TIL treatment
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TIL treatment

› Forums › General Melanoma Community › TIL treatment

  • Post
    • September 24, 2011 at 11:37 pm
    ValinMtl
    Participant

    Just to let you know that I have not forgotten about each and every one of you.   Days has been very difficult.  Keeping food down and trying to stop the aching from lymphedema.  I also didn't want to say anything too quickly.  I go for tests starting next Tuesday for 3 days and pray that I have  regression…then I will give a report.  I will be having a scan and results, very nervous, it looks pretty good but I don't want to celebrate too early.  Take care.  Val  xx

    Just to let you know that I have not forgotten about each and every one of you.   Days has been very difficult.  Keeping food down and trying to stop the aching from lymphedema.  I also didn't want to say anything too quickly.  I go for tests starting next Tuesday for 3 days and pray that I have  regression…then I will give a report.  I will be having a scan and results, very nervous, it looks pretty good but I don't want to celebrate too early.  Take care.  Val  xx

Viewing 17 reply threads
  • Replies
      • September 25, 2011 at 12:11 am
      rbruce
      Participant

      Best wishes for great results on your tests next week!  I hope the treatment is successful for you.  Robert

      • September 25, 2011 at 12:11 am
      rbruce
      Participant

      Best wishes for great results on your tests next week!  I hope the treatment is successful for you.  Robert

      • September 25, 2011 at 12:43 am
      killmel
      Participant

      Val

      I wish you all the luck in the world for great scans.

      Have you seen any changes with the tumors in your leg??? How long does the doc say it willtake to see any changes?

      You  are always  in my prayers.

      Mary

      • September 25, 2011 at 12:43 am
      killmel
      Participant

      Val

      I wish you all the luck in the world for great scans.

      Have you seen any changes with the tumors in your leg??? How long does the doc say it willtake to see any changes?

      You  are always  in my prayers.

      Mary

        • September 25, 2011 at 11:14 am
        Vermont_Donna
        Participant

        HI Val,

        I've been thinking about you. What is making the lymphadema aching so? is your leg swollen? I am hoping that you are taking it easy, are laying around and friends and dear hubby are taking care of you!!

        Well wishes coming your way!!

        Hugs,

        Vermont_Donna, stage 3a, NED

        • September 25, 2011 at 11:14 am
        Vermont_Donna
        Participant

        HI Val,

        I've been thinking about you. What is making the lymphadema aching so? is your leg swollen? I am hoping that you are taking it easy, are laying around and friends and dear hubby are taking care of you!!

        Well wishes coming your way!!

        Hugs,

        Vermont_Donna, stage 3a, NED

        • September 25, 2011 at 4:37 pm
        ValinMtl
        Participant

        Hi Donna, I believe it is the radiation (3 days a week for 2 hours that has caused my swelling.  I'm taking it as easy as as I can.  I plan to come back in great shape, I pray.  Val

        • September 25, 2011 at 4:37 pm
        ValinMtl
        Participant

        Hi Donna, I believe it is the radiation (3 days a week for 2 hours that has caused my swelling.  I'm taking it as easy as as I can.  I plan to come back in great shape, I pray.  Val

        • September 25, 2011 at 4:35 pm
        ValinMtl
        Participant

        Hi Mary, Yes I have seen changes in my leg but I'll wait for them to confirm  Val

        • September 25, 2011 at 4:35 pm
        ValinMtl
        Participant

        Hi Mary, Yes I have seen changes in my leg but I'll wait for them to confirm  Val

      • September 25, 2011 at 12:55 pm
      Phil S
      Participant
      It sounds like you have gone through a lot, I hope you feel better each day! We are hoping and praying for positive scan results for you. We have followed your TIL posts, you are a fighter, and we hope this treatment kicks melanoma to the curb. God bless! Valerie (phil’s wife)
      • September 25, 2011 at 12:55 pm
      Phil S
      Participant
      It sounds like you have gone through a lot, I hope you feel better each day! We are hoping and praying for positive scan results for you. We have followed your TIL posts, you are a fighter, and we hope this treatment kicks melanoma to the curb. God bless! Valerie (phil’s wife)
        • September 25, 2011 at 1:42 pm
        Lisa13
        Participant

        Val,

        I'm so sorry this treatment has been so rough on you, but I pray this will all be worth it.

        Sending you best wishes and prayers for good tests results and scans.

        Lisa – Stage 4

        • September 25, 2011 at 1:42 pm
        Lisa13
        Participant

        Val,

        I'm so sorry this treatment has been so rough on you, but I pray this will all be worth it.

        Sending you best wishes and prayers for good tests results and scans.

        Lisa – Stage 4

      • September 25, 2011 at 3:43 pm
      triciad
      Participant

      Val,

      I'm keeping you in my prayers for wonderful results!  Hope you are feeling better soon.

      Tricia

      • September 25, 2011 at 3:43 pm
      triciad
      Participant

      Val,

      I'm keeping you in my prayers for wonderful results!  Hope you are feeling better soon.

