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  • Post
    • February 23, 2017 at 2:16 pm
    Aaron
    Participant

      Ok.  So before I go a little further I will give you a shortened version of the whole story, like I always do, for those who are unfamiliar or have forgotten.  

      NIVO/IPI combo

      1st scan everything reduced by 1/2  Roller coaster high

      Pituitary enlargement and vitiligo develops and  put on Prednisone complete only 3 of 4 Ipi and continue on Nivo  Roller Coaster high because I'm thinking I am responding but also low because I want the 4th dose and questioning what my life will look like now on all these new meds to replace pituitary function.

      2nd scan no growth no shrinkage; stable  Roller coaster low; questioning if my good responses were over.

      Tuesday I had my third scan.  I originally had 20+ tumors and now only have two measurable tumors left and they are shrinking!  Thank God for modern medicine and for being with me and my family through this.  I know it isn't over and that NED is not "cure" but I can't help but feel I am going to beat this.  ROLLER COASTER HIGH!

       

      Wishing the best and for all as always.

      Aaron

    Viewing 10 reply threads
    • Replies
        • February 23, 2017 at 2:21 pm
        momof4boys
        Participant

          Wow Aaron, thats fantastic news! Thanks for sharing as I'm sure we can all use a little hope and good news around here right now.

          • February 23, 2017 at 2:47 pm
          jenny22
          Participant

            Hi Aaron- THAT IS GREAT NEWS….so happy for you…may it continue for many years to come….

             

            jenny

            • February 23, 2017 at 2:47 pm
            Nicklindner
            Participant

              awesome news man.  Thanks for sharing

              • February 23, 2017 at 5:55 pm
              Mat
              Participant

                Great news–thanks for sharing!

                • February 23, 2017 at 7:32 pm
                Patrisa
                Participant

                  Aaron THAIT IS SUCH GREAT NEWS!!!

                  Enjoy your 'freedom', may it last forever!

                  • February 23, 2017 at 9:32 pm
                  youngann
                  Participant

                    That's wonderful news, Aaron. Thank you so much for sharing it with us and giving us all hope.

                    Ann

                    • February 24, 2017 at 2:14 am
                    mdoh
                    Participant

                      What wonderful news! How awesome. Thanks for sharing. 

                      • February 24, 2017 at 3:14 am
                      Maria C
                      Participant

                        Fabulous Aaron – from 20+ to 2, how much better can you do?!  Thanks so much for sharing your extradordinary news!!

                        • February 24, 2017 at 4:04 am
                        Bubbles
                        Participant

                          That's WONDERFUL, Aaron!!!!! Enjoy!  celeste

                          • February 24, 2017 at 12:56 pm
                          UBContributor
                          Participant

                            just fantastic!!!!! so promising and hopeful!! as about pituitary, i read here many times people are totally ok just taking a small pill daily to replace its functions. 

                            • February 25, 2017 at 3:48 am
                            maperny
                            Participant

                              Fantastic!

                          Viewing 10 reply threads
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