Earlier in the week they had tried to further wean the steroids. At one point I had to have my husband hold my hand for me to walk, they had tried to quickly to wean me off. So then I was feeling better when Sat night the headache started. I felt as if someone had also punched me in the teeth and sinus – like it started originally. Sunday morning I knew I had to call the DR.
Earlier in the week they had tried to further wean the steroids. At one point I had to have my husband hold my hand for me to walk, they had tried to quickly to wean me off. So then I was feeling better when Sat night the headache started. I felt as if someone had also punched me in the teeth and sinus – like it started originally. Sunday morning I knew I had to call the DR.
The MRI showed no change since the 10TH!! While I would have like to see it shrink (SRS 2 weeks earlier) I knew it was still early. But no bleeding and no growth. The other 2 scans had shown 1cm bleed before so now to us that was good news.
The nuerosurgeon has scheduled the next MRI on the 21st. Will talk after the MRI and decide if he will immediately do the crainectomy – he said that to him there must be some shrinkage at that point. This will just be a few days before Thanksgiving. I sure do hope that will be home and cooking dinner because will have had a beginning response!
They are keeping me 1/2 of a tablet in am and 1/2 in the pm. They are waiting another week before we try to lower the level a little. Meanwhile I was told that no headache is acceptable. That is gone but still having some teeth issue. I think I now have added some sores in the mouth and this has added.
Feel pretty good today, and hope this continues!
Linda
http://www.caringbridge.org/visit/lindahaley
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