MRF-Logo2019-Horizontal-RGB
Updat on my Mom Denise K
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Updat on my Mom Denise K

› Forums › General Melanoma Community › Updat on my Mom Denise K

  • Post
    • December 13, 2013 at 2:18 pm
    hdelancey23
    Participant

      So my mom saw her doctor last week and he said that once the steroids that she is taking to help reduce swelling in her brain quit working then things could go fast.  She is still at home and wants to stay home as long as possible. Yesterday I learned that her pain is increasing.  Her back is hurting and her head is hurting alot.  She is having a hard time getting around and getting up to get to her morphine.  She has been taking the steroids for around four weeks now.  The doctor said that the steroids could stop working as well around 6-8 weeks.  She told us yesterday that she may be in hospice before Christmas.  It makes me sad that she is in so much pain so I really hope that she decides to start Hospice soon.  To me Hospice does not meanthat you are giving up it just means that you need extra help in managing pain.  So we will see how things go this next week.  The good news about her starting Hospice is that she won't be in so much pain and she will be closer to us so we can see her more and help out a little more.  She remains unbelievably strong and brave, she has never once given up and still hold out hope for compassionate use of the PD1 trials.  

    Viewing 11 reply threads
    • Replies
        • December 13, 2013 at 3:31 pm
        awillett1991
        Participant

          Thank you so much for the update, I have been wondering about her and continue to pray for her. She has helps so many on here and continues to be such a strong inspiration. I'm sorry sorry she is suffering. 

          Amy

          • December 13, 2013 at 3:31 pm
          awillett1991
          Participant

            Thank you so much for the update, I have been wondering about her and continue to pray for her. She has helps so many on here and continues to be such a strong inspiration. I'm sorry sorry she is suffering. 

            Amy

            • December 13, 2013 at 3:31 pm
            awillett1991
            Participant

              Thank you so much for the update, I have been wondering about her and continue to pray for her. She has helps so many on here and continues to be such a strong inspiration. I'm sorry sorry she is suffering. 

              Amy

              • December 13, 2013 at 11:45 pm
              POW
              Participant

                Hi, Heather-

                Thank you so much for taking the time to update us about Denise. She is a very special person and we have been privileged to share her journey. I'm glad that you are accepting of and encouraging her to get hospice help– that plus your loving time and attentiion– are the very best things you can do for your mom right now. I hope that you and the rest of the family also take advantage of hospice services. They are wonderful, caring and experienced people who really understand what the family is going through as well as the patient. Please give Denise my warmest regards and tell her that I continue to pray for her daily.

                • December 13, 2013 at 11:45 pm
                POW
                Participant

                  Hi, Heather-

                  Thank you so much for taking the time to update us about Denise. She is a very special person and we have been privileged to share her journey. I'm glad that you are accepting of and encouraging her to get hospice help– that plus your loving time and attentiion– are the very best things you can do for your mom right now. I hope that you and the rest of the family also take advantage of hospice services. They are wonderful, caring and experienced people who really understand what the family is going through as well as the patient. Please give Denise my warmest regards and tell her that I continue to pray for her daily.

                  • December 13, 2013 at 11:45 pm
                  POW
                  Participant

                    Hi, Heather-

                    Thank you so much for taking the time to update us about Denise. She is a very special person and we have been privileged to share her journey. I'm glad that you are accepting of and encouraging her to get hospice help– that plus your loving time and attentiion– are the very best things you can do for your mom right now. I hope that you and the rest of the family also take advantage of hospice services. They are wonderful, caring and experienced people who really understand what the family is going through as well as the patient. Please give Denise my warmest regards and tell her that I continue to pray for her daily.

                    • December 14, 2013 at 3:43 pm
                    BrianP
                    Participant

                      Thanks for the update Heather.  Your mom seems like a very special and courageous person.  I'll be praying for her and your family.

                      Brian

                      • December 14, 2013 at 3:43 pm
                      BrianP
                      Participant

                        Thanks for the update Heather.  Your mom seems like a very special and courageous person.  I'll be praying for her and your family.

                        Brian

                        • December 14, 2013 at 3:43 pm
                        BrianP
                        Participant

                          Thanks for the update Heather.  Your mom seems like a very special and courageous person.  I'll be praying for her and your family.

                          Brian

                          • December 14, 2013 at 6:52 pm
                          aldakota22
                          Participant

                            Sorry that things are not better for your mom.Prayers sent your way that this is only another trial in her way to her way to compassionate use PD-1 trial.What a fighter.Beat the Beast.       Al

                            • December 14, 2013 at 6:52 pm
                            aldakota22
                            Participant

                              Sorry that things are not better for your mom.Prayers sent your way that this is only another trial in her way to her way to compassionate use PD-1 trial.What a fighter.Beat the Beast.       Al

                              • December 14, 2013 at 6:52 pm
                              aldakota22
                              Participant

                                Sorry that things are not better for your mom.Prayers sent your way that this is only another trial in her way to her way to compassionate use PD-1 trial.What a fighter.Beat the Beast.       Al

                            Viewing 11 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics