40mg/day and after two days feel much better. One more infusion, then cat/mri on 9/30.Keep you all posted!

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    • Replies
        • August 29, 2011 at 11:53 pm
        Lisa13
        Participant

          Best of luck with your scans in September – I hope you're a complete responder to ipi.

          Your situation is similar to mine. I'm also in an ipi trial (only 3mg and just ipi). I'm about to get my second treatment on Thursday and havn't had any side effects yet, except a rash that came and went.  I have several lung nodules all sub-centimeter except one which is 1.2cm.  I'm also hoping this treatment will work for me.

          Keep your fingers crossed and believe it will work!

          Lisa

            • August 30, 2011 at 12:07 am
            acyr
            Participant

              I am hopeful for both you and Lisa that there is a very positive response.  Keep well and save your energy! 

              Annette.

              PS.  Lisa – we are going to be conducting a survey shortly (within the month) for patient's side effects on Ipi (Yervoy).  We will have to do this for Health Canada as to submit for approval of this drug.  We need your help and any others in Canada that are on this trial, or the Roche trial as this process will be ongoing.  Please contact me at [email protected].  Thanks in advance Lisa.

              • August 30, 2011 at 1:51 am
              petie540
              Participant

                Lisa,best of luck to you.Let's keep follwing eachother's progress as we seem to be in a similar place.

                • August 30, 2011 at 1:51 am
                petie540
                Participant

                  Lisa,best of luck to you.Let's keep follwing eachother's progress as we seem to be in a similar place.

                  • August 30, 2011 at 12:07 am
                  acyr
                  Participant

                    I am hopeful for both you and Lisa that there is a very positive response.  Keep well and save your energy! 

                    Annette.

                    PS.  Lisa – we are going to be conducting a survey shortly (within the month) for patient's side effects on Ipi (Yervoy).  We will have to do this for Health Canada as to submit for approval of this drug.  We need your help and any others in Canada that are on this trial, or the Roche trial as this process will be ongoing.  Please contact me at [email protected].  Thanks in advance Lisa.

                  • August 29, 2011 at 11:53 pm
                  Lisa13
                  Participant

                    Best of luck with your scans in September – I hope you're a complete responder to ipi.

                    Your situation is similar to mine. I'm also in an ipi trial (only 3mg and just ipi). I'm about to get my second treatment on Thursday and havn't had any side effects yet, except a rash that came and went.  I have several lung nodules all sub-centimeter except one which is 1.2cm.  I'm also hoping this treatment will work for me.

                    Keep your fingers crossed and believe it will work!

                    Lisa

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