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- This topic has 15 replies, 4 voices, and was last updated 12 years, 5 months ago by JerryfromFauq.
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- November 30, 2011 at 3:31 pm
After two miserable months of non-stop vomitting, nausea and increasingly intense pain, scans show that the Carboplatin/Taxol combination has not worked for my husband. We were told yesterday that he has several more sites and significant growth in all existing sites. For the first time, he does have cancer on an organ (his liver). There is a tumor eating through the bone in his wrist, which has already been operated on once but continued to grow, but he cant be operated on or he could not start the newest, and final treatment being offered by his doctor (Abraxane/Avastin)
After two miserable months of non-stop vomitting, nausea and increasingly intense pain, scans show that the Carboplatin/Taxol combination has not worked for my husband. We were told yesterday that he has several more sites and significant growth in all existing sites. For the first time, he does have cancer on an organ (his liver). There is a tumor eating through the bone in his wrist, which has already been operated on once but continued to grow, but he cant be operated on or he could not start the newest, and final treatment being offered by his doctor (Abraxane/Avastin). We were told that we could expect that in the next 3 to 6 months either the cancer would spread to internal organs and cause failure, or the tumor burden would become so great that the toxins in his blood will likely cause organ failure. This new treatment could slow things down, but could also cause heart attack or stroke.
I can't stand to see him so miserable. He is nauseous and in pain all the time. He just got a fentanyl patch and started on Morphine, so today has been thankfully better than the past week.
I know there is no question in my ramblings, just needed to share it and not have to deal with all of the human emotions it evokes when I tell family and friends.
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- November 30, 2011 at 5:11 pm
Sometimes "rambling" helps. Especially when everyone here can understand on some level. God Bless you, your husband and your family. Hang on to your faith – we're all behind you.
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- November 30, 2011 at 6:58 pm
I am so sorry you and your husband are going thru this difficult time. Hopefully, you can work with his medical staff, to keep him comfortable, he shouldn’t have to suffer! I know what’s it like to deal with family and friends, difficult emotionally but they also don’t live your cancer life, so hard for them to truly understand. My husband is also stage IV with brain, lung mets, and several other locations, and I try to take one day at a time. Easier said than done, just know that others truly do understand your emotional turmoil, and wish you healing and peace in this next phase! God bless, Valerie (Phil’s wife)-
- December 2, 2011 at 12:27 pm
Hi Valerie. The few days since I posted this have been better with the fentanyl and morphine. You are right about family not understanding. My husband's stepfather, who lives 300 miles away, actually said to me that this was harder for them (he and my husband's mother) than it is for my daughter and for me. I wanted to scream, but just smiled and said ok. That was the first time that I truly understood how little they understood.
I'm sorry that you are also on this crazy roller coaster. It seems that your faith is strong as are you.
Thank you for taking the time to reply.
Audrey
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- December 2, 2011 at 12:27 pm
Hi Valerie. The few days since I posted this have been better with the fentanyl and morphine. You are right about family not understanding. My husband's stepfather, who lives 300 miles away, actually said to me that this was harder for them (he and my husband's mother) than it is for my daughter and for me. I wanted to scream, but just smiled and said ok. That was the first time that I truly understood how little they understood.
I'm sorry that you are also on this crazy roller coaster. It seems that your faith is strong as are you.
Thank you for taking the time to reply.
Audrey
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- December 2, 2011 at 12:27 pm
Hi Valerie. The few days since I posted this have been better with the fentanyl and morphine. You are right about family not understanding. My husband's stepfather, who lives 300 miles away, actually said to me that this was harder for them (he and my husband's mother) than it is for my daughter and for me. I wanted to scream, but just smiled and said ok. That was the first time that I truly understood how little they understood.
I'm sorry that you are also on this crazy roller coaster. It seems that your faith is strong as are you.
Thank you for taking the time to reply.
Audrey
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- November 30, 2011 at 6:58 pm
I am so sorry you and your husband are going thru this difficult time. Hopefully, you can work with his medical staff, to keep him comfortable, he shouldn’t have to suffer! I know what’s it like to deal with family and friends, difficult emotionally but they also don’t live your cancer life, so hard for them to truly understand. My husband is also stage IV with brain, lung mets, and several other locations, and I try to take one day at a time. Easier said than done, just know that others truly do understand your emotional turmoil, and wish you healing and peace in this next phase! God bless, Valerie (Phil’s wife) -
- November 30, 2011 at 6:58 pm
I am so sorry you and your husband are going thru this difficult time. Hopefully, you can work with his medical staff, to keep him comfortable, he shouldn’t have to suffer! I know what’s it like to deal with family and friends, difficult emotionally but they also don’t live your cancer life, so hard for them to truly understand. My husband is also stage IV with brain, lung mets, and several other locations, and I try to take one day at a time. Easier said than done, just know that others truly do understand your emotional turmoil, and wish you healing and peace in this next phase! God bless, Valerie (Phil’s wife) -
- December 3, 2011 at 7:25 pm
We're not here just for questions and answers! We're here for each other, whether it's for rambling, for listeniing, for whining or whatever else one needs. We all need different things at different times. Amazing how much controling pain and nausea can do for ones abiity to fight on!
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- December 3, 2011 at 7:25 pm
We're not here just for questions and answers! We're here for each other, whether it's for rambling, for listeniing, for whining or whatever else one needs. We all need different things at different times. Amazing how much controling pain and nausea can do for ones abiity to fight on!
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- December 3, 2011 at 7:25 pm
We're not here just for questions and answers! We're here for each other, whether it's for rambling, for listeniing, for whining or whatever else one needs. We all need different things at different times. Amazing how much controling pain and nausea can do for ones abiity to fight on!
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