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Update

› Forums › General Melanoma Community › Update

  • Post
    • September 16, 2015 at 7:49 pm
    Julie in SoCal
    Participant

      Greetings Friends!

      Just wanted to let you know that my last scans came out all fine.  No problems whatsoever!  However, a new piece of funk (in transit met) has popped up in same lymph node basin as all the others.  It is very, very small (smaller than a split pea), and it's possible that we just didn't see it before and it is slow to respond to Pembro.  But it's also possible, highly likely, that it has come up and is not responding, or slowly responding.  Of course this discovery moves me once again from complete responder to partial responder, and now no longer NERD – No Evidence of Recurrent Disease.
       
      I'm disappointed, but not surprised; this is my fourth recurrence.  So the plan is to watch this sucker, keep track of it and see if it's just slowly going away (and we missed it before- it is very, very small) or if it is a new and unresponsive met.  And gratefully, this really doesn't change anything in the short term.  I'll continue Pembro treatment for at least another 8 infusions unless something drastically chances with the stupid intransit, or it becomes obvious that Pembro has stopped working.
       
      Shalom,
    Viewing 5 reply threads
    • Replies
        • September 17, 2015 at 12:55 pm
        Scooby123
        Participant

          So pleased for you Julie, I have not been on sight long but gone back a few years and followed your journey in dealing with this disease. You give me strength and hope that I could one day hopefully be Ned . 

          Scooby ❤️

          • September 17, 2015 at 12:55 pm
          Scooby123
          Participant

            So pleased for you Julie, I have not been on sight long but gone back a few years and followed your journey in dealing with this disease. You give me strength and hope that I could one day hopefully be Ned . 

            Scooby ❤️

            • September 17, 2015 at 12:55 pm
            Scooby123
            Participant

              So pleased for you Julie, I have not been on sight long but gone back a few years and followed your journey in dealing with this disease. You give me strength and hope that I could one day hopefully be Ned . 

              Scooby ❤️

              • September 17, 2015 at 3:36 pm
              KimW
              Participant

                Hi Julie!

                Although disappointing to have to deal with another recurrence, your positive attitude is amazing! These are being caught early so I pray that this one will be gone soon and you may return to being NERD. 

                You have been so inspiring to me since my husband also has intransits on his scalp. I wish I knew more about the history of intransits and their outcomes but I don't see many others who post about them.  I'm thinking your news is actually good, since your scans are clear and no other issues. I will be keeping you in my thoughts and please keep us updated on this new tiny pest. Stay vigilant!

                We have scans Tuesday and I'm trying to be as strong as you. 

                Thanks for your update and thinking of you!

                kim

                 

                • September 17, 2015 at 3:36 pm
                KimW
                Participant

                  Hi Julie!

                  Although disappointing to have to deal with another recurrence, your positive attitude is amazing! These are being caught early so I pray that this one will be gone soon and you may return to being NERD. 

                  You have been so inspiring to me since my husband also has intransits on his scalp. I wish I knew more about the history of intransits and their outcomes but I don't see many others who post about them.  I'm thinking your news is actually good, since your scans are clear and no other issues. I will be keeping you in my thoughts and please keep us updated on this new tiny pest. Stay vigilant!

                  We have scans Tuesday and I'm trying to be as strong as you. 

                  Thanks for your update and thinking of you!

                  kim

                   

                  • September 17, 2015 at 3:36 pm
                  KimW
                  Participant

                    Hi Julie!

                    Although disappointing to have to deal with another recurrence, your positive attitude is amazing! These are being caught early so I pray that this one will be gone soon and you may return to being NERD. 

                    You have been so inspiring to me since my husband also has intransits on his scalp. I wish I knew more about the history of intransits and their outcomes but I don't see many others who post about them.  I'm thinking your news is actually good, since your scans are clear and no other issues. I will be keeping you in my thoughts and please keep us updated on this new tiny pest. Stay vigilant!

                    We have scans Tuesday and I'm trying to be as strong as you. 

                    Thanks for your update and thinking of you!

                    kim

                     

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