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Temodar and PD-1

Forums General Melanoma Community Temodar and PD-1

  • Post
    kalisama
    Participant

      landed in the hospital, when i thought i was going for a final yervoy treatment. my body had other ideas. still looking towards starting the Keytruda, but am focusing on getting my strength back for a few weeks first.

      question, we haven't heard about Temador in many years. my onc is suggesting i go on this due to my proclivative towards brain mets and LMD. he is suggesting i start this now and use it in combo with the PD1/

      this is starting to sound a bit mad scientist to me. has anyone with brain mets here had any success with Temador. i've searched the forums and while people were having some success, this was quite a while ago. there were threads of people combining with early PD1 trials but i found little follow up.

      if anyone has gone this route or has thoughts about it, i am very open to hearing.

      as always, thank you in advance and bless,
      kali

    Viewing 11 reply threads
    • Replies
        mary1233
        Participant

          I was on temodar and cisplatin for stage III mucosal melanoma. It made me very sick.

          mary1233
          Participant

            I was on temodar and cisplatin for stage III mucosal melanoma. It made me very sick.

              mary1233
              Participant

                Actually, now that I think back, I remember reading that temodar was an unusual chemo drug because it did cross into the brain.

                I read over and over again that the future of immunotherapy is going to be with combination treatments, so hopefully this will work for you. Best of luck.

                mary1233
                Participant

                  Actually, now that I think back, I remember reading that temodar was an unusual chemo drug because it did cross into the brain.

                  I read over and over again that the future of immunotherapy is going to be with combination treatments, so hopefully this will work for you. Best of luck.

                  mary1233
                  Participant

                    Actually, now that I think back, I remember reading that temodar was an unusual chemo drug because it did cross into the brain.

                    I read over and over again that the future of immunotherapy is going to be with combination treatments, so hopefully this will work for you. Best of luck.

                  mary1233
                  Participant

                    I was on temodar and cisplatin for stage III mucosal melanoma. It made me very sick.

                    ncdaniel
                    Participant

                      Would like to give positive response to your question on Temador but my wife was on it for six months before she lost her battle to brain tumors. She was also on cisplatin  which was shrinking other tumors. Not sue this helps but maybe some others can reply with positive results. She was not on pd-1. 

                      ncdaniel
                      Participant

                        Would like to give positive response to your question on Temador but my wife was on it for six months before she lost her battle to brain tumors. She was also on cisplatin  which was shrinking other tumors. Not sue this helps but maybe some others can reply with positive results. She was not on pd-1. 

                        ncdaniel
                        Participant

                          Would like to give positive response to your question on Temador but my wife was on it for six months before she lost her battle to brain tumors. She was also on cisplatin  which was shrinking other tumors. Not sue this helps but maybe some others can reply with positive results. She was not on pd-1. 

                            kalisama
                            Participant

                              I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

                              bless,
                              kali

                              kalisama
                              Participant

                                I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

                                bless,
                                kali

                                kalisama
                                Participant

                                  I'm sorry to hear about your wife's battle. I am reluctant to introduce this traditional chemo in to my treatment, with all of these immonotherapies available now and so little data to support the effectiveness of this med. thank you for sharing your story.

                                  bless,
                                  kali

                                kalisama
                                Participant

                                  thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

                                  once again, thank you and bless,
                                  kali

                                  kalisama
                                  Participant

                                    thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

                                    once again, thank you and bless,
                                    kali

                                    kalisama
                                    Participant

                                      thank you again for the feedback. i have chosen not to take this path right now and go directly to the keytruda in a few weeks after i continue to strengthen from hospital stay. i've waited so long for this med why would i taint it with another med? my theory is that i can always add the temador later if it seems like a practical combo therapy. perhaps there will even be studies by then.

                                      once again, thank you and bless,
                                      kali

                                  Viewing 11 reply threads
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