update on Dad, starting treatment

Hi Jenn

Thanks for the latest update. I was wondering how you were getting on. Will cross my fingers and toes for you too.

Have you considered probiotics to try and minimize possible gut side effects ?  Some have used this to treat collitis etc after the event – but I am taking them now Biokult etc to try to help myself before it happens.

Hope all goes well tomorrow

Deb

Hi Jenn

Thanks for the latest update. I was wondering how you were getting on. Will cross my fingers and toes for you too.

Have you considered probiotics to try and minimize possible gut side effects ?  Some have used this to treat collitis etc after the event – but I am taking them now Biokult etc to try to help myself before it happens.

Hope all goes well tomorrow

Deb

Hi Jenn

Thanks for the latest update. I was wondering how you were getting on. Will cross my fingers and toes for you too.

Have you considered probiotics to try and minimize possible gut side effects ?  Some have used this to treat collitis etc after the event – but I am taking them now Biokult etc to try to help myself before it happens.

Hope all goes well tomorrow

Deb

Yay for progress! : )  82 staples? Eah gads… that makes the tiny hairs on the back of my neck stand up. Both of my crani's were self absorbant stitches. Only had 3 staples to keep a bandage in place for two days on the second one. Didn't hurt to have them removed, but was a very weird feeling. 82…. **shudder**

Hope all goes well with the Nivo on Tuesday! Crossing fingers and toes that not only does he experience few to zero side effects, but also starts responding quickly and fully! How long between the start of Nivo and his next brain MRI?

Yay for progress! : )  82 staples? Eah gads… that makes the tiny hairs on the back of my neck stand up. Both of my crani's were self absorbant stitches. Only had 3 staples to keep a bandage in place for two days on the second one. Didn't hurt to have them removed, but was a very weird feeling. 82…. **shudder**

Hope all goes well with the Nivo on Tuesday! Crossing fingers and toes that not only does he experience few to zero side effects, but also starts responding quickly and fully! How long between the start of Nivo and his next brain MRI?

Yay for progress! : )  82 staples? Eah gads… that makes the tiny hairs on the back of my neck stand up. Both of my crani's were self absorbant stitches. Only had 3 staples to keep a bandage in place for two days on the second one. Didn't hurt to have them removed, but was a very weird feeling. 82…. **shudder**

Hope all goes well with the Nivo on Tuesday! Crossing fingers and toes that not only does he experience few to zero side effects, but also starts responding quickly and fully! How long between the start of Nivo and his next brain MRI?

I think the timing is still great, Jennifer.  Glad progress is being made, on all fronts!!!  Hang in there.  Fingers and toes crossed for you and your dad!!  love, c

I think the timing is still great, Jennifer.  Glad progress is being made, on all fronts!!!  Hang in there.  Fingers and toes crossed for you and your dad!!  love, c

I think the timing is still great, Jennifer.  Glad progress is being made, on all fronts!!!  Hang in there.  Fingers and toes crossed for you and your dad!!  love, c

I always am looking for post on how your dad is doing- so glad to hear of his progress.  How comforting to have you by his side supporting and loving him.  Remember to take care of yourself too- find time to do some of the things that help fill you up now and then.  For me it's hiking and knitting;) 

All the best-

I always am looking for post on how your dad is doing- so glad to hear of his progress.  How comforting to have you by his side supporting and loving him.  Remember to take care of yourself too- find time to do some of the things that help fill you up now and then.  For me it's hiking and knitting;) 

All the best-

I always am looking for post on how your dad is doing- so glad to hear of his progress.  How comforting to have you by his side supporting and loving him.  Remember to take care of yourself too- find time to do some of the things that help fill you up now and then.  For me it's hiking and knitting;) 

All the best-

So glad to hear of his progress Jennifer ! So glad you are keeping us updated. It gives me hope for my own father. Xxx

So glad to hear of his progress Jennifer ! So glad you are keeping us updated. It gives me hope for my own father. Xxx

So glad to hear of his progress Jennifer ! So glad you are keeping us updated. It gives me hope for my own father. Xxx

Hi, first time giving my story, i been on site, for a year. Snow white, tomorrow we meet with Dr Dumas, to review our MRI. Long story, 1 1/2 years ago we went to Hoag, for simple procedure with Afib. The doctor at ER said, all is good with Afib, but I knowtice you have not had Xray on chect for  1/2 years.He ask if you mind if we do a Xray? Of course we said yes. He came back with a different look on his face, he had melanoma on skin removed 3 1/2 years prior, check limph nodes, all clear.

The person that did surgery never said have a xray, or MRI, just to to his derm doctor to check skin. Well he had stage IV, maybe 6 months. I believe in prayers, next day met with doctor, said yes stage IV, going to the power of prayer, week later, he had a smile on his face, cancer is isolated, we could operate.

Again Hoag, in Newport Beach, we had a surgeon that goes to City of Hope, and other places, Kr Joyal, I will verify, the best!

Here, with your dad, we could relate, cancer went to the brain, we want the best doctor, we research, and chose Dr Duma, at Newport Beach,ca.He did gamma knife, removed to turmors, was so close to mobility. First one, he was done, in 45 minutes. The second was serious, but he felt confident, and yes, he could not walk, speak, ready to give up. Dr Duma, said he will be out in a week, well, end up in rehab, just like your dad. 

Going one step ahead, I want you to know how I found my doctor, oncologist fro Hoag. The one they she did do right, she said chemo does not work on stage IV melanoma. Long story, but, our therapy nurse, was fellowing this girl who was so advanced in melanoma, but was in a clincal study, and on 6 years survivor.

