› Forums › General Melanoma Community › Update on Health and MDAnderson
- This topic has 13 replies, 11 voices, and was last updated 6 years, 7 months ago by BrianP.
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- September 6, 2017 at 4:57 pm
I'm at MDAnderson right now. Flew in yesterday morning for scans and met with Dr. Tawbi this morning. As far as MDAnderson and getting to and from the airport I had no problems. To be honest I couldn't tell anything had happened here from my transit from the airport. I guess there's still a lot of problems on the west side of the city. Everything seems pretty smooth at MDAnderson except for the Infusion Therapy department. I waited 2.5 hours to get a port accessed and a lady next to me waited 4 hours. Not sure if that was Harvey related or not. The port access service is always bad but not that bad.
Scans went well. Still stable with one tumor slightly smaller. I'm 9 months out from my CAR-T therapy and 6 months from my last Ipi infusion and seem to still be responding. Dr. Tawbi is extremely pleased. Says he will be even more optimistic at the one year mark if things are good and extremely optimistic at the 2 year mark which really made me feel smart because that's exactly what I told my wife before he walked into the room.
I wanted to share this trial with the board.
Dr. Tawbi and his colleagues seem to be very optimistic about this trial at MDAnderson. If someone has progressed on PD-1 this would be one I would consider.
Brian
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- September 6, 2017 at 8:22 pm
Hi Brian, glad to here the good news!!!!
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- September 6, 2017 at 9:30 pm
Excellent – thanks for the update Brian. 'Extremely pleased' is great! Thanks for sharing the trial info as well.
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- September 7, 2017 at 12:04 am
Good news Brian, thanks for the update! My scan day is tomorrow (fingers crossed)!
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- September 7, 2017 at 2:53 pm
Hey Brian,
Stable and shrinking are good to hear, indeed!!! So glad things are going well for you!! Thanks for the info as well. celeste
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- September 8, 2017 at 1:41 am
Bubbles,
Thanks Celeste. That PI3K trial did sound promising. Dr. Tawbi really seemed excited about it. I'm definitely going to be watching it. Dr. Tawbi explained they think that pathway may play a very significant part in why so many don't respond to immunotherapy. He said so far all their efforts to block it have also resulted in blocking the T-cells. They finally figured out how to block this pathway without blocking the T-cells. Only proven in mice so far. We should know soon with the first 40 patients in this trial if they are on to something.
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- September 7, 2017 at 3:12 pm
Thats great news, Brian!! Stable and Shrinking are both amazing words to hear!
Lauren
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- September 9, 2017 at 9:39 am
Brian, great news! Really glad to hear that you're doing well generally and specifically that the treatment is promising.
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- September 11, 2017 at 8:24 pm
Awesome news Brian!! I'm so happy for you and your family!!
Maureen
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- September 23, 2017 at 2:30 pm
GREAT NEWS!!
I just printed out the clinical trial info. I have progressed on Yervoy, Yervoy & Opvido and on the clinical trial I am on now. I am going to MD Anderson next Sunday, to get ready to do TIL or harvest a tumor. But I still need to be on some kind of therapy during that 3 months.
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