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Update – Clinical Trial for Stage IIIb/c Nivo vs IPI CA209-238

Forums General Melanoma Community Update – Clinical Trial for Stage IIIb/c Nivo vs IPI CA209-238

  • Post
    jvictoria
    Participant

      Hello all… I haven't posted on the forum in a while pretty much because there wasn't much to say while I was on the clinical trial.

      First a bit of history…

      Original site right thumb, under nail, colorless melanoma, originally misdiagnosed 06/2014, positive diagnosis 05/2015. 06/2015 Distal amputation to remove the primary site, SNB to identify spread, SNB positive, complete disection performed 07/2015.

      Began Clinical trial CA209-238 10/2015 CT scans, infusions, etc., etc.

      Today… 7 months later, went from no side effects to all side effects for Nivo, trial suspended, put on steroids… next, 2cm nodule near the original SNB site (left elbow) identified plus a 10mm nodule in the left lung.

      06/2015 2cm nodule removed, positive; lung biopsy tomorrow

      Will keep you all posted on next steps… most probably, Moffitt, NYU and MSK for second opinions on what to do next.

      Juan

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    • Replies
        geriakt
        Participant

          Good Luck Juan.

          Lots of prayers your way. I will be at it on Wednesday 

          Tom 

          geriakt
          Participant

            Good Luck Juan.

            Lots of prayers your way. I will be at it on Wednesday 

            Tom 

            geriakt
            Participant

              Good Luck Juan.

              Lots of prayers your way. I will be at it on Wednesday 

              Tom 

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