She came over the fellowing week, I ask, do you know the doctor on the clinical studay, she said Doctor Antone Ribas, UCLA, he ran and got Keytruda approved.

I read, all with melanoma, yes, you have to go to melanoma doctor. My husband is on his 8 infusion, Dr Duma said 3 month ago scan, NED, body scan turmors are shrinking.

We said, so far to travel, being that we live in Huntington Beach, his colleage, goes to Torrance office, Monday and Tuesday.

Oh and yes, he did not have infusion for 2 to 3 weeks.

One day, I being first time on this forum, want everyone to get a melanoma specialist!

Good Luck, and God Bless, oh tomorrow we review our MRI with Dr Duma, funny,sweet, and he sure know what he is doing with gamma knife and and surgery.

Hi, first time giving my story, i been on site, for a year. Snow white, tomorrow we meet with Dr Dumas, to review our MRI. Long story, 1 1/2 years ago we went to Hoag, for simple procedure with Afib. The doctor at ER said, all is good with Afib, but I knowtice you have not had Xray on chect for  1/2 years.He ask if you mind if we do a Xray? Of course we said yes. He came back with a different look on his face, he had melanoma on skin removed 3 1/2 years prior, check limph nodes, all clear.

The person that did surgery never said have a xray, or MRI, just to to his derm doctor to check skin. Well he had stage IV, maybe 6 months. I believe in prayers, next day met with doctor, said yes stage IV, going to the power of prayer, week later, he had a smile on his face, cancer is isolated, we could operate.

Again Hoag, in Newport Beach, we had a surgeon that goes to City of Hope, and other places, Kr Joyal, I will verify, the best!

Here, with your dad, we could relate, cancer went to the brain, we want the best doctor, we research, and chose Dr Duma, at Newport Beach,ca.He did gamma knife, removed to turmors, was so close to mobility. First one, he was done, in 45 minutes. The second was serious, but he felt confident, and yes, he could not walk, speak, ready to give up. Dr Duma, said he will be out in a week, well, end up in rehab, just like your dad. 

Going one step ahead, I want you to know how I found my doctor, oncologist fro Hoag. The one they she did do right, she said chemo does not work on stage IV melanoma. Long story, but, our therapy nurse, was fellowing this girl who was so advanced in melanoma, but was in a clincal study, and on 6 years survivor.

She came over the fellowing week, I ask, do you know the doctor on the clinical studay, she said Doctor Antone Ribas, UCLA, he ran and got Keytruda approved.

I read, all with melanoma, yes, you have to go to melanoma doctor. My husband is on his 8 infusion, Dr Duma said 3 month ago scan, NED, body scan turmors are shrinking.

We said, so far to travel, being that we live in Huntington Beach, his colleage, goes to Torrance office, Monday and Tuesday.

Oh and yes, he did not have infusion for 2 to 3 weeks.

One day, I being first time on this forum, want everyone to get a melanoma specialist!

Good Luck, and God Bless, oh tomorrow we review our MRI with Dr Duma, funny,sweet, and he sure know what he is doing with gamma knife and and surgery.

Hi, first time giving my story, i been on site, for a year. Snow white, tomorrow we meet with Dr Dumas, to review our MRI. Long story, 1 1/2 years ago we went to Hoag, for simple procedure with Afib. The doctor at ER said, all is good with Afib, but I knowtice you have not had Xray on chect for  1/2 years.He ask if you mind if we do a Xray? Of course we said yes. He came back with a different look on his face, he had melanoma on skin removed 3 1/2 years prior, check limph nodes, all clear.

The person that did surgery never said have a xray, or MRI, just to to his derm doctor to check skin. Well he had stage IV, maybe 6 months. I believe in prayers, next day met with doctor, said yes stage IV, going to the power of prayer, week later, he had a smile on his face, cancer is isolated, we could operate.

Again Hoag, in Newport Beach, we had a surgeon that goes to City of Hope, and other places, Kr Joyal, I will verify, the best!

Here, with your dad, we could relate, cancer went to the brain, we want the best doctor, we research, and chose Dr Duma, at Newport Beach,ca.He did gamma knife, removed to turmors, was so close to mobility. First one, he was done, in 45 minutes. The second was serious, but he felt confident, and yes, he could not walk, speak, ready to give up. Dr Duma, said he will be out in a week, well, end up in rehab, just like your dad. 

Going one step ahead, I want you to know how I found my doctor, oncologist fro Hoag. The one they she did do right, she said chemo does not work on stage IV melanoma. Long story, but, our therapy nurse, was fellowing this girl who was so advanced in melanoma, but was in a clincal study, and on 6 years survivor.

She came over the fellowing week, I ask, do you know the doctor on the clinical studay, she said Doctor Antone Ribas, UCLA, he ran and got Keytruda approved.

I read, all with melanoma, yes, you have to go to melanoma doctor. My husband is on his 8 infusion, Dr Duma said 3 month ago scan, NED, body scan turmors are shrinking.

We said, so far to travel, being that we live in Huntington Beach, his colleage, goes to Torrance office, Monday and Tuesday.

Oh and yes, he did not have infusion for 2 to 3 weeks.

One day, I being first time on this forum, want everyone to get a melanoma specialist!

Good Luck, and God Bless, oh tomorrow we review our MRI with Dr Duma, funny,sweet, and he sure know what he is doing with gamma knife and and surgery.