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Temodar and PD-1
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Temodar and PD-1

› Forums › General Melanoma Community › Temodar and PD-1

  • Post
    • December 4, 2014 at 10:20 pm
    kalisama
    Participant

      landed in the hospital, when i thought i was going for a final yervoy treatment. my body had other ideas. still looking towards starting the Keytruda, but am focusing on getting my strength back for a few weeks first.

      question, we haven't heard about Temador in many years. my onc is suggesting i go on this due to my proclivative towards brain mets and LMD. he is suggesting i start this now and use it in combo with the PD1/

      this is starting to sound a bit mad scientist to me. has anyone with brain mets here had any success with Temador. i've searched the forums and while people were having some success, this was quite a while ago. there were threads of people combining with early PD1 trials but i found little follow up.

      if anyone has gone this route or has thoughts about it, i am very open to hearing.

      as always, thank you in advance and bless,
      kali

    Viewing 11 reply threads
    • Replies
        • December 4, 2014 at 10:22 pm
        kalisama
        Participant
          • December 4, 2014 at 10:22 pm
          kalisama
          Participant
            • December 4, 2014 at 10:22 pm
            kalisama
            Participant
              • December 5, 2014 at 4:45 pm
              mary1233
              Participant

                I was on temodar and cisplatin for stage III mucosal melanoma. It made me very sick.

                  • December 5, 2014 at 5:07 pm
                  mary1233
                  Participant

                    Actually, now that I think back, I remember reading that temodar was an unusual chemo drug because it did cross into the brain.

                    I read over and over again that the future of immunotherapy is going to be with combination treatments, so hopefully this will work for you. Best of luck.

                    • December 5, 2014 at 5:07 pm
                    mary1233
                    Participant

                      Actually, now that I think back, I remember reading that temodar was an unusual chemo drug because it did cross into the brain.

                      I read over and over again that the future of immunotherapy is going to be with combination treatments, so hopefully this will work for you. Best of luck.

                      • December 5, 2014 at 5:07 pm
                      mary1233
                      Participant

                        Actually, now that I think back, I remember reading that temodar was an unusual chemo drug because it did cross into the brain.

                        I read over and over again that the future of immunotherapy is going to be with combination treatments, so hopefully this will work for you. Best of luck.

                      • December 5, 2014 at 4:45 pm
                      mary1233
                      Participant

                        I was on temodar and cisplatin for stage III mucosal melanoma. It made me very sick.

                        • December 5, 2014 at 4:45 pm
                        mary1233
                        Participant

                          I was on temodar and cisplatin for stage III mucosal melanoma. It made me very sick.

                          • December 7, 2014 at 12:59 am
                          ncdaniel
                          Participant

                            Would like to give positive response to your question on Temador but my wife was on it for six months before she lost her battle to brain tumors. She was also on cisplatin  which was shrinking other tumors. Not sue this helps but maybe some others can reply with positive results. She was not on pd-1. 

                            • December 7, 2014 at 12:59 am
                            ncdaniel
                            Participant

                              Would like to give positive response to your question on Temador but my wife was on it for six months before she lost her battle to brain tumors. She was also on cisplatin  which was shrinking other tumors. Not sue this helps but maybe some others can reply with positive results. She was not on pd-1. 

                              • December 7, 2014 at 12:59 am
                              ncdaniel
                              Participant

                                Would like to give positive response to your question on Temador but my wife was on it for six months before she lost her battle to brain tumors. She was also on cisplatin  which was shrinking other tumors. Not sue this helps but maybe some others can reply with positive results. She was not on pd-1. 

                                  • December 7, 2014 at 2:24 pm
                                  kalisama
                                  Participant

                                    I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

                                    bless,
                                    kali

                                    • December 7, 2014 at 2:24 pm
                                    kalisama
                                    Participant

                                      I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

                                      bless,
                                      kali

                                      • December 7, 2014 at 2:24 pm
                                      kalisama
                                      Participant

                                        I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

                                        bless,
                                        kali

                                      • December 8, 2014 at 1:33 pm
                                      kalisama
                                      Participant

                                        thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

                                        once again, thank you and bless,
                                        kali

                                        • December 8, 2014 at 1:33 pm
                                        kalisama
                                        Participant

                                          thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

                                          once again, thank you and bless,
                                          kali

                                          • December 8, 2014 at 1:33 pm
                                          kalisama
                                          Participant

                                            thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

                                            once again, thank you and bless,
                                            kali

                                        Viewing 11 reply threads
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