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Taf/Mek: too many side effects

Forums General Melanoma Community Taf/Mek: too many side effects

  • Post
    Summer S.
    Participant
      Hi everybody,

      It is my mom’s third week on the combo,

      She has been suffering fever, nausea, vomiting, abdominal pain and coughing, eye redness and fatigue

      I know each of these symptoms alone is trivial, but altogether are really giving her hard time, and she does not seem to be enjoying her daily life.

      I wonder how many side effects are too many, and when it is right to take a medicine holiday?

      Also, does any body have a similar experience? Does it get better with time?

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    • Replies
        marta010
        Participant
          The cumulative effect of the side effects do take a toll. I’d report any and all side effects to your mom’s medical team. It does seem like a reduction in dosage would be in order based on what she’s experiencing. My husband suffered through several bouts with extreme fevers/chills landing him in the hospital. It took trial and error before reaching the best dosage for him. He’s been on 3/4 dose of Tafinlar since 2013..

          Ann

            Summer S.
            Participant
              Hi Ann,

              Thank you so much for sharing your story with me, it is really encouraging. I hope Taf/Mek continues to do miracles for your husband

              God bless both of you,
              S.

            Hukill
            Participant
              I had about 7 side effects at the same time until after the combo then some went away. When I got the side effects I was extremely happy I looked at it like this. If my immune system is wrecking havoc on other parts of my body imagine what it is doing to the melanoma. I know they suck and I still worked a full time job but side effects is a small price to pay for living. After the combos some will go away.
                Summer S.
                Participant
                  Hello Hukill,

                  Am glad combo worked better for you, stay strong!
                  You are totally right, it is small price to pay, we will keep trying to stay strong like you do

                  Thank you for sharing and encouraging us ❤️
                  It really feels a lot less lonely being with you guys on this forum
                  Love
                  S.

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