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Update and question about cyberknife
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Update and question about cyberknife

› Forums › General Melanoma Community › Update and question about cyberknife

  • Post
    • June 22, 2012 at 2:41 pm
    gabsound
    Participant
      Hi,

      My last scans showed mostly good news. No growth in any lung lesions, bones look pretty good. Still have lesions in the liver, but less active. One liver lesion did grow and show increased activity on the PET.

      Dr thinks the Yervoy could very well continue to work and we could watch and wait. He also offers to do another course of Yervoy, but wants to irradiate the lesion in the liver that is growing.

      Has anyone had this done in their liver? Wondering how painful and what to expect. The oncologist said they will likely do a biopsy first then they have to put in some markers around the lesion for the machine to track. From what I read, after that it’s 1 to 5 treatments.

      I had the first dose of second round of Yervoy yesterday.

      Also had our first real vacation since Dx in Jan 2011. We spent 10 days in Maine. Beautiful state! Also went to the museum of Fine Arts in Boston. Very relaxing. It was hard to see all the pale people (like me) on the beach sitting in the sun. I still enjoyed the beach , but did it late in the day or early in the am with sunscreen, a hat, pants and long sleeves.

      Julie in Las Vegas

    Viewing 5 reply threads
    • Replies
        • June 22, 2012 at 4:17 pm
        s Mom
        Participant

          Hi Julie,

          My son had SBRT (radiation) to his liver before he underwent IL2 this February.  There have been studies on radiation prior to immune therapy showing some really positive results – so your onc is on the right track with the combo of radiation and ippi.  Jeff's liver radiation side effects were fatigue and nausea.  The combo of radiation and IL2 didn't work for Jeff, and he had disease progression.  So… Zelboraf was his next course of treatment.  He has had severe joint pain, hair loss and sun sensitivity while on Zelboraf.

          He recently had a liver biopsy – CT guided and it was no big deal (just a big needle).  Not painful at all – said it was a breeze in comparison to everything else he's done.  Hope that helps.  Good luck with ippi and God Bless!

          Bridgette (Jeff's Mom)

            • June 23, 2012 at 3:55 am
            gabsound
            Participant
              Thanks Bridgette for the info. I’m trying to work and do all this without missing too much time. I hope Jeff has a durable response to Zelboraf.

              Julie

              • June 23, 2012 at 3:55 am
              gabsound
              Participant
                Thanks Bridgette for the info. I’m trying to work and do all this without missing too much time. I hope Jeff has a durable response to Zelboraf.

                Julie

                • June 23, 2012 at 3:55 am
                gabsound
                Participant
                  Thanks Bridgette for the info. I’m trying to work and do all this without missing too much time. I hope Jeff has a durable response to Zelboraf.

                  Julie

                • June 22, 2012 at 4:17 pm
                s Mom
                Participant

                  Hi Julie,

                  My son had SBRT (radiation) to his liver before he underwent IL2 this February.  There have been studies on radiation prior to immune therapy showing some really positive results – so your onc is on the right track with the combo of radiation and ippi.  Jeff's liver radiation side effects were fatigue and nausea.  The combo of radiation and IL2 didn't work for Jeff, and he had disease progression.  So… Zelboraf was his next course of treatment.  He has had severe joint pain, hair loss and sun sensitivity while on Zelboraf.

                  He recently had a liver biopsy – CT guided and it was no big deal (just a big needle).  Not painful at all – said it was a breeze in comparison to everything else he's done.  Hope that helps.  Good luck with ippi and God Bless!

                  Bridgette (Jeff's Mom)

                  • June 22, 2012 at 4:17 pm
                  s Mom
                  Participant

                    Hi Julie,

                    My son had SBRT (radiation) to his liver before he underwent IL2 this February.  There have been studies on radiation prior to immune therapy showing some really positive results – so your onc is on the right track with the combo of radiation and ippi.  Jeff's liver radiation side effects were fatigue and nausea.  The combo of radiation and IL2 didn't work for Jeff, and he had disease progression.  So… Zelboraf was his next course of treatment.  He has had severe joint pain, hair loss and sun sensitivity while on Zelboraf.

                    He recently had a liver biopsy – CT guided and it was no big deal (just a big needle).  Not painful at all – said it was a breeze in comparison to everything else he's done.  Hope that helps.  Good luck with ippi and God Bless!

                    Bridgette (Jeff's Mom)

                    • June 22, 2012 at 10:29 pm
                    hope4cure1
                    Participant

                      Congratulations on Yervoy success.  I hope that it contnues to do it's magic.  Also congratulations on going on a great vacation.  Working those good times in is strong medicine too!

                      Hope

                        • June 23, 2012 at 3:56 am
                        gabsound
                        Participant
                          Thanks Hope

                          Julie

                          • June 23, 2012 at 3:56 am
                          gabsound
                          Participant
                            Thanks Hope

                            Julie

                            • June 23, 2012 at 3:56 am
                            gabsound
                            Participant
                              Thanks Hope

                              Julie

                            • June 22, 2012 at 10:29 pm
                            hope4cure1
                            Participant

                              Congratulations on Yervoy success.  I hope that it contnues to do it's magic.  Also congratulations on going on a great vacation.  Working those good times in is strong medicine too!

                              Hope

                              • June 22, 2012 at 10:29 pm
                              hope4cure1
                              Participant

                                Congratulations on Yervoy success.  I hope that it contnues to do it's magic.  Also congratulations on going on a great vacation.  Working those good times in is strong medicine too!

                                Hope

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