      Tricia

      • September 25, 2011 at 4:09 pm
      acyr
      Participant

      Hi Val,

      So good to hear from you.  I can only imagine how rough this trial was – but I am very hopeful this will be the one that really works for you.  Hang in there and I am anxious to hear the scan results.  It is a long road, but we are all very keen to hear your success.  Big hugs,

       

      Annette  IIIB

      Toronto

      • September 25, 2011 at 4:09 pm
      acyr
      Participant

      Hi Val,

      So good to hear from you.  I can only imagine how rough this trial was – but I am very hopeful this will be the one that really works for you.  Hang in there and I am anxious to hear the scan results.  It is a long road, but we are all very keen to hear your success.  Big hugs,

       

      Annette  IIIB

      Toronto

        • September 26, 2011 at 2:11 am
        ValinMtl
        Participant

        Thanks Annette, I haven't forgotten those photos..just have to start feeling better.  Val xx

        • September 26, 2011 at 2:11 am
        ValinMtl
        Participant

        Thanks Annette, I haven't forgotten those photos..just have to start feeling better.  Val xx

      • September 25, 2011 at 10:15 pm
      wgalinat
      Participant

      Hang in there.  Easy as she goes.  It took me a long time as well.  Not a lot of fun either, but you'll start to see some light down that tunnel.  I'm back to NIH myself October 19th, and 20th.  Five years and counting.  My latest crazy cancer, Merkel cell, now doesn't want to give in.  Last three months…three operations, another coming this week, 30 days of radiation…and probably now 30 more off the head and onto the neck, and I'm getting pretty sure that the dreaded word, chemo, is about to me popped on me again.  I'm in that sorta same wierdish "really??" feeling again BUT some of you know me and I ain't f ' ing quitting.

      Warren G  

      • September 25, 2011 at 10:15 pm
      wgalinat
      Participant

      Hang in there.  Easy as she goes.  It took me a long time as well.  Not a lot of fun either, but you'll start to see some light down that tunnel.  I'm back to NIH myself October 19th, and 20th.  Five years and counting.  My latest crazy cancer, Merkel cell, now doesn't want to give in.  Last three months…three operations, another coming this week, 30 days of radiation…and probably now 30 more off the head and onto the neck, and I'm getting pretty sure that the dreaded word, chemo, is about to me popped on me again.  I'm in that sorta same wierdish "really??" feeling again BUT some of you know me and I ain't f ' ing quitting.

      Warren G  

        • September 26, 2011 at 2:10 am
        ValinMtl
        Participant

        We know you Warren…and I KNOW you won't ever give up.  Keep up the fight…you KNOW you will win…those grandchildren need their grandpa!!   Cancer is strong but we are even STRONGER you know that!!! Who knows maybe my next trip will be 19th and 20th…Would love to meet up with you.  Val  xx

        • September 26, 2011 at 2:10 am
        ValinMtl
        Participant

        We know you Warren…and I KNOW you won't ever give up.  Keep up the fight…you KNOW you will win…those grandchildren need their grandpa!!   Cancer is strong but we are even STRONGER you know that!!! Who knows maybe my next trip will be 19th and 20th…Would love to meet up with you.  Val  xx

      • September 26, 2011 at 6:51 pm
      killmel
      Participant

      Val.

       

      I pray you get a great response.

       

      I am new to the forum so I have lots to learn. I read you had radiation for your whole body.

      Is that correct? Will radiation cause brittle bones or other problems in the future foryou?? It would seem that radiating your whole body is not good.

       

      Sal

      • September 26, 2011 at 6:51 pm
      killmel
      Participant

      Val.

       

      I pray you get a great response.

       

      I am new to the forum so I have lots to learn. I read you had radiation for your whole body.

      Is that correct? Will radiation cause brittle bones or other problems in the future foryou?? It would seem that radiating your whole body is not good.

       

      Sal

      • September 26, 2011 at 9:05 pm
      Bruce in NH
      Participant

      Hi Val,

      Thanks so much for keeping us posted on your therapy at NIH. I am following your results closely in hopes the Temodar chemo I am taking will knock down the brain mets to 3 or less so I can join you in getting full body systemic treatment. But one step at a time.

      Keep up your positive attitude, and my thoughts and prayers are with you daily.

      Bruce

      • September 26, 2011 at 9:05 pm
      Bruce in NH
      Participant

      Hi Val,

      Thanks so much for keeping us posted on your therapy at NIH. I am following your results closely in hopes the Temodar chemo I am taking will knock down the brain mets to 3 or less so I can join you in getting full body systemic treatment. But one step at a time.

      Keep up your positive attitude, and my thoughts and prayers are with you daily.

      Bruce

      • September 26, 2011 at 11:45 pm
      momof2kids
      Participant

      Hope all goes well with your results!

      • September 26, 2011 at 11:45 pm
      momof2kids
      Participant

      Hope all goes well with your results!

Viewing 17 reply threads